Systemic Sclerosis

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Dri
New Member


Date Joined Mar 2014
Total Posts : 5
   Posted 3/17/2014 3:52 PM (GMT -6)   
It seems that my diagnosis is penidng to Systemic Sclerosis not Lupus. My blood test come out HIGH on Homogenous Pattern and Nucleolar Pattern and Antiscleroderma-70 antibodies > than 8. All my other tests came out normal.  I am having  swollen hands, the Raynand Syndrome. I wonder if anyone has an experience or insights that based on these test results is there a chance to have any false positive at all? And does anyone know or can share something about the chances of when this is found in the early stages that  it can be stopped.  Thank you
 

PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2608
   Posted 3/17/2014 8:00 PM (GMT -6)   
Systemic sclerosis is a form of scleroderma. There is information on Scleroderma.org or you can google scleroderma and look for the nih (national institute of health) site.

It's an autoimmune disease like lupus but manifests differently. As with lupus, scleroderma can affect only the skin or it can potentially affect other organs. Systemic means that it can be spread throughout the body. It's treated with some of the same meds as lupus.

Don't let all the information scare you. I have systemic lupus (SLE) but am in remission, so just because lupus or scleroderma can be very serious, in many cases they very manageable. Educate yourself by reading, but only your doctor can answer specific questions about your situation.

A scleroderma forum will connect you with other people who will be more knowledgeable about it than most of us here, and you may find a link to one on Scleroderma.org.

That said, hang around here if you're able to get the support you want and need. Everyone is welcome here!
SLE, fibro, renauds, restless leg?
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