Posted 4/14/2014 10:17 PM (GMT -6)
I have posted once or twice before, and have been in denial over having an AI. Now I am getting more depressed and frustrated over new dx and no real answers. I was hoping maybe someone could shed some light. I have been ANA + in all blood work drawn 1:2560 to 1:640 at the low end, I have joint and muscle pain that has been persistent for about a year, chest pain without swelling in heart or lungs, muscle weakness, constant fatigue, very faint (probably developing) rash on cheeks that usually appears the next day after being in the sun, and I have now been diagnosed with partial frontal lobe seizures. These have been happening for the last two years and I was told I needed to see a psychiatrist (which I did and all they said was I had depression), now finally the seizures happened enough times that the neurologist declared them as such following EEGs and MRIs and so on. The kicker is my blood work is all normal for the other lupus markers other than the ANA. So my rheumy is still wavering between fibro, UCTD, RA and lupus. Has anyone had this where you have 3 or 4 criteria and clean blood work?
Thanks in advance!