The heart or chest pain you feel can be pericarditis, which is inflammation of the pericardium or sack around the heart. You can also have pleuritis, which is similar. It is an inflammation of the pleural sack around the lungs. With lupus, there can be a build up of white blood cells within these linings between the lining and the heart or lungs, and it creates a rubbing effect. This rubbing is very painful. I know because it happened to me, first pericarditis, then pleuritis (multiple times). To diagnose pericarditis you need an echocardiogram, or sonogram of the heart. A regular chest Xray will not show this. Your doctor also needs to do a C-Reactive protein, an ESR, or Erythrocyte Sedimentation Rate. The treatment is prednisone (steroids). It decreases the inflammation. If you are waiting for your appointment with your rheumatologist, go back to your PCP and see if they will order any further tests.
When I first had pericarditis, it was scary. It was very painful, I went to the ER. At the time I suspected Lupus and had been tested, and only some of the tests were positive, not all of them, so the doctors were not ready to label me as lupus just yet. Even with pericarditis! But just like you, they did acknowledge that at least something was going on. It was a full 2 years after that episode before my third rheumatologist finally officially diagnosed me as lupus. It was a very long and frustrating road.
Just hang in there and be persistent! If you know something is not right, then keep going to the doctor, and get tested. Not every lupus test is going to show up every time. Keep track of your symptoms and when they occurred.
Are you taking any supplements or vitamins?
<profession removed, not relevant to this forum> Lupus fighter!
Post Edited By Moderator (Lynnwood) : 2/7/2014 9:38:52 PM (GMT-7)