HELP Im going to loose it. Want to rip off my skin

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tashalynn97
Regular Member


Date Joined Apr 2014
Total Posts : 27
   Posted 4/11/2014 1:59 AM (GMT -6)   
My hives are in full flare mode today thanks to lupus. my body burns and itches I just want to take a knife and remove my skin some days just so i dont feel this anymore. Do they sell skin and new bodys at the stores? i could use one right now. Really wish they would figure out how to make this virus/infection i caught go away so i could go back to somewhat normal. darn YOU LUPUS!!!

acquiesce
Regular Member


Date Joined Jan 2014
Total Posts : 360
   Posted 4/11/2014 4:36 AM (GMT -6)   
Ohhh Tashalynn97 I feel for you!!! I've been there.

I know you've tried oatmeal baths, you could also try putting the oatmeal in an old towel and squeeze it on to your skin and leave it on or calamine lotion. Put a thick moisturizer over it or a light layer of vaseline and just let it all sink in, leave it on.

Cold towels I have heard help as well (I can't use that, I have an allergy to cold). Also those topical cold/heat rubs like Vicks vapo rub but not on broken skin (which can be impossible, I know!). Or any type of eucalyptus, menthol oil but only a few drops and mix it with some olive or coconut oil.

Coconut oil on it's own is my favourite, very healing and soothing at the same time and completely natural.

Zinc oxide or baby diaper rash cream is good too but very thick. I would put some oil or lotion on first and then a thin layer of zinc oxide.It's uber important to moisturize.

Test any new product before you use it on the inside of your arm and wait 24 hrs first. Also be very careful about any sign of infection of your hives. Instead of itching with your fingernails, use a soft fabric and rub them gently so you won't break the skin as much when the itch MUST be scratched!! As I know, sometimes it simply must!! ;)

Why haven't you been put on antibiotics? You poor thing! :(
UCTD , livedo reticularis, Raynauds, cold urticaria, endometriosis, bursitis, arthritis, Sjorgens, anemia, leukocytosis, vasculitis, pleurisy, asthma and all that fun stuff!

Plaquenil, celebrex, advair, flovent, dovobet, vitamin A,B,C,D,E fghijklmnop ;)

Be who you are and say what you feel because those who mind don't matter and those who matter don't mind - Dr. Seuss

acquiesce
Regular Member


Date Joined Jan 2014
Total Posts : 360
   Posted 4/11/2014 4:47 AM (GMT -6)   
Oh you could also try taking some vitamin C and D but check with your doc first.

When I have had bad hive flare ups acupuncture has helped me too, but it's expensive. Also you have to be ok with getting a bunch of needles stuck in ya lol. I actually hate needles but I go back every time I start getting weird ailments that modern medicine won't fix. It's my "go to" fixer upper and it really works for me. I don't even care if it's all in my head that it works because regardless, for me, it works!!!

How is your breathing? Is it possible you may have developed asthma? That for me also caused hives.
UCTD , livedo reticularis, Raynauds, cold urticaria, endometriosis, bursitis, arthritis, Sjorgens, anemia, leukocytosis, vasculitis, pleurisy, asthma and all that fun stuff!

Plaquenil, celebrex, advair, flovent, dovobet, vitamin A,B,C,D,E fghijklmnop ;)

Be who you are and say what you feel because those who mind don't matter and those who matter don't mind - Dr. Seuss

tashalynn97
Regular Member


Date Joined Apr 2014
Total Posts : 27
   Posted 4/11/2014 6:33 AM (GMT -6)   
Thanks for the tips I'll try them. As far as the breathing., today it's not too bad. However I already had asthma, lol but it's never given me hives before. I didn't know that one hmmm

jan1952
Regular Member


Date Joined Mar 2014
Total Posts : 357
   Posted 4/11/2014 3:06 PM (GMT -6)   
Thinking of you and hoping that darn persistent aggravation STOPS! I don't have soothing advice, but I sure wouldn't want you experimenting with knives... ;)
Jan
"If there are no dogs in Heaven, then when I die I want to go where they went."
Will Rogers

tashalynn97
Regular Member


Date Joined Apr 2014
Total Posts : 27
   Posted 4/11/2014 4:08 PM (GMT -6)   
Jan,
Thanks, ill keep you in mind and I will hide the knifes lol they gave me a shot of prednisone today cause they where so bad that I couldn't stop scratching. I thought I was going die. Started about 7:30am and would not stop. I guess I spoke too soon when I said they weren't too bad haha that will teach me
Natalie

Lupus,fibromyalgia,osteoarthritis,IBD, Gerd,asthma, epilepsy and past history of ovarian cancer

jan1952
Regular Member


Date Joined Mar 2014
Total Posts : 357
   Posted 4/11/2014 9:29 PM (GMT -6)   
SOOO, did you get some relief from the injection? Enough to help you sleep like a baby tonight? Sure hope so!
Btw, if YOU hide the knives, are they really hidden? In my brain fog, they probably WOULD be hidden. . . . :)
Take care, Natalie--

Jan
"If there are no dogs in Heaven, then when I die I want to go where they went."
Will Rogers

tashalynn97
Regular Member


Date Joined Apr 2014
Total Posts : 27
   Posted 4/12/2014 8:11 AM (GMT -6)   
Ya I get those brain fogs too so ya they probably would be. Lol. I did get some relief to be able to sleep but today they are back :( there big and painful but so far not itching knock on wood.
Natalie

Lupus,fibromyalgia,osteoarthritis,IBD, Gerd,asthma, epilepsy and past history of ovarian cancer

tashalynn97
Regular Member


Date Joined Apr 2014
Total Posts : 27
   Posted 4/12/2014 8:14 AM (GMT -6)   
They took another biopsy hopefully this one will give some answers. They said it can also be from sun exposure. I told them I was wearing pant (most hives are in my legs) they said it doesn't have to have gotten sun where they are. If it is sun any exposure can trigger them any place on my body :(
Natalie

Lupus,fibromyalgia,osteoarthritis,IBD, Gerd,asthma, epilepsy and past history of ovarian cancer

jan1952
Regular Member


Date Joined Mar 2014
Total Posts : 357
   Posted 4/13/2014 9:34 PM (GMT -6)   
How frustrating!!! When do you get the biopsy results?
I hope the itchiness has stayed away--for good.

Let us know the latest, Natalie--
Jan
"If there are no dogs in Heaven, then when I die I want to go where they went."
Will Rogers

tashalynn97
Regular Member


Date Joined Apr 2014
Total Posts : 27
   Posted 4/14/2014 9:46 AM (GMT -6)   
Nope it's here again. Biopsy doesn't come back for a week. At least my new puppy is helping me take my mind off it. He's 6 months old
Natalie

Lupus,fibromyalgia,osteoarthritis,IBD, Gerd,asthma, epilepsy and past history of ovarian cancer

jan1952
Regular Member


Date Joined Mar 2014
Total Posts : 357
   Posted 4/14/2014 11:35 AM (GMT -6)   
AARGH about the hives! But YEA about your puppy! I'm a true believer in critters being miracle workers--especially pooches.

I sure do hope you find some type of remedy to ease the itching before you receive your biopsy results. Have you tried plain ol' fresh aloe vera? Of course, that would be way too simple, huh?

Jan
"If there are no dogs in Heaven, then when I die I want to go where they went."
Will Rogers

tashalynn97
Regular Member


Date Joined Apr 2014
Total Posts : 27
   Posted 4/14/2014 12:59 PM (GMT -6)   
Yup! I wish it was that easy, lol
Natalie

Lupus,fibromyalgia,osteoarthritis,IBD, Gerd,asthma, epilepsy and past history of ovarian cancer

jan1952
Regular Member


Date Joined Mar 2014
Total Posts : 357
   Posted 4/15/2014 4:23 PM (GMT -6)   
Natalie, I was looking some things up to see what in the heck might be wrong with my toes, and came across this website. When I saw that one of the symptoms is hives, I wanted to share the site with you to see what you think.

http://m.patientsguide.com/conditions/cryoglobulinemia/

And here's an interesting site about the same condition, tying one of the lab results to some autoimmune diseases, including lupus:

http://dermnetnz.mobify.me/vascular/cryoglobulinaemia.html


Jan
"If there are no dogs in Heaven, then when I die I want to go where they went."
Will Rogers

tashalynn97
Regular Member


Date Joined Apr 2014
Total Posts : 27
   Posted 4/15/2014 4:36 PM (GMT -6)   
Wow a lot of that sounds acurate and it says lupus can cause it. I will see if the ever ran my blood for this thanks. Mine also flare in high heat too though.

jan1952
Regular Member


Date Joined Mar 2014
Total Posts : 357
   Posted 4/15/2014 4:54 PM (GMT -6)   
Anything to get some relief. Maybe you're an exception when it comes to flaring in high heat as well. Seems like there are a number of exceptions that can accompany test results!
"If there are no dogs in Heaven, then when I die I want to go where they went."
Will Rogers

tashalynn97
Regular Member


Date Joined Apr 2014
Total Posts : 27
   Posted 4/15/2014 9:57 PM (GMT -6)   
I just can't figure out why it got better with antibiotics
Natalie

Lupus,fibromyalgia,osteoarthritis,IBD, Gerd,asthma, epilepsy and past history of ovarian cancer

acquiesce
Regular Member


Date Joined Jan 2014
Total Posts : 360
   Posted 4/16/2014 5:50 AM (GMT -6)   
Heat and sun can also irritate hives that already exist. Add in a sensitivity to the sun and you're in the same boat as me.

This happens to me and I have cold agglutinins which means that my body creates an excess of the antibodies called cold agglutinins which makes the blood stick together or thicker (or something like that) when exposed to cold temperatures. This causes me to have raynaud's, severe life threatening cold uticaria and livedo reticularis AND sun sensitivity caused by my possible lupus/uctd.

I'm not sure why but cold agglutins are reactive to pneumonia and such things. When I get pneumonia or infections I see a spike in my reactions to cold and end up with hives as well that are seemingly with no external trigger.

Antibiotics treat the pneumonia/throat/ear infection etc which in turn calms down everything else. This could be why antibiotics make it better for you possibly.

Is it spring where you are? Allergies etc will also put a strain on the body just as asthma does. It is usually a collective and cumulative process with the right ingredients to make your body break out. Stress will effect it as well. Hard to not be stressed when your skin is on fire!

In my experience, just as it takes a recipe (an accumulation of triggers) to make me sick, it takes a recipe to get me better. Rest, excess liquids, antibiotics, antihistimine, stress relief, healthy diet, asthma control, good skin care and pampering etc.

I cannot emphasize enough the toll that stress itself takes on our bodies. Your first order of defense is to take time to combat the stress you are feeling in my opinion. It's a tall order, this I know, but it's the quickest way to see results!!

jan1952
Regular Member


Date Joined Mar 2014
Total Posts : 357
   Posted 4/20/2014 12:53 PM (GMT -6)   
Natalie, sure do hope you're better today. Your results should be back soon, right?

I found a site about herbal remedies for rashes--thought you might be interested.

http://www.encyclopedia.com/topic/Rashes.aspx

Happy Easter, and I hope you're having a wonderful day!

Jan
"If there are no dogs in Heaven, then when I die I want to go where they went."
Will Rogers

tashalynn97
Regular Member


Date Joined Apr 2014
Total Posts : 27
   Posted 4/29/2014 9:25 PM (GMT -6)   
Sorry it took so long to get back to you. Been crazy here. hives are finally getting better.Puppy has been doing a great way of taking my mind off of it. I told that last jerk of a dr that it was an infection. guess what after taking all that it really got better..hopefullyit stays this good. how are you
Natalie

Lupus,fibromyalgia,osteoarthritis,IBD, Gerd,asthma, epilepsy and past history of ovarian cancer

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 4/30/2014 12:10 AM (GMT -6)   
I get to itching a lot lately but no hives.
Joy
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, OA, Depression, Allergies, and benign familia tremors

When life throws you lemons....
Pick them up and throw them right back at them! :))

jan1952
Regular Member


Date Joined Mar 2014
Total Posts : 357
   Posted 4/30/2014 10:02 PM (GMT -6)   
Hello Natalie!

Great news that your hives are better . . . now for them to STAY that way. Also great news that your puppy is keeping you and your mind occupied. What's her/his name?

I'm doing pretty good . . . well . . . my toes are really hurting today--kinda worrisome that several on both feet have been red/blue for almost four months, with skin breaks and scabbing, and skin thickening. This week, I should be hearing from a rheumatologist's office about an appointment. And, I'm having my vision checked on Friday--it's not so good!

You know how goes--that and all the other fun stuff. Knees hurt, even though one is a replacement. Hurts to blow dry my hair for two reasons--my scalp is tender, and mainly, it hurts my shoulders and arms to hold them up with the blow dryer and round brush. A short, short cut is sounding better and better!

We've had constant winds up to and over 30 mph for the last several days--with gusts much higher--and occasional snow blowing sideways. But, tomorrow should be a nice day, so Ginger Snap (Ginger, for short) and I are gonna hit the trail. I'll put bandaids on my toes and take a pain pill before we head out. :) We've gotta get some walking done! Oh--and 50 sunscreen, and I think sunglasses.

Just about all the windows in our house are BIG--and I'm not able to enjoy watching the deer and other wildlife like I used to be able to do. It hurts to look outside when the sun is shining.

Also, my daughter is getting married in Boulder, CO on May 10, so we're gearing up for that event. I'm gonna have to find some time to listen to my body before we leave for the wedding. We'll be gone for five days--and, of course, Ginger is going, too. We'll leave the other critters at home with a stay-in critter sitter, which means I have to clean the house. aargh! Too, too much.

Very good to hear from you--
Jan
"If there are no dogs in Heaven, then when I die I want to go where they went."
Will Rogers

Jujubeee714
Regular Member


Date Joined Jun 2012
Total Posts : 26
   Posted 5/4/2014 3:19 PM (GMT -6)   
Hi! I have all sorts of rashes from lupus-hives, vascular lesions, vasculitis, pemphigoid, discoid and even cutaneous porphyria and of course solar urticaria. It sounds to me like you have a hypersensitivity reaction-called hypersensitivity vasculitis. It's EXTREMELY itchy-the hives are on top and under the skin. When I get them I bleed at the touch of them-here's a link: http://emedicine.medscape.com/article/1083719-overview I read the above on cryoglobulonemia-and I don't think that's it-it's too systemic-and you seem to have localized skin trouble. Just a thought.

Also-make sure your not allergic to the PUPPY. What did the biopsy say?

I can tell you that I take anti-histamines for it (strong prescribed ones)-use steroid creams (very strong prescribed ones like betamethazone) and even have steroid shots INTO them. If an anti-biotic worked for you there could have also been a secondary infection but it isn't likely that hives started from an infection. That's not the process which start hives.

Much LOVE-Julie

Post Edited (Jujubeee714) : 5/4/2014 3:30:04 PM (GMT-6)


hannahp
Regular Member


Date Joined May 2014
Total Posts : 22
   Posted 5/29/2014 4:49 PM (GMT -6)   
Hi I had 3 bad attacks with hives and was hospitalised for 4 days at a time I swelled out was poorly they treated me with steroids and anti histamines for months and it still comes back randomly. I have symptoms of lupus and even on plaquinil but no definite uve got lupus but I know deep down I do and push to this day to get the diagnosis and support I need. I find the plaquinil helps hun if ur on this and ranatidine and anti histamines as the ranatidine blocks the 2nd histamine receptor. The doctors said to me because I've had them bad a few times it Ile be prone to this and if it's lupus I suppose it will just come with the package for us. One question I do want to ask u is do u find even with out hives do u notice ur body fluctuate with fluid like ule wake up puffy round the face or arms even on a random day or before a flare is due and gain a pound or so coz ur swollen or it causing ur arms or legs to go a little numb with it aswell as the typical lupus symptoms of fatigue and muscle weakness ect. I like this site coz I don't feel a freak show coz everyone's in the same boat and people with out this issues don't understand to well. xxx

hannahp
Regular Member


Date Joined May 2014
Total Posts : 22
   Posted 5/29/2014 4:51 PM (GMT -6)   
And anti biotics helped me to for some strange reason body's are just weird I've come to this conclusion xx
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