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Regular Member

Date Joined Feb 2014
Total Posts : 36
   Posted 2/12/2014 1:38 PM (GMT -6)   
Are any lupus patients doing any kind of lupus diet? I didnt know they are certain foods that could effect us. I am thinking in ordering a lupus diet book which has good reviews and helped alot of lupus patients feel better.

Elite Member

Date Joined Jul 2009
Total Posts : 14475
   Posted 2/12/2014 3:45 PM (GMT -6)   
There's been a lot of debate on diet in the past.
The main thing is a healthy diet and avoid any foods that make you feel worse.
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, OA, Depression, Allergies, and benign familia tremors

When life throws you lemons....
Pick them up and throw them right back at them! :))

Regular Member

Date Joined Feb 2011
Total Posts : 399
   Posted 2/12/2014 9:46 PM (GMT -6)   
I sometimes get triggered when I consume too much wheat and dairy. I have been currently on a wheat and dairy free diet for two weeks and feeling better. My GI symptoms have eased considerably. I also have less fatigue and malaise. It does not seem to have had an effect on my arthralgia, although I seem to be having less swelling. Oh, and I have not consumed any legumes. My plan is to continue for two more weeks and then slowly add the avoided foods back into my diet to see what, if any reactions I experience.


Regular Member

Date Joined Dec 2013
Total Posts : 28
   Posted 2/13/2014 12:18 AM (GMT -6)   

I'm from Romania and in my country we have a Lupus Blog (LupusRomania). Unfortunately, it is written in Romanian language.
There I've read something about Lupus diet. The main idea was that we must reduce the consumption of meat (especially beef meat) and dairy and to increase fruits, vegetables and fish meat. In the same article I have read that Flax Seed are very good reducing the Lupus symptoms.

Here is the article:

Try to use Google translate for this :(

Hoping that it helps you,
Vitiligo, Autoimmune thyroid, maybe Lupus ( the doctors haven't decided yet).

“In three words I can sum up everything I've learned about life: it goes on.” ? Robert Frost

Regular Member

Date Joined Feb 2014
Total Posts : 36
   Posted 2/13/2014 8:01 PM (GMT -6)   
I bought a book called immune system plan and it talks about what kind of foods trigger chronic illnesses and it talks about doing gluten free diet and to avoid eating dairy , anything with that has corn like corn on a cob and corn syrup and soy like soy sauce soy beans for three wksn and see if you start noticing your symptoms going away. Its a really interesting book.

Regular Member

Date Joined Jan 2014
Total Posts : 360
   Posted 2/15/2014 11:05 AM (GMT -6)   
I've found that eliminating gluten and eating more raw veggies and fruits has helped with my GI symptoms. It could be the gluten free or the raw foods or both, not sure lol. I also take an s load of vitamins and supplements. I think a healthy diet and taking supplements when needed will help improve some symptoms but it hasn't magically cured my conditions or enabled me to run a marathon.

We have to be mindful of what works and what doesn't work to help our bodies function better. A healthy diet certainly is going to help but I also think we have to have reasonable expectations. Not everything is going to work for every individual and I don't believe there is any one magic pill (vitamin, fad diet or pharmaceutical) that will make an autoimmune disease disappear. As with all things it is a matter of trial and error with the expectation that changes to diet and lifestyle will *improve* symptoms making them more manageable, not eliminate them entirely.

There are far too many snake oil salespeople out there toting the next natural cure for lupus or ms or cancer. I think it is cruel and irresponsible to play with the hopes of the chronically ill. There is no cure, but that being said yes diet will improve well being as will a positive mindset, stress management and proper rest. It's all part of taking good care of your body and finding what works best for each individual.
Lupus, livedo reticularis, Raynauds, cold urticaria, endometriosis, bursitis, arthritis, Sjorgens, anemia, leukocytosis, vasculitis, pleurisy, asthma and all that fun stuff!

Be who you are and say what you feel because those who mind don't matter and those who matter don't mind - Dr. Seuss

Regular Member

Date Joined Feb 2014
Total Posts : 36
   Posted 2/15/2014 3:23 PM (GMT -6)   
Yes there is no cure but if you eat healty and supplements you will feel way better. Thats what im doing right now. Ive been seeing a nutritionist and he has helps many people with all kinds of chronic illnesses . Will be seeing him again this monday coming up. He will be telling me what to eat and what supplements to take and will be seeing him every other wk to see how im doing. His name is Dr. Barry Lieberman, D.C. from beverly hills ca .lets see how it goes :)

Regular Member

Date Joined Jan 2014
Total Posts : 360
   Posted 2/16/2014 9:43 AM (GMT -6)   
For sure, I may have come across as being negative in my last post and didn't mean to be a debbie downer lol. I just get really mad about some of the claims I see on tv and the internet promising the nest big cure for chronic illness.

I totally agree that eating right will help anyone. :) I just think that we have to have realistic expectations and keep things in perspective which it seems you do.

Just be sure to let your rheumy know what supplements you are taking.
Lupus, livedo reticularis, Raynauds, cold urticaria, endometriosis, bursitis, arthritis, Sjorgens, anemia, leukocytosis, vasculitis, pleurisy, asthma and all that fun stuff!

Be who you are and say what you feel because those who mind don't matter and those who matter don't mind - Dr. Seuss

Regular Member

Date Joined Jan 2013
Total Posts : 62
   Posted 2/18/2014 6:39 PM (GMT -6)   
Last December the pediatric rheumy suggested gluten free for my 14 year old's stomach issues (not nesc for lupus) - she didn't want to go it alone so I joined in the fun - A horrible stomach pain I had daily for 27 years is gone - the 14 year old's rash is gone, she is sleeping better, very few stomach aches, and she is MUCH more pleasant to be around - Sadly gluten free didn't stop her RA from flaring and she still has the butterfly rash
Laura aka tenXmom
AI Hep - AI Pancreatis - Lupus - RA - Reynaud's - Fibro - AIED - TMJ - Sjogren's

Veteran Member

Date Joined Apr 2006
Total Posts : 1344
   Posted 2/19/2014 6:51 PM (GMT -6)   
If you have lactose intolerance (something driven by our genes) then a dairy free diet might make you feel better. Same for those with gluten intolerance or celiac disease...eliminate gluten and you will feel better. None of this has been shown to be related to lupus although some will argue about it like they do religion and politics.

Researchers I know at Northwestern told me that some lupus patients reported that a general anti inflammatory diet helped them but without broad, controlled studies could not say if it actually helped lupus or just corrected a poor diet.

Probably none of this can hurt and if you try something that makes you feel better that is a good diet for you. I do not have gluten sensitivity or lactose intolerance but try to eat a generally balanced diet and feel good. There is much disinformation about diet and most of it comes from someone trying to sell something. I would look at advice from recognized experts like Dr Weil before going off the diet deep end or see a nutritionist if you feel you really have a diet related problem.

Just my opinion.

MCTD (SLE Lupus, polymyositis, scleroderma). Diagnosed 2005. Kidney, liver, GI tract, dysphagia, raynauds, barretts esophagus, quadriplegic in 2005. Recovered and now active in downhill skiing, golf, hiking. Meds: amlodipine, benezapril, omeprazole, potassium, folic acid, vitamins, maxide.

Remain Optimistic and you can overcome.

New Member

Date Joined Feb 2014
Total Posts : 3
   Posted 2/22/2014 2:13 PM (GMT -6)   
Stay well hydrated with water and fresh fruits and veggies. Please avoid all the bad fats. If you can get some aloe vera juice (sold at walmart)and drink it daily- start slow. Start with these tips and do them consistently. You should start feeling better. Educate yourself on anti-inflammatory foods and avoid behaviors and foods that cause inflammation. It took me awhile, but once I learned how to work on inflammation, I started to feel better. Be careful what u put in your mouth. Remember, be consistent and try to RELAX and deep breath daily. Sending you healing thoughts and prayer. I hope this helps.
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