Yes, a second opinion seems to be in order! No reason to feel bad about
it -- if you thought your car tire was bad and a mechanic said it was fine, but you still had nagging doubts, would you feel guilty checking with someone else?
When you see a 2ond Dr, I'd just give them my symptoms and test results -- don't share a lot about
what the Dr already said or about
what you think it might be. The goal is to let the Dr figure it out without adding any bias to the info.
What you want is someone to address the symptoms -- it doesn't matter so much what the disease it. There are many auto-immune disorders with overlapping symptoms, so while you may have Lupus and/or Sjogren's, it is also possible that you don't have either! Let the rheumy do the work, don't limit their thought process.
Meanwhile, Lupus is diagnosed by having 4 or more of the 11 symptoms (see diagnosing lupus link below). Sjogren's is usually diagnosed by either a lip biopsy or an eye wetness test (sorry, forgot it's name). But if you don't have dry mucus membrane issues I wouldn't worry too much about
it. (Typically dry eyes & mouth, or maybe ears & nose, maybe dry vaginal tissues.)
Hang in there! My overwhelming fatigue was first addressed with plaquenil (slows Lupus progression), prednisone (controls inflammation), and a sleeping aid. Sometimes we need a sleep study - some of these illnesses the fatgiue is associated with not getting deep restorative sleep, which we don't even know we are missing.
Seek that 2ond opinion, let us know how it goes. Keep searching until something is done about
Lynnwood, Lupus & Sjogren's Moderator, Dx: 2002DIAGNOSING LUPUS & LUPUS RESOURCES
"Life is far too important to be taken seriously." - Oscar Wilde