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Melody5
Regular Member


Date Joined Dec 2013
Total Posts : 48
   Posted 2/26/2014 3:04 PM (GMT -6)   
Tingly scalp symptom, or new symptom? What does it mean? It happens almost everyday all day. My scalp is so sensitive...even to the bristles on my brush. The sensation of tingling runs all around my head and stops suddenly. What the heck is it?!?! I'm stumped and my Rheumy has not got back with me.
Melodie -
Dx: SLE Lupus 01/14 / Chronic Colitis 01/14
Meds: 4mg Medrol, 4 tabs 2.5mg Methotrexate, 1.25mg VIT D2, 0.5mg Klonopin, 50mg Topamax (Prenatal Vitamins & Probiotics)

Keep the faith!

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 2/26/2014 3:55 PM (GMT -6)   
I wonder if the nerves are irritated?
I get random itching on my scalp but nothing is there.
Joy
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, OA, Depression, Allergies, and benign familia tremors

When life throws you lemons....
Pick them up and throw them right back at them! :))

Evanescent Eden
Regular Member


Date Joined Feb 2014
Total Posts : 132
   Posted 2/26/2014 6:53 PM (GMT -6)   
I am NOT DX with lupus; (however, it's suspected that I have an autoimmune disease, but I have no insurance for full work-up yet), and I just saw the name of this post and HAD to open it...

I have had this symptom for quite some time now (other people in my life look at me like I'm crazy). A tingly scalp! It seems to occur either on the top or back of my head. And like couchtater, it gets very itchy at times (almost like a painful itch for me), but nothing is there.

Very odd. Must have to do with the nerves. I know a woman with MS who experiences this, too.

Could you please maybe let me know what your dr says about it? I am not fortunate enough to have a rheumy at the moment b/c I can't afford one. I'd like to know what the professionals say about a tingly scalp. Lol thanks!

Eden :-)

Melody5
Regular Member


Date Joined Dec 2013
Total Posts : 48
   Posted 2/26/2014 9:12 PM (GMT -6)   
Eden,

No problem!! I see my Rheumatologist March 17th and will definitely get some answers and come back and post a reply. I'm so sorry to hear about your lack of insurance. Hopefully I can get some answers for you. Keep the faith!

Evanescent Eden
Regular Member


Date Joined Feb 2014
Total Posts : 132
   Posted 2/26/2014 11:42 PM (GMT -6)   
Thank you!! :-)

It's one of the less disabling symptoms for me-- that is for sure! Lol! But I'm a curious cat always, and I'm just curious to see what a professional has to say about the *scalp tingles* confused Hehe

So keep us updated!

Hope you're feeling well,

Eden :-)
26 yr old F. DX: Fibromyalgia, IBS, GERD, Daily headache, Migraines, Severe allergies, Bladder diverticulum, Mild kidney damage, Recurrent infections, Sinusitis. Bipolar Disorder, Borderline Personality Disorder. In the past: Gestational Trophoblastic Disease. + Undiagnosed issues; searching for the answers.

"You can't be brave if you've only had wonderful things happen to you" -Mary Tyler Moore

GabbyChick
Regular Member


Date Joined Jan 2014
Total Posts : 27
   Posted 2/28/2014 4:56 PM (GMT -6)   
Hi Melody, (Beautiful name!)

I have "Lupus" and SKIN LUPUS. Apparently, one can have only skin lupus which is reported milder than actually Lupus.

I have had Rash on my arms and scalp. Arms have cleared up after about two years. My scalp can be sooooo itchy! have had this at least 15 years. Keep a chop stick handy for scratching! LOL!

Scalp seems to flare if I am nervous or hot! Then it is increased itch! Seriously, I have a chop stick.

Stay out of the sun, keep scalp clean and dry.

This past summer I even felt a "crawling sensation".... Parasite check found nothing. But it REALLY felt crawling it was so disgusting.

Have a skin bi-op.

Good Luck!
Melaine

Melody5
Regular Member


Date Joined Dec 2013
Total Posts : 48
   Posted 2/28/2014 6:20 PM (GMT -6)   
Weird thing. It doesn't itch. Just tingling and burning? Then the tips of my left fingers felt as if my nerves were flickering? It felt numb just for a second then pins and needle like feeling. Anyone know about that?
Melodie -
Dx: SLE Lupus 01/14 / Chronic Colitis 01/14
Meds: 4mg Medrol, 4 tabs 2.5mg Methotrexate, 1.25mg VIT D2, 0.5mg Klonopin, 50mg Topamax (Prenatal Vitamins & Probiotics)

Keep the faith!

Evanescent Eden
Regular Member


Date Joined Feb 2014
Total Posts : 132
   Posted 3/4/2014 9:02 PM (GMT -6)   
Mine is more of an itch at times, and then just tingles at other times. Gabby, my tingly scalp sensations can also feel like crawling parasites!!!!! Ick!!! But nothing was ever found in my head, of course, lol. Still get the weird crawling sensations every so often though. Really does feel like bugs! Think it's nerve issues though. I get "bug" sensations on my legs too, especially at night when I'm resting in bed, which seems like RLS (common in Fibromyalgia).

The pins and needles feelings along with the tingling scalp also sounds like nerve involvement. I don't think I have gotten any finger symptoms along with the tingling scalp though (haven't had tingling scalp lately though-- so I can't recall). I only tend to get pins and needles in my legs, feet, toes and on my face right underneath my eyes (I get some one-sided facial numbness).

Everyone is different though, of course. I am not DX with lupus right now, but i do seem to certainly have nerve issues. Either way, I relate to all of this.

Eden :-)
DX: Fibro, IBS, GERD, Daily headache, Migraine, Severe allergies, Bladder diverticulum, Mild kidney damage, Recurrent infections, Sinusitis. Bipolar Disorder, Borderline Personality, OCD / Dermatillomania. In the past: Gestational Trophoblastic Disease. + Undiagnosed issues; searching for the answers.

"You can't be brave if you've only had wonderful things happen to you" Mary Tyler Moore

byzantinechef
New Member


Date Joined Sep 2014
Total Posts : 2
   Posted 9/10/2014 11:13 PM (GMT -6)   
Morgellons?

byzantinechef
New Member


Date Joined Sep 2014
Total Posts : 2
   Posted 9/10/2014 11:28 PM (GMT -6)   
I consider myself extremely brave, however I've been brought to my knees with all of your symptoms and much worse. Self diagnosed with Morgellons. Nothing else make sense and I'm not imagining anything other than a life free of symptoms. I remember what that was like. My tingling (not unpleasant) scalp is my indicator of how healthy/compromised my immune system is at the time. Its uncanny how connected the two are. The hydrogen Peroxide rinse after a shower seems to halt the tingle until I have sugar in my system... Weird I know...

tumbleweedlvn
New Member


Date Joined Sep 2014
Total Posts : 5
   Posted 9/11/2014 4:21 AM (GMT -6)   
You know it could be nerves. The nerves that come out of your neck can cause those sensations in your scalp and cause migraines. I get this to, hurts to even brush my hair. It would explain the tingling/numbness in your hands to. I don't have insurance either so I understand how hard it can be to have all these problems and not be able to get answers.
Living my life for the rare "good day" but tired of living in pain.

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 9/11/2014 4:24 PM (GMT -6)   
You never know what lupus will play with in your body. It's all fair game for it.
Joy
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, OA, Depression, Allergies, and benign familia tremors

When life throws you lemons....
Pick them up and throw them right back at them! :))

Kay666
New Member


Date Joined Sep 2015
Total Posts : 1
   Posted 9/21/2015 4:08 PM (GMT -6)   
Hi
I am new to the webpage but the last couple of days at night I have had pins and needles in my scalp I have spoken to my mother and she has experienced the same thing and says it could be simply be because I have recently grew my hair out and its quite long now and my hair is heavy but I don't know, its quite scary and feels very strange plus I do suffer from anxiety I have also read that good posture can help anyone have any suggestions?

Justamouse
New Member


Date Joined Dec 2015
Total Posts : 2
   Posted 12/26/2015 3:14 PM (GMT -6)   
I used to get a tingly scalp, and sometimes when I brushed my hair, it would feel as if my scalp were on fire. It was awful. I would sometimes break out in hives, too on my scalp from the irritation from the brushing.

I've found a shampoo line called SURFACE that has reduced this reaction drastically. I can tell it's the shampoo, because even when I cheat with certain foods, my scalp still doesn't break out.

I hope that helps you!

cilly
Veteran Member


Date Joined Aug 2014
Total Posts : 1445
   Posted 12/28/2015 1:15 AM (GMT -6)   
Yes ,tingly scalp can be lupus symptom.Eczema shampoo can help.

It can be related to anxiety as well.

Eczema and dry skin can also aggravate it.

My burning itchy face also affects my scalp and ears so I know.

Take it easy and keep scalp moisturized.

It can be creepy feeling suddenly at times .

Hot scalp can be aggravating it.It frazzled nerves.
Cilly
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