Could it be lupus?

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NotThisAgain
New Member


Date Joined Feb 2014
Total Posts : 3
   Posted 2/6/2014 6:42 PM (GMT -6)   
I know it's not good to self-diagnose. But I really feel like I might have lupus or some kind of autoimmune problem. Over the past few weeks I've experienced:

- Somewhat painful mouth ulcers and tongue irritation that disappeared quickly
- Petechiae and red scaly dots on both breasts and a few on my arms
- Constant or near-constant tailbone pain that hurts when standing, bending, sitting
- Fatigue
- UTI symptoms such as bladder pressure and lower back pain with no UTI (white blood cells found in urine, no bacteria found)
- Random hives
- Elevated white blood cell count, off and on, for no apparent reason (11 - 11.4)
- Low fever, just for a few days
- Hip pain
- Worsened menstrual cramps

I also have:

- Intracranial Hypertension (which has been linked to Lupus)
- IBS
- GERD
- Asthma
- Various food and pollen allergies
- Long-term and sometimes debilitating fatigue

In the past I've had:

- Stiff/sore knees for no reason that require me to use a brace (does not happen often)
- Random throat inflammation with no apparent cause
- Frequent infections
- Childhood eczema
- Elevated liver enzymes for no apparent reason
- Random welts and hives that appear on various parts of my body for no reason (not often)
- "Stress fevers" when I was a kid, where I'd get a fever whenever I was exhausted from school or whatever
- Red cheeks (butterfly-shaped, but not raised or rash-like) after sun exposure
- Various neurological symptoms (heat sensitivity, odd sensations, paresthesias, vertigo)

I have had:

- Multiple normal MRIs and CT scans with and without contrast, spaced out over time
- Blood tests for Lyme Disease (negative)
- Blood tests for gluten allergy (negative)

So... Yeah. Does it sound like I have Lupus or some other kind of autoimmune problem?

Post Edited (NotThisAgain) : 2/6/2014 6:03:28 PM (GMT-7)


couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 2/7/2014 2:18 AM (GMT -6)   
Have you had the ANA blood panel too?
Are you seeing a rhuematologist?

You definately sound familar to the lupus list. But I'm not a doctor so I can diagnose you.
Joy
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, OA, Depression, Allergies, and benign familia tremors

When life throws you lemons....
Pick them up and throw them right back at them! :))

NotThisAgain
New Member


Date Joined Feb 2014
Total Posts : 3
   Posted 2/7/2014 7:11 PM (GMT -6)   
Nope. shakehead

To tell you the truth, I'm a little scared to ask for it... How do you bring it up? Will a doctor take you seriously if you say you're worried about Lupus? Will they think you're a hypochondriac?

Getting to a rheumatologist without a referral right now also might be difficult as I'm on a tight schedule at school, but would my GP be able to order the blood work at least?

At my appointment today, she didn't really know what to make of the rash and just gave me some steroid cream, telling me to see a dermatologist if it doesn't go away, comes back, gets much worse, etc.

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 2/8/2014 1:05 AM (GMT -6)   
Your primary can order the blood work but it takes a rheumy to diagnose you.
Ask your primary to run the autoimmune panel with ANA titers. If anything comes back hinky then have him refer you to a rheumy during your spring break.
Joy
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, OA, Depression, Allergies, and benign familia tremors

When life throws you lemons....
Pick them up and throw them right back at them! :))

NotThisAgain
New Member


Date Joined Feb 2014
Total Posts : 3
   Posted 2/8/2014 4:20 PM (GMT -6)   
Ooh, that's a good idea. I didn't think of spring break. Thanks for the tip, I'll bring it up the next time I see my GP.

PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2607
   Posted 2/10/2014 1:00 AM (GMT -6)   
Keep in mind, it often takes months to get in to see a rheumatologist. You might consider calling your PCP and asking for a referral to a rheumy. You'll probably have better luck getting in sooner, or in designating a week you want an appointment.
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