Lichen Sclerosis,

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Regular Member

Date Joined Feb 2008
Total Posts : 42
   Posted 3/20/2014 5:45 PM (GMT -6)   
I just went to the urologist thinking I had bladder and urethra issues only to learn that they are caused by yet another autoimmune disease, lichen sclerosis, which causes a breakdown and fusing of vulvar and vaginal tissue. I know you guys may be the only ones who understand how depressing it is to add yet another symptom to our already long lists. I'm weary of dealing with all this. I want to crawl into a fetal position and have a good cry. I will start on Clobetasol cream (for the lichen) and Estrace (to rebuild the skin down there). I go back in 6 weeks to see if it works.

DX: Mixed Connective Tissue Disease (lupus, RA, polymyocitis, scleroderma) Jan 08
Psoriasis (scalp,legs, arms), Anemia
Meds: Prednisone 2 mg, Plaquenil 400 mg, Wellbutrin XL 300 mg,Quinacrine, Clobetasol foam, Reclast, Vivelle Dot (estradiol), Calcium/D 1200 mg, 81 mg aspirin, ibuprofen,ramamine for benign positional vertigo, iron, Magic Mouthwash

Veteran Member

Date Joined May 2005
Total Posts : 7723
   Posted 3/20/2014 6:51 PM (GMT -6)   
Wow. Learn something new even after having Lupus & being on this forum for years & years. I sure hope the treatment solves your issues rapidly.
Lynnwood, Lupus & Sjogren's Moderator, Dx: 2002
"Life is far too important to be taken seriously." - Oscar Wilde

Elite Member

Date Joined Jul 2009
Total Posts : 14475
   Posted 3/20/2014 7:32 PM (GMT -6)   
I read about that recently. Sorry you've got to deal with that headache.
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, OA, Depression, Allergies, and benign familia tremors

When life throws you lemons....
Pick them up and throw them right back at them! :))

Veteran Member

Date Joined Mar 2006
Total Posts : 2608
   Posted 3/21/2014 12:58 AM (GMT -6)   
I understand! It seems like autoimmune problems often keep hitting us on the head over and over, and you sure have your share! I hope the treatments help.
SLE, fibro, renauds, restless leg?
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