Hi, everyone! I hate to seem like the whacko who bounces around from board to board here asking, "do you guys relate? what about
you? what about
you"... but... I was advised by Sherrine to try to check out the Lupus forum and see if I can get any direction. It would be very much appreciated!
I have no health insurance, which means I have no answers to certain symptoms and issues that have been plaguing me and ruining my quality of life for a couple of years now. I was DX with Fibromyalgia at age 19 (or 20?) and I am now 26 (I am on no meds)... but I'll tell you, I am progressively getting worse with symptoms that seem unrelated to the Fibro. I had doctors tell me about
a yr ago that I may very well have an autoimmune disease on top of the FMS. But my insurance ran out and I have never gotten answers. (I'm working on it).
I hate to be a bother, but PLEASE if anyone can relate to any of my issues, can you let me know? The reason why there is something else going on besides the Fibro at this point is because for one, my joint pain is progressively worsening (Fibro doesn't worsen), AND it is often symmetrical. My hands, wrists, fingers, knees, ankles,* feet, hips... everywhere hurts so much, I find myself crawling up and down the stairs at home instead of walking... and I also need a wheelchair at times just to "walk" around a grocery store. The pain is debilitating like no one could believe. Nothing OTC touches the pain. Nothing. I have such severely dry, painful, gritty- burning eyes, that it hurts terribly just to move them.
I have posted in the RA forum but haven't gotten a reply. I have somewhat suspected RA or lupus.
I suffer with a headache that hasn't gone away now in 5 or 6 yrs. Has anyone even heard of such a thing!? I know headaches are common in lupus, but what are your experiences with it??
I have lived with infections after infections. Sinus infections, yeast, ear infections, bronchitis, bladder, kidney (pyelonephritis), you name it, I've had it. Reoccuring infections, fevers, swollen glands that start to itch terribly.
Yrs ago when I had insurance, my doc found that I had protein and blood in my urine for a while. A urologist confirmed that I had some kidney damage, but he did not know why at that point. I am not able to follow-up w/ a specialist! But I can feel that my kidney issues still come and go. I get a lot of pain in them and my lower back for months at a time, my urine looks very frothy (like it did when there was protein) and I also have to get up 7-8 times a night just to pee.
My breathing has gotten worse, as has my GERD (burning). I have a lot of pain when I breathe in. I started getting a lot of splinter hemorrhages under my nails (reddish-brown lines). Is it true that people with Lupus can get these too? Due to heart issues and/or blood vessel damage/ inflammation?
Please, if anyone could let me know... I'm just curious. What were your FIRST symptoms of Lupus? Please... I've progressively gotten worse within the past 2 yrs or so. I'm only 26 but I feel like I am 76! My life feels over.
I have had only minor joint swelling I THINK. (Rings have trouble fitting-- don't come off at times-- and then they fit again within a few days or weeks). My hands get so stiff and painful, they resemble claws. I also don't think I've ever had a rash on my face. What are your experiences w/ the butterfly rash and/or other rashes? All I have ever had was some flushing I think-- a reddish hue across my face, that goes away. It happens in times of stress though and very serious bouts of pain. All I had was a doctor tell me that is was NOT rosacea.
I know no one can DX here- but I'd appreciate support, opinions, stories, advise, etc. Whatever you have for me would be much appreciated!
Can anyone relate to any of this?