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Regular Member

Date Joined Feb 2011
Total Posts : 399
   Posted 3/5/2014 8:02 PM (GMT -6)   
Hi everyone,

I have been undergoing yet another Prednisone decrease and I am currently down to 7mg every other day. I am still taking Plaquenil 200 mg and Tylenol Arthritis for pain (stronger stuff when I need it). I noticed yesterday that I came down with nose sores in both nostrils. They appeared often early in my diagnosis and in full force prior to my diagnosis. I have not had any in almost 8 years. Could they be coming back because of the Prednisone withdrawal or is this just typical waxing and waning of the disease process? These sores are painful, inflamed and even form pustule-like heads. Sometimes they spontaneously burst. I have used Neosporin Ointment, which seems to help. Are there other treatments that people are doing to alleviate the discomfort from these sores? Any and all feedback much appreciated!!


Barbara Lee
Veteran Member

Date Joined Sep 2003
Total Posts : 2889
   Posted 3/5/2014 10:26 PM (GMT -6)   
Hey Laura:

Gentle (((hugs))) for you, those nasal sores are no fun at all. I'm sorry that you're getting them again. You certainly went a long time w/o any, that's amazing I think.

I'm gonna go out on a limb and guess the decrease in the prednisone is causing them. However, I'm not a Doctor so don't hold me to that. I do know that whenever, I try to cut my prednisone back I get either ulcers in my nose or mouth. It's usually my mouth 7 times out of 10.

As far as treating the sores, I too, use Neosporin and I will also try to rinse my nose with some saline or home made salt water to help dry it up. Sometimes, the ulcer is to sore to handle the salt water, but once it can handle it I give it a try.

If at all possible, maybe you could contact your PCM, as I know you're looking for a new Rheumy, and see if you could go back to taking the 7mg daily until the ulcers clear up.

I hope that the ulcers are the only problem you encounter and hopefully, your taper will start up again soon and you'll be able to continue to decrease the amount of prednisone you're taking. Please try to get plenty of rest and take care let us know how you're doing.

DX- RA, Lupus, Fibro, LGL Leukemia, Obstructive & Central Sleep Apnea, Pulmonary Hypertension, Bells Palsy, Gastroparsis, Blood Clots, Glaucoma, Chronic Pericarditis & Pleurisy, Severe Anemia. Way to many medications to list.

Elite Member

Date Joined Jul 2009
Total Posts : 14475
   Posted 3/5/2014 11:08 PM (GMT -6)   
I like to rub saline gel on my sores. I buy Ayr saline gel. It seems to speed up the healing process for me.
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, OA, Depression, Allergies, and benign familia tremors

When life throws you lemons....
Pick them up and throw them right back at them! :))

Regular Member

Date Joined Feb 2011
Total Posts : 399
   Posted 3/6/2014 7:51 PM (GMT -6)   
Hi Barbara and Joy,

Thanks for the support and the suggestions. They are a little better today. Not as painful, but still inflamed. I like the idea of saline. In the past I have done the "saline snorts" for nose stuffiness, but using it in some capacity for the sores makes sense. It's weird because in the past when I have had the sores I have had other Lupus symptoms as well. The fatigue is there, but not as profound as it can be. And very little arthralgia. Very curious....and to not have had them for so long. Hopefully, they will go away soon and that will be that!

Love, Laura

Regular Member

Date Joined Jan 2014
Total Posts : 360
   Posted 3/7/2014 6:09 AM (GMT -6)   
Oh they hurt don't they? I've been just using some peroxide and then putting vaseline on them once they get dry. The saline does sound like a sage idea.
Lupus or maybe not now :P , livedo reticularis, Raynauds, cold urticaria, endometriosis, bursitis, arthritis, Sjorgens, anemia, leukocytosis, vasculitis, pleurisy, asthma and all that fun stuff!

Be who you are and say what you feel because those who mind don't matter and those who matter don't mind - Dr. Seuss
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