Blood test results - positive ANA

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Bpancakes
New Member


Date Joined Mar 2014
Total Posts : 2
   Posted 3/15/2014 8:11 PM (GMT -6)   
The last several years I have had symptoms on and off and the doctors just assumed I had some type of autoimmune disorder but nothing ever showed up in my blood test (although I have not been tested in 5 years). I just had the blood test again since after my most recent pregnancy I started showing the exact same symptoms as I did about 5 years ago - skin irritation/inflamation/rash under my left eye, joint pain with swelling in my right foot and pain in my right hand.

I got the blood test back and I had a positive ANA with RNP antibodies of 8 (normal range < 0-0.9) and high SJOGREN'S ANTI-SS-A with 2.9 (normal 0-0.9). I can't get in to the doctor for a couple of weeks and cannot stop worrying. I had x-rays done in my hand/foot and there were no signs of arthritis. They said I had hammer toe in 2 of my toes. My biggest complaint now is numbness in my right foot/4th toe specifically. It is almost constant now. I just can't wait to get into the doctor, even though I know it will probably be a while before I have any answers.

I have done so much googling I am going to make myself sick with worry! All other blood test came back within normal limits (CBC, TSH, RA, C-reactive, CCP, Sed Rate). There are also a bunch of % numbers at the bottom of my ANA results but I am not sure what those mean - can anybody provide any insight into those percentages?

Anybody have have blood tests with similar high numbers? What was the diagnosis? Any help is appreciated.

Lynnwood
Veteran Member


Date Joined May 2005
Total Posts : 7723
   Posted 3/15/2014 9:18 PM (GMT -6)   
Please try not to worry. Stress is only going to compound your symptoms and make things worse.

My guess is that you do have some sort of autoimmune disease, so you should go ahead and make an appointment with the best rhuemotologist you can find. These are the Drs trained specifically in autoimmune diseases - they are really the best to make a final diagnosis.

It really isn't worthwhile to try & decide which auto-immune disease it might be. Any of them can be casual, any of them can be life-threatening, and most of the time they are somewhere in between. Specific symptoms and how your symptoms react to certain meds will help the rheumy make a diagnosis -- but sometimes we can go years being treated & our symptoms put to rest without any clear diagnosis. These things are *NOT* simply diagnosed by blood or other lab tests as some non-AI Drs would have you believe.

We've all had high numbers, excessive worry before diagnosis, etc. Just take one day at a time, stay away from alarming material - try to get deep restorative sleep, eat well and at regular times, get some light exercise each day. (5 minute walk to the mailbox counts).

Hope that helps some
Lynnwood, Lupus & Sjogren's Moderator, Dx: 2002
DIAGNOSING LUPUS & LUPUS RESOURCES
"Life is far too important to be taken seriously." - Oscar Wilde

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 3/15/2014 9:24 PM (GMT -6)   
Try not to let Dr. Google scare you too much. Many things you read are worse case senerios. You'll find out the answer soon enough from the doctor.

Meanwhile try not to fret until you get your answer. Try to rest and distract yourself until you get to speak to the doctor.
Joy
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, OA, Depression, Allergies, and benign familia tremors

When life throws you lemons....
Pick them up and throw them right back at them! :))

Bpancakes
New Member


Date Joined Mar 2014
Total Posts : 2
   Posted 3/16/2014 7:55 AM (GMT -6)   
Thank you for the responses. I am definitely a worrier by nature, which doesn't help anything. I do have an appointment with the rhuematologist in a couple of weeks. I also have two little ones, of which one is still a baby and doesn't appreciate sleeping at night, leaving me completely exhausted. I am lucky if I can get 3 consecutive hours of sleep or a total of 5 hours of sleep.

I am just glad I switched primary doctors this year and she truly listened to me and ordered the blood work to see if there was anything else going on and had a good plan for care/monitoring. My last doctor kind of brushed it off since I just had a lot of random symptoms and nothing that really stood out.

I just always assumed it was RA that I had since my mom has that and the most recent blood work just kind of threw that off for me since the RA factor came back negative but some of the others came back positive. I know RA can still be what is causing me problems but I wasn't expecting the possibility of some of the other conditions. I just have to learn to live with the fact that the diagnosis may be forever changing.

acquiesce
Regular Member


Date Joined Jan 2014
Total Posts : 360
   Posted 3/16/2014 10:50 AM (GMT -6)   
Hi Bpancakes and welcome :)

Do you nap during the day? If you are able to I would definitely take advantage of that. The dishes can wait, so can the laundry. A well rested mommy is much more important and a better mommy by far!

Worrying, as much as it comes so easily to some of us, is only going to make you feel worse as Lynnwood has said. Try to take a deep breath when these thoughts overwhelm you.

The way I rationalized during my most worrisome times during awaiting diagnosis was to remind myself that the worse things are the clearer and easier they are to diagnose (most times). It is early days, things are just starting to show up in bloodwork. That generally means no significant damage has been done or you would be in the hospital with dialysis, having your thyroid removed etc. And many people with autoimmune disease never have organ involvement. The fact that most of your results came back ok means that your body is doing ok despite the challenges that you may be experiencing due to an autoimmune disease making you feel like a sack of crap. Just remember to keep trying to get some answers and persevere. Don't let doctors brush you off.

I hope that made sense and didn't come across wrong.

I'm not trying to minimize what you are going through. I went through the exact same thing and worried myself sick. It took a while but my rheumy has somewhat put two and two together and I am getting treatment. Treatment and prevention is what is important at this stage for me. A definitive label, not so much in my experience.

Hang in there and take good care of yourself. Keep coming back with your fears, it's not a bother. A good many of us have been on the same roller coaster ride.

Hugs,
Joie
UCTD , livedo reticularis, Raynauds, cold urticaria, endometriosis, bursitis, arthritis, Sjorgens, anemia, leukocytosis, vasculitis, pleurisy, asthma and all that fun stuff!

Plaquenil, celebrex, advair, flovent, dovobet, vitamin A,B,C,D,E fghijklmnop ;)

Be who you are and say what you feel because those who mind don't matter and those who matter don't mind - Dr. Seuss
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