Lupus: Stress, Anxiety, and Fatigue

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lupusaz
New Member


Date Joined Feb 2014
Total Posts : 2
   Posted 2/17/2014 6:03 PM (GMT -6)   
Hi All:

I've had lupus for about 8 years but am just recently starting to "own" it and realize it's a real thing that I need to learn to deal with for the long haul. I've tried quite a few Rx with not very much luck - I'm currently taking Cellcept but starting at a small dose to make sure my wbc doesn't go to low. My main issue that is pretty constant is stress and fatigue. I think one leads to the other and then it starts a cycle that's pretty hard to reverse. Any tips for dealing with stress reduction and fatigue? I also have a lot of anxiety - worried I'm getting sick, worried I can't get all the things done I need to, etc. Thinking about adding a anti-depressent to help with the stress, but I get anxious about that too... I already take xanax on a pretty regular basis - don't think it does anything.

Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7699
   Posted 2/18/2014 12:15 PM (GMT -6)   
Welcome to HW!

Xanax worked for me when I was having more issues with stress. Sometimes it's a subtle change, but it did help. Of course, that doesn't mean it will work for you. Other things include taking good care of yourself. Eating regularly and healthily, mild regular exercise, sleep. Meditation or other actions that calm and relax you. Hot bubble baths for me, along with cutting out stressful situations & relationships.

The fatigue is part of the Lupus -- meds such as Plaquenil and Prednisone help some. It's also true that some of our meds cause sleeplessness. Very often it turns out part of our fatgiue is not getting DEEP, RESTORATIVE sleep -- we often need a sleep aid to help. For some, over the counter meds help, but many have to use a prescription med. I have used what My rheumy recommended, Trazodone, with great results. I sleep soundly and feel much more rested.

Trazodone is actually an anti-depressant, so it helps with depression and stress as well as sleep!

Have you tried anything else of the "big three"? Imuran, Cellcept, MTX are the Lupus meds used most often. But there is no rhyme or reason why one works with one person & not the other person. Imuram did nothing for me, but 18 mths on Cellcept put me into a "remission" of sorts.

Hope that helps, look forward to hearing more from you!
Lynnwood, Lupus & Sjogren's Moderator, Dx: 2002
DIAGNOSING LUPUS & LUPUS RESOURCES
"Life is far too important to be taken seriously." - Oscar Wilde

lupusaz
New Member


Date Joined Feb 2014
Total Posts : 2
   Posted 2/25/2014 11:41 AM (GMT -6)   
I've tried plaquenil (stomach issues, didn't try it very long), imuran (made my wbc drop too low), and I'm now on Cellcept - only for a couple of months so far. I've been on prednisone since October (last flare up) and am currently taking 20mg - increased from 10 mg as of this morning since the fatigue was becoming such a big issue. I'm hopeful that the cellcept does what it's supposed to. Thinking about adding Benlysta...

Also, trying Xoloft/Zoloft (sp?) for the stress. It seems any little amount of stress these days, sends me into a flare.

Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7699
   Posted 2/25/2014 12:07 PM (GMT -6)   
Plaquenil is really the only thing that is supposed to help keep lupus in control *before* symptoms get bad. It is well known for causing upset stomach, particularly in the first few days. Most people find if they can stick it out for 2 weeks the stomach issues go away.
Lynnwood, Lupus & Sjogren's Moderator, Dx: 2002
DIAGNOSING LUPUS & LUPUS RESOURCES
"Life is far too important to be taken seriously." - Oscar Wilde

GabbyChick
Regular Member


Date Joined Jan 2014
Total Posts : 27
   Posted 2/28/2014 5:29 PM (GMT -6)   
For me the fatigue crazy! I can sleep 16 hours and wake exhausted.

I think stress is our very worst enemy. It is my belief that stress the cause of flare. It could just be what I have observed with myself.

Meditate! This is learnt! We are all different, become a meditation expert you need. Exactly as you require. The more you practice meditation the better you will get at doing this. Learnt behaviour. What ever it takes to be relaxed, even medication.

I stay away from "spiritual and guided" meditation. (Devout Non Dom Christian) I don't know what your beliefs are so... Careful to watch out practiced spiritual meditation. My belief it could be dangerous, it can open a window,you can't close. I feel very strongly about this. please be careful...

Prayer... This is wonderful and endlessly rewarding benefits in so many ways!!! Big Time Prayer meditation, awesome!!!

The more relaxed I am the overall healthier I can be.

God Bless you!
Melaine
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