Remission is just luck of the draw, like everything else about
Lupus! I have been med-free and fairly symptom-free for over 2 years. I consider my Lupus to be "quiet", it is only recently that some Drs use the word remission, it's a bleed-over of a cancer phrase that I don't really think is accurate for Lupus.
By that I mean sometimes I have a joint swelling, a fuzzy brain, overwhelming exhaustion, or night sweats. But that's one at a time every 2-3 weeks - down in the "noise" as far as I'm concerned. And it's NOT good enough to resume my former life. (Business owner, PhD student, Marathon Runner - none of which I do now. Focus/concentration/learning still less than par, couldn't work a 40-hr week.)
All I did was follow my Drs orders. Prednisone, Plaquenil, Xanax, Trazodone to start with - better sleep, less anxiety, control inflammation & Lupus advancement. Then of the regular 3 (Imuran, Cellcept, MTX) I took Imuran - nothing changed. Then Cellcept for about
18 months gave me my brain back. (And a few less-significant meds to treat other symptoms as they came & went.)
(At worst point I couldn't drive, had measurable cognitive dysfunction, couldn't follow a 20-min tv show, felt like battery acid being pouring into burning joints, all the fun stuff.)
Now, I get deep restorative sleep (Trazodone), eat regular balanced meals, get regular exercise, and have better spirits (Wellbutrin, which I took before Lupus). My focus is always on taking care of myself as best I can any given day. Marching orders include: protein for breakfast, if sun shining & >60 degrees then spend time in sun, minimum 10-minute walk whether I feel like it or not, that sort of thing.
There was no single magic bullet in anything I did. Just tried what the Drs suggested, and tried to take it easy and didn't panic about
the future - just did one day at a time. I think in many ways that's all any of us can do, ill or not. And I had a *very good Dr* right off the bat -- very very lucky in that area!
Lynnwood, Lupus & Sjogren's Moderator, Dx: 2002DIAGNOSING LUPUS & LUPUS RESOURCES
"Life is far too important to be taken seriously." - Oscar Wilde
Post Edited (Lynnwood) : 3/7/2014 1:59:26 PM (GMT-7)