IV IG update and Benlysta

Good luck on the results.

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Joy
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, OA, Depression, Allergies, and benign familia tremors

When life throws you lemons....
Pick them up and throw them right back at them! :))

Hi Donna,

I took Benlysta for close to 7 months and it seemed to work in the beginning, but then it only held me for two weeks, sometimes three before my next treatment. I was off Prednisone at the time and the week or two before the next treatment were unbearable. I do hope you have better luck than I did. Let me know what happens. And I am so glad the pneumonia is behind you.

Laura

Hiya Donna :) I've been fighting with pneumonia too. It's becoming a trend for me every year at this time Feb/March. I'm glad you are on the mend from it, it's not fun.

It's so nice to get out and have a date with the hubby, I don't know about you but I tend to appreciate it even more now. All things really. That is one thing I have gained from being sick most of the time is that I'm ever more grateful for things now. :)

A lot of these autoimmune meds take a while it seems and kick us down before they pick us up. I'm finding that with plaquenil even though it's supposed to be one of the "kinder, gentler" medications. My stomach is very angry with me and plaquenil! But, I'm quite sure it beats being stuck in bed for two weeks at a time as you are. I feel for you and admire your decision to tough it out. I'm crossing my fingers and staying positive that it won't take long for you to see the benefits and move beyond the initial reaction your body is having to it.

I have to wonder with our immune systems being on overdrive if it doesn't have something to do with it rejecting or having adverse reactions to treatments at first. (Being home sick gives me time to think about things like this lol, I'm a "thinker").

I wonder if the reason I'm throwing up etc is that my liver wants nothing of this plaquenil and is trying to flush it out. That's how the liver works I think and it makes sense. And on the bright side, my liver IS working. Just not to my liking at the moment. ;)

I'm not familiar with how Benylista works (I will later read up on it) but could your little autoimmune soldiers be saying "what is this evil foreign substance?!" "be gone"! "attack!" ? And maybe that is why it is kicking your butt at the moment. If that's the case I do hope and pray along with you that your "soldiers" withdraw soon and let the medication help you.

Gentle hugs,
Joie

I would absolutely be interested in hearing about it when you're up to it, thanks Donna. :)

I'm happy to report that I'm feeling not too shabby today. I hope you're doing alright. Hang in there! I will be sending all the positivity I can round up for you on Friday when you get your next infusion. Fingers, toes and eyes crossed it won't be as bad as the last one.

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UCTD , livedo reticularis, Raynauds, cold urticaria, endometriosis, bursitis, arthritis, Sjorgens, anemia, leukocytosis, vasculitis, pleurisy, asthma and all that fun stuff!

Plaquenil, celebrex, advair, flovent, dovobet, vitamin A,B,C,D,E fghijklmnop ;)

Be who you are and say what you feel because those who mind don't matter and those who matter don't mind - Dr. Seuss