Massive fluid... HELP

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New Member

Date Joined Jan 2014
Total Posts : 4
   Posted 2/8/2014 5:20 AM (GMT -6)   
Initially my mother was only retaining fluid in her feet. She had a kidney biopsy, results were that she had stage 2. The nephrologist reduced her prednisone and increased her LASIK. He said her rheumatologist should treat her lupus further. That was two days ago. Now the fluid has moved further up her body, her blood pressure spiked to 201/110, and she is having difficulty breathing. So much fluid that she was 140lbs, and spiked to 179lbs in 2 weeks. She has appointments with her rheumatologist, primary care doctor, and cardiologist all next week. She was too afraid to wait, so I took her to the ER. They emitted her and said her bnp went from 8000 to 12000.(what is a bnp) the X-ray also showed fluid in her lungs. She is afraid she is going to die, I'm not sure what doctor should be doing what at this point.
After her biopsy she was on 60mg prednisone, the neph is reducing by 20 each week, Lasix is 25mg, lyrica 40 mg, procrit 20000 units a week.

Any suggestions, I'm really worried. I'm an only child and my mom is my best friend.

New Member

Date Joined Jan 2014
Total Posts : 6
   Posted 2/8/2014 8:26 AM (GMT -6)   
BNP is short for B Natruiretic Protein, it is a lab that tests for an enzyme the heart secretes. It shows how well the heart is working. If someone is short of breath or has gained weight or has fluid in them where they shouldn't, the doctors will run that test to see how the heart is working. The higher number is not optimal. I would think that the doctors main concern is getting the extra fluids out of her system.

I understand your position, and pray everything works out for you and your mom. Make sure you take care of yourself, too. It's hard, but just make sure you don't wear yourself down too much. I've been there.

New Member

Date Joined Jan 2014
Total Posts : 4
   Posted 2/10/2014 2:56 AM (GMT -6)   
Thank you for your post! The doctor has increased the Lasix and some of the fluid is leaving. The doctor has done several sonograms and echocardiagrams. Now they are saying she has pneumonia in one lung.

Veteran Member

Date Joined Apr 2006
Total Posts : 1344
   Posted 2/10/2014 4:13 PM (GMT -6)   
Lupus often attacks kidneys and causes fluid problems that can be severe. Lasix treats the symptoms which is increased fluid retention and prednisone is attempting to treat the cause which might be lupus. I had the same problems and gained 20-30 lbs of fluid in a few days several times. Once lupus was brought under control my kidney function returned to normal. However, I take an ace inhibitor and a diuretic and will probably do so the rest of my life. No big deal and everything is under control now.

Good thing you acted quickly and hope your mother's docs can figure out the right treatment for whatever is causing these problems. I have been in remission for 8 years and live a relatively healthy and active life.

MCTD (SLE Lupus, polymyositis, scleroderma). Diagnosed 2005. Kidney, liver, GI tract, dysphagia, raynauds, barretts esophagus, quadriplegic in 2005. Recovered and now active in downhill skiing, golf, hiking. Meds: amlodipine, benezapril, omeprazole, potassium, folic acid, vitamins, maxide.

Remain Optimistic and you can overcome.
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