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New Member

Date Joined Oct 2013
Total Posts : 2
   Posted 3/3/2014 1:54 AM (GMT -6)   
My thoughts and prayers to all experiencing the pain of loss and the pain of disease. In short, I am a 29 yof who began experiencing symptoms around 13. Currently, I have a DX of lupus syndrome (not drug induced) anxiety, major depression, asthma.... blah blah blah? Anything you want more info on PLEASE let me know.

Just this evening, I came to the conclusion that this is not something I can do without a fellow sufferer. I've now reached a point where I'm in tears, and you've probably all heard it all before.... but, please, PLEASE, if you think you may have any interest in my situation, message me, email me! I can't be alone too much longer...

I'm sorry if I sound desperate...


Post Edited By Moderator (Lynnwood) : 3/3/2014 10:59:47 AM (GMT-7)

Veteran Member

Date Joined Mar 2006
Total Posts : 2608
   Posted 3/3/2014 3:01 AM (GMT -6)   
Sorry you're feeling so alone, Amanda. Depression seems to go hand-in-hand with lupus, and I hope you're being treated for both your depression and anxiety. I think you'll find some very supportive people here, and you might check to see if there's a lupus support group in your town. My daughter is around your age and I can't imagine her suffering though this at her age. I'm glad to reached out.
SLE, fibro, renauds, restless leg?

New Member

Date Joined Mar 2014
Total Posts : 7
   Posted 3/3/2014 12:45 PM (GMT -6)   
I empathize with you Amanda and will keep you in my thoughts and prayers. I am waiting on my test results to come back this Friday. I too have been experiencing severe anxiety and some depression. But I am determined not to let this beat me. As someone else suggested please get treated for your anxiety and depression it will most likely help you cope better and make it through the rough times. I am being treated with medicine and just started seeing a psychiatrist who referred me to therapy which I will start on the 13th. I hope things get better for you and as I stated I will keep you in my thoughts and prayers.

Elite Member

Date Joined Jul 2009
Total Posts : 14475
   Posted 3/3/2014 6:35 PM (GMT -6)   
((((((((((Gentle hugs)))))))))))

This disease is frustrating and overwhelming at time. I see a therapist who helps me with coping skills and dealing with all this junk. I also go to a support group.

We are a good support group here.
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, OA, Depression, Allergies, and benign familia tremors

When life throws you lemons....
Pick them up and throw them right back at them! :))

Veteran Member

Date Joined Apr 2007
Total Posts : 1366
   Posted 3/7/2014 3:45 PM (GMT -6)   
Hi Amanda,

I am turning 29 in July so I am about your age as well, and have had a diagnosis of ulcerative colitis since I was 14 with symptoms of lupus since then that I always brushed off as "extra-intestinal manifestations" of my UC.. But with my recent SLE diagnosis, I wonder how long I've actually just had lupus too.

I totally understand your frustration. It seems like everyone around me is healthy and in their prime and I haven't been healthy in 15 years, and no one can really understand other than someone who is also suffering from a chronic illness. Even my husband gets frustrated because sometimes my fatigue is so debilitating, I can't keep myself awake at night after our daughter is in bed and we rarely get any alone time. It really takes a toll on every aspect of your life, and when you're dealing with depression and anxiety on top of it (which I do as well) it makes it that much harder to deal with.

Just know that you are NOT alone!! It may feel like it a lot, but I posted on here regularly when dealing with colitis (and probably lupus) flares and it has been such a big help. Its really nice to talk to people who understand.
Ulcerative Colitis dx 1999 - 2nd major flare started in 2003, tried every medication available, became resistant to prednisone, started Remicade in 2008... Went into remission finally but then developed drug induced Lupus in 2011. Went off Remicade in 2012, lupus symptoms went away and I've been unmedicated and still in remission since then, with occasional flare symptoms lately.

Regular Member

Date Joined Jan 2014
Total Posts : 360
   Posted 3/8/2014 7:09 AM (GMT -6)   
Hi Amanda and welcome, I've found some amazing people here. The support and information is abundant and it's good that you found this place. Try and take things it one minute, one hour, one day at a time. ;)
UCTD , livedo reticularis, Raynauds, cold urticaria, endometriosis, bursitis, arthritis, Sjorgens, anemia, leukocytosis, vasculitis, pleurisy, asthma and all that fun stuff!

Plaquenil, celebrex, advair, flovent, dovobet, vitamin A,B,C,D,E fghijklmnop ;)

Be who you are and say what you feel because those who mind don't matter and those who matter don't mind - Dr. Seuss
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