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ghlsd2224
New Member


Date Joined Mar 2014
Total Posts : 7
   Posted 3/31/2014 3:23 PM (GMT -6)   
34 year old female, extreme fatigue/low energy; feeling very cold, purple finger nails and toe nails; achy stiff joints; hair loss; dry eyes for several years. Primary doctor ran blood tests, came back positive ANA 1:160 homogeneous, scleroderma negative, RA negative, ESR negative, CRP negatives Primary doc diagnosed Raynaud's and referred me to a rheumatologist for further work up for lupus. At rheumatologist appt 2 weeks later she said not ready to diagnose anything yet but she did run more blood tests, came back ANA 1:320 homogenous, ANA panel negative, border-line low C4.

Update: Today my whole body is so stiff and achy (hands, wrists, shoulders, knees, ankles and toes) it is hard to get off the couch. Exhausted despite a good sleep last night. Red bumps all over my chest and abdomen for the past 3 days, big red circles (white in the middle) all over my back yesterday. Not sure what to do.

Post Edited (JMMJ2224) : 4/5/2014 2:36:36 PM (GMT-6)


Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7720
   Posted 3/31/2014 4:08 PM (GMT -6)   
Sounds like the rheumy is taking the appropriate steps.

Lupus is diagnosed by having 4 of 11 symptoms www.lupus.org, a positive ANA is just one of them. Positive ANA means you should be checked for several auto-immune diseases, not that you have Lupus.
Lynnwood, Lupus & Sjogren's Moderator, Dx: 2002
DIAGNOSING LUPUS & LUPUS RESOURCES
"Life is far too important to be taken seriously." - Oscar Wilde

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 3/31/2014 5:23 PM (GMT -6)   
Give it a little more time. It takes time to be sure.
Joy
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, OA, Depression, Allergies, and benign familia tremors

When life throws you lemons....
Pick them up and throw them right back at them! :))
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