New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

jdizzle
New Member


Date Joined Mar 2014
Total Posts : 2
   Posted 3/8/2014 9:35 PM (GMT -6)   
Hi - I came across this board while looking for some Lupus info.

I went yesterday to my GP about a rash on my face, and she took one look at it, and said I had to be tested for Lupus. I've actually been tested several times before, as part of investigation for recurrent pregnancy loss, but I've only had one "weak positive" result, (1:40, speckled) and it has been otherwise negative. Also, the rash is primarily on the right side of my face, it doesn't seem to be the typical "butterfly". Pic below.
VIEW IMAGE

I've had the rash for about ten weeks (I think), and it goes up and down, from bright red, to barely noticeable. It is slightly raised. It doesn't seem to be affected by food, products, etc but I'm not sure about light/sun/heat, because I hadn't thought about that before the doctor asked me.

I've also been feeling pretty awful. Ridiculously tired - I can function at work, but I need ten or more hours sleep each night. I have to drag myself about, and I am too stuffed to do any exercise. I've been having pain in my knees, elbows, and fingers as well. I asked my doctor if she could refer me to specialist of some type - perhaps in chronic fatigue. The whole time, I'd been thinking the rash unrelated to the way I felt, but now I can see it is possibly related.

Anyway, I guess I will have the blood test tomorrow, but I don't know if I am being a total hypochondriac now or not. I would love to have an answer, especially one that might help explain the miscarriages I've had. Would appreciate any advice.

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 3/8/2014 11:42 PM (GMT -6)   
Welcome to HW.
I hope you don't have this bothersome disease.

I don't have the typical butterfly rash either but I met 6 out the 11 indicators for lupus. You only need to met 4 to be diagnosed. Positive ANA is one of 11 indicators. Have you read the indicators listed in the first thread?

My niece has a young friend with lupus and she has had a hard time carrying to full term. After many miscarriages she finally had a little girl.
Joy
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, OA, Depression, Allergies, and benign familia tremors

When life throws you lemons....
Pick them up and throw them right back at them! :))

jdizzle
New Member


Date Joined Mar 2014
Total Posts : 2
   Posted 3/10/2014 1:49 AM (GMT -6)   
Thanks for your message Joy :)

Yes, I've read the diagnostic criteria. I'm not sure if I meet them or not, really - there are a few I'm unsure about. Eg: I've had mouth and nose ulcers in the past, but not currently. I'm going to take the blood test and perhaps see if I can see a rheumatologist, regardless of the results.

I'm glad your niece's friend had a successful pregnancy. I've not had any luck yet, and am in the middle of investigations with a reproductive immunologist, as they have (so far) been unable to find a cause.

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 3/10/2014 2:07 AM (GMT -6)   
I don't maintain mouth & nose sores. Only during bad flares do they pop up.
Joy
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, OA, Depression, Allergies, and benign familia tremors

When life throws you lemons....
Pick them up and throw them right back at them! :))
New Topic Post Reply Printable Version
Forum Information
Currently it is Monday, September 24, 2018 10:09 AM (GMT -6)
There are a total of 3,006,049 posts in 329,295 threads.
View Active Threads


Who's Online
This forum has 161820 registered members. Please welcome our newest member, Dogsitter2.
312 Guest(s), 8 Registered Member(s) are currently online.  Details
clocknut, Kent M., PeterDisAbelard., BBN!!, Saipan Paradise, ltc1225, k07, Leah2013