Legs constantly itchy and stingy

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New Member

Date Joined Feb 2014
Total Posts : 3
   Posted 2/15/2014 9:42 PM (GMT -6)   
I am between a lupus diagnosis, I guess. Had a child born 23 years ago with 3rd degree congenital heart block. Cardio dr then said I def had lupus. Testing has been 5 ANA positives and the symptoms are there. Sores in nose (all the way back to age 10) sores in mouth, sores in crevices of ears. Lots of joint pain, esp in hands. As I have gotten older I have to gradually get into the sun every year because I itch and get physically sick. Anyways the last 4 weeks I have noticed my legs itching and burning all the time. Night is worse. Stress level has been high so I knew that was a trigger. I have never taken any meds for lupus, but I was desperate other night and took prednisone. (We had some left after poison ivy attack) after 30mg I can already tell a difference. I am assuming this has been a "flare"?? Any suggestions on how deal with these issues without prednisone ?

Veteran Member

Date Joined May 2005
Total Posts : 7723
   Posted 2/15/2014 10:27 PM (GMT -6)   
I suggest that you meet with a rheumotologist and share all this information with him/her. It sounds like you might benefit from plaquenil, the first med a rheumy usually prescribes to slow down the progression of the disease (if s/he diagnosis you with lupus). You need 4 of 11 symptoms, check it out in the link below, to be diagnosed and to get proper treatment.

Best wishes,
Lynnwood, Lupus & Sjogren's Moderator, Dx: 2002
"Life is far too important to be taken seriously." - Oscar Wilde

Elite Member

Date Joined Jul 2009
Total Posts : 14475
   Posted 2/15/2014 10:33 PM (GMT -6)   
Welcome to hw.
I hope your doctor can get you fixed it up fine. Maybe you can do fine with a DMARD. It's a simple pill that slows down lupus so it doesn't go crazy on your body.
Lupus is basically like this: your germ fighters go nuts and attack healthy tissue in your body. It can go after anything inside your body.
Unless you have very mild lupus you will need at least the DMARD.

Since you're sun sensitive your really need some protective clothes. I get so sick if I am exposed to UV rays. I wear clothes made by coolibar.com and sungrubbies.com.
I wear a large hat, gloves, and sunglasses along with it.
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, OA, Depression, Allergies, and benign familia tremors

When life throws you lemons....
Pick them up and throw them right back at them! :))

New Member

Date Joined Feb 2014
Total Posts : 3
   Posted 2/15/2014 11:36 PM (GMT -6)   
Thanks so much!! I do plan on going back to a rheumy. I do believe that I need some meds to slow things down!! As of now the prednisone has been a life saver for the weekend. Thanks for the input!!

Regular Member

Date Joined Jan 2014
Total Posts : 360
   Posted 2/16/2014 9:35 AM (GMT -6)   
Also, have your gp check your urine for protein. I'm sure they likely would anyway but just to be sure. The sooner you see about that referral to a rheumy the better, wait times can be long depending on where you are. ;)
Lupus, livedo reticularis, Raynauds, cold urticaria, endometriosis, bursitis, arthritis, Sjorgens, anemia, leukocytosis, vasculitis, pleurisy, asthma and all that fun stuff!

Be who you are and say what you feel because those who mind don't matter and those who matter don't mind - Dr. Seuss

New Member

Date Joined Feb 2014
Total Posts : 3
   Posted 2/16/2014 10:32 AM (GMT -6)   
Yes thank you. I will add that to the list. I don't have the best reg dr. She is kinda way laid back and I kinda have to nudge her along. I work with some great des that can help me, but no rheumy at all. I live in east TN so I need to do some research on a good rheumy. Thanks.

Evanescent Eden
Regular Member

Date Joined Feb 2014
Total Posts : 132
   Posted 2/27/2014 12:52 AM (GMT -6)   
I am not diagnosed with lupus either (it has been "suggested" in the past that I MAY have it-- but no insurance as of now to know for certain), but I will tell you.. with some people on here, I relate to none of their symptoms... and then to others, it's as if I'm writing it myself! I relate very much to this thread, which is why I opened it as soon as I saw it!

My legs often itch, sting and tingle FIERCELY. Especially at night, oddly, when I'm TRYING to get comfortable enough to sleep confused. I don't know if it's RLS or something else? My massage therapist suggested diabetic foot cream to me, and it helps somewhat for a little bit.

Hope you find some answers soon!

Eden :-)
26 yr old F. DX: Fibromyalgia, IBS, GERD, Daily headache, Migraines, Severe allergies, Bladder diverticulum, Mild kidney damage, Recurrent infections, Sinusitis. Bipolar Disorder, Borderline Personality Disorder. In the past: Gestational Trophoblastic Disease. + Undiagnosed issues; searching for the answers.

"You can't be brave if you've only had wonderful things happen to you" -Mary Tyler Moore
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