Lupus symptoms

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Taina81
Regular Member


Date Joined Feb 2014
Total Posts : 36
   Posted 2/5/2014 4:34 PM (GMT -6)   
I sometimes feel like I might be misdiagnosed. I noticed that a lot of people with lupus are sensitive to sun, get rashes and feel really exsausted. My hands do turn Blue or white, headaches , eye pain, dry mouth,brain fog, muscles soreness here in there,frequent urin,fingers swell up sometimes, trouble straightening out my arms because elbow hurts.lightheaded. The funny thing is that a yr ago I would get fever often and really bad muscle pain that I would cry. Would have to take hot baths to ease the pain. It just stopped happening. Until 3 mornha ago I was diagnosed with lupus because my arms would hurt when I would stretch them out.

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 2/5/2014 4:55 PM (GMT -6)   
Sounds like you were flaring at the beginning then it went quiet, now it's waking up.

Did the doctor run any blood work on you?
Joy
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, OA, Depression, Allergies, and benign familia tremors

When life throws you lemons....
Pick them up and throw them right back at them! :))

Taina81
Regular Member


Date Joined Feb 2014
Total Posts : 36
   Posted 2/5/2014 5:32 PM (GMT -6)   
Yes.
Systemic lupus profile a :
Rnp antibodies >8.0 high
Smith antibodies 1.3 high
Ra latex turbid 43.6 high
Antichromatin antibodies >8.0 high
Sjogrens anti-ss-a <0.2
Sjogrens anti-ss-a <0.2
Anti-DNA (ds)ab qn <1
The ones that say high is the reason why dr told me I have lupus.

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 2/5/2014 5:51 PM (GMT -6)   
What exactly are your symptoms?
Joy
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, OA, Depression, Allergies, and benign familia tremors

When life throws you lemons....
Pick them up and throw them right back at them! :))

Taina81
Regular Member


Date Joined Feb 2014
Total Posts : 36
   Posted 2/5/2014 6:16 PM (GMT -6)   
Headaches. Eye pain. Dry mouth. Hands turn blue or white when cold. Back aches fingers swell up and turns red where it's swollen. My right arm or left arm hurt sometimes when I try to straighten them out. Stomach pain once in awhile. Frequent urination. Fingers twitch and toes too sometimes.

Beating Lupus
New Member


Date Joined Feb 2014
Total Posts : 12
   Posted 2/7/2014 7:49 PM (GMT -6)   
Your hand issues sound more like Renaud's, which is also autoimmune, and is common in people with lupus. I have it mildly, my mother and sister in law both have lupus and Renaud's too. My doctor told me to not drink coffee or too much caffeine, because it constricts the tiny blood vessels in your fingers. Lately I have been drinking more coffee just because I get cold and tired at work in the afternoon. And I have noticed my fingers are stiffer and colder.
The muscle pain is a myalgia, common in lupus too. Exercise and massage helps my muscle pains. But they can get pretty bad. sometimes my boyfriend will massage my legs and I will yell out in pain, and he has barely touched me!
Your lab results look like Lupus. Did they do an ANA on you too?
Yoga and the supplement Vector 450 have been a godsend for me to feel halfway human again!
Hope you feel better :)

Natalie.

Taina81
Regular Member


Date Joined Feb 2014
Total Posts : 36
   Posted 2/8/2014 2:46 PM (GMT -6)   
Thanks for the info! ;)

Taina81
Regular Member


Date Joined Feb 2014
Total Posts : 36
   Posted 2/8/2014 2:47 PM (GMT -6)   
Is your mouth always dry? Myourh is always dry! I can't stand it.

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 2/8/2014 2:50 PM (GMT -6)   
My mouth has spells of being dry. I use Bioten mouth gel. They have several items to help mosturize your mouth.
Joy
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, OA, Depression, Allergies, and benign familia tremors

When life throws you lemons....
Pick them up and throw them right back at them! :))

Taina81
Regular Member


Date Joined Feb 2014
Total Posts : 36
   Posted 2/8/2014 2:59 PM (GMT -6)   
Where can I find the mouth gel?

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 2/8/2014 3:47 PM (GMT -6)   
I've seen it in several stores, walmart, cvs, walgreens, rite-aid. It is normally near the toothpaste & mouthwash area. They've been doing several ads for it on tv lately.
Joy
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, OA, Depression, Allergies, and benign familia tremors

When life throws you lemons....
Pick them up and throw them right back at them! :))

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 2/8/2014 4:12 PM (GMT -6)   
I think a multi-vitamin would be okay, but double check with the doctor to be sure.
If you're on mtx they do require folic acid for you.
Joy
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, OA, Depression, Allergies, and benign familia tremors

When life throws you lemons....
Pick them up and throw them right back at them! :))

Beating Lupus
New Member


Date Joined Feb 2014
Total Posts : 12
   Posted 2/10/2014 9:49 PM (GMT -6)   
Biotene products are great for dry mouth! when I was first diagnosed with Lupus, I had such a dry mouth. I had a bottle of water with me everywhere I went. And I had really dry eyes, had to put eye gel in my eyes every night. But since I got my Lupus under control, all those dry symptoms went away. But Biotene has several products and they are also used by hospitals.
As far as vitamins, I think taking vitamins is super important. The only supplement I have read and been told that Lupus patients cannot take is Echinacea, because it boosts the immune system and can make you flare.
Make sure you buy good quality vitamins, in capsule or gel cap form, not tablet. Your body does not absorb tablets as well. I take a multivitamin,Vitamin. E, Vit. C (1-2 gms daily with lots of water!), Vit A for my skin, Vitamin B complex (energy!), calcium with D, and extra Vitamin D. Omega fatty acids are soooo important! They are naturally anti-inflammatory.
You do need to be careful with supplements if you have kidney issues, or have high potassium, so always ask. I am lucky to have a rheumatologist that stresses nutrition and supplements to help manage lupus. He also recommends DHEA supplement, which is a hormone that woman with lupus tend to be low in. You can have your doctor check your DHEA levels, and take the supplement accordingly.

Natalie.
Lupus conqueror, Fibromyalgia, Hypothyroid, Asthma, IBS...I got your number :)

Anirock
Regular Member


Date Joined Dec 2013
Total Posts : 28
   Posted 2/10/2014 10:57 PM (GMT -6)   
Hi Natalie!

Can you recommend me a doctor here in Dallas/Forth Worth area?
I have some Lupus issues but I'm from Romania and I'm temporary leaving in Texas (Fort Worth). I don't know anyone here and I need a doctor. Please help me!!!!

Thank you so much,
Corina
Vitiligo, Autoimmune thyroid, maybe Lupus ( the doctors haven't decided yet).

“In three words I can sum up everything I've learned about life: it goes on.” ? Robert Frost

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 2/11/2014 12:43 AM (GMT -6)   
Another suppliment to avoid is melatonin. For some reason it can cause flares too. Not all doctors are aware of that.
Joy
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, OA, Depression, Allergies, and benign familia tremors

When life throws you lemons....
Pick them up and throw them right back at them! :))

Beating Lupus
New Member


Date Joined Feb 2014
Total Posts : 12
   Posted 2/11/2014 8:49 PM (GMT -6)   
Anirock,
If you live in the Mid-cities or Fort Worth area, Medical Clinics of North Texas has Dr. xxx who is highly recommended. There are other rheumatologists in the same group, some in safe office some in different office. I am actually switching rheumatologists myself, going to see Dr. xxx (associate of Dr. xxx). Earliest appointment was the end of April! Dallas has a lot of Rheumatologists, I hear many of them are very good. It may depend on your insurance too, who is in network. Check with your insurance network first, maybe on their website, and go from there.
I just hope you can get an appointment when you need one! You can always find a good internal medicine doctor who could do some basic labs and medications while you wait for a rheum apt.
Good luck and enjoy your stay here! I work with a surgeon from Romania, great guy :)

Joy I had no idea about Melatonin! I take it on rare occasion, have never noticed any issues after I take it. Though I take it once and then not again for a while. I will have to watch that.
Thanks for the info!

Natalie.

<Edited to remove Dr's names. We can not mention specific Drs names for legal reasons. If you want to exchange this information, please activate the email option in your profile and communicate via email. Thanks>

Post Edited By Moderator (Lynnwood) : 2/11/2014 9:41:42 PM (GMT-7)


Anirock
Regular Member


Date Joined Dec 2013
Total Posts : 28
   Posted 2/11/2014 10:47 PM (GMT -6)   
Thank you Natalie :)
It does mean a lot of me!
Now I know from where to start my way finding a doctor. I don't know why it's so hard to get an earlier appointment to a doctor. In Romania it can't take more than few days.
However say hi to the Romanian surgeon.
Take care of you!

CORINA
Vitiligo, Autoimmune thyroid, maybe Lupus ( the doctors haven't decided yet).

“In three words I can sum up everything I've learned about life: it goes on.” ? Robert Frost
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