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jan1952
Regular Member


Date Joined Mar 2014
Total Posts : 357
   Posted 4/19/2014 3:11 PM (GMT -6)   
I was walking with my pooch this morning and noticed that I felt some "rawness" at times in my hiney area. When we got home, I discovered something that looked like a big diaper rash!

I did not get hot on our walk--it was 50 degrees. I always use shower powder after bathing, and I am hygiene conscious. Also, I am not overweight, and I have healthy eating habits.

What in the heck happened??? Has anyone else had this surprise? Could an autoimmune disease cause this? I read that it could be the result of a weakened immune system. Maybe it's yeast? It's painful and ugly. I used some aloe. . . . And I have not been taking any antibiotics.

I'm embarrassed to mention this, but it's so bizarre!

Jan
"If there are no dogs in Heaven, then when I die I want to go where they went."
Will Rogers

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 4/19/2014 4:05 PM (GMT -6)   
Nope, I've never experinced that except when I was too hot.
Joy
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, OA, Depression, Allergies, and benign familia tremors

When life throws you lemons....
Pick them up and throw them right back at them! :))

jan1952
Regular Member


Date Joined Mar 2014
Total Posts : 357
   Posted 4/19/2014 4:17 PM (GMT -6)   
Thanks, Joy. I have no idea what's going on. So far, with my testing, it looks like I have MCTD and "mild" lupus. Things have really started happening at a pretty fast pace.

Today, my knees felt better than they have in days, but it's weird--when I've been walking the last two times, it feels like bugs are biting under my clothes (which they aren't), and then it itches, but no rash. I was fully clothed (long pants and long-sleeved shirt--and 50 sunscreen on my face and neck. Oh, I also wore thick socks to help pad my angry toes.

I'm gonna have to get a couple of pieces of clothing from coolibar.com! :)

I'm waiting for an appt to be set with a rheumatologist--he has the referral and notes and test results from my primary.

about you--I know you'll win over the SSD board in October!

Jan
"If there are no dogs in Heaven, then when I die I want to go where they went."
Will Rogers

acquiesce
Regular Member


Date Joined Jan 2014
Total Posts : 360
   Posted 4/19/2014 6:33 PM (GMT -6)   
Hi Jan, that really sucks. Have you been in a hot tub lately? I got the worst most painful rash from one at a hotel once. I haven't gone in a hot tub since. That and they make my blood pressure go wonky.

The only other thing I can think of is possibly shingles.

Or if you're allergic to cold like me. Here's a funny story, I went to Florida years ago, before we knew I had an allergy to cold temperatures (it took about 15 years to finally figure out) and I had been sitting in my wet bathing suit and must have gotten too cool in my nether regions. Well didn't I break out in the itchiest rash known to mankind!!! We went out to dinner and oh my how I wanted to scratch my butt the entire time. It was awful! Hilarious but awful!!!

I would treat it as you would diaper rash. If the aloe doesn't help enough maybe try some zinc oxide diaper rash cream.

You poor thing!

jan1952
Regular Member


Date Joined Mar 2014
Total Posts : 357
   Posted 4/19/2014 9:07 PM (GMT -6)   
Acquiesce, I want to thank you for the chuckles and smiles while I was reading your funny story! In fact, I'm smiling now as I type. I bet you were scooting around in your chair at dinner--like you had ants in your pants. :) Allergic to cold . . . pretty strange. You've got a great attitude to be able to look back and recall the situation as being hilarious . . . but hey! Why not?!?

You're right about my problem--it's a DRAG. OR should I say, a pain in the arse? Nope, no hot tubs in the last, oh, I dunno, 20 years? Yikes, forbid it be shingles!

I'm treating it as candida--went to the store and got some of the yeast-go-away cream--so we shall see. I'll keep using my aloe, too. The feeling is itchy up front and a red, red, red rash the rest of the way back--over a sizeable area--and it looks like some of it is raised. It's so bad, and amazing to me, that I'd take a picture of it if it weren't such a personal area. One way or the other, whatever/whichever that is, it WILL go away.

I have my yearly physical on Monday. My primary's gonna love to hear this one. ;)

Thanks for your sympathy vote!

Jan
"If there are no dogs in Heaven, then when I die I want to go where they went."
Will Rogers

Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7720
   Posted 4/19/2014 9:53 PM (GMT -6)   
I've had that diaper-rash problem from time to time. Not sure if there is an immediate cause (besides it just being Lupus) - I've never really identified one. Treating it like candida might help.

I just know NOT to treat it with alcohol. Did that once and never ever again. The last time I used some 10% cortisone cream I had around - that was a bit soothing and helped the pain as well.

Also I made sure the area was Extremely Dry (I used my hair dryer) before dressing in clean cotton undies. And dried it as often as needed throughout the day.

Best wishes, and I doubt it's shingles...non-typical area for that.
Lynnwood, Lupus & Sjogren's Moderator, Dx: 2002
DIAGNOSING LUPUS & LUPUS RESOURCES
"Life is far too important to be taken seriously." - Oscar Wilde

acquiesce
Regular Member


Date Joined Jan 2014
Total Posts : 360
   Posted 4/20/2014 6:32 AM (GMT -6)   
I was scooting around in my chair and trying to sorta scratch it somehow lol. I went to the bathroom about 5 times as I recall just to scratch and then I was like "Oh sweet relief!!!"

I'm glad at least it made you smile :) it was pretty funny in hindsight. Trying to be all stealth like in a public restaurant with an itchy bum!
Besides, I find laughter is the best medicine.

Yep, allergic to cold. I went into shock so many times. So many ambulance rides, mri's, neurologists, concussions from passing out. I used to have seizures as well at the same time all this was beginning so it was thought to be related at the time. Then that fine day 15 years after the onset I stumbled upon some article about cold urticaria on the internet. I stuck an ice cube on my arm and welted up within seconds. That week I brought an ice pack on a visit to my primary doc and showed him. He was flabbergasted and sent me to an allergist and voila! Finally an answer!!

Oh these weird wild ailments we go through. I feel for you Jan. You're right, it will go away and that's a good way to look at it. Hopefully sooner rather than later!

Lynnwood, alcohol! Ouch!! I've done that with cold sores. I was thinking "I'm going to burn you off my face!" stupid, unsightly things. That's a much smaller area though. Your poor bottom! You're right, not a normal spot for shingles, I wasn't aware of that.

I looked it up and lupus can cause this type of rash apparently. So can RA. Ofcourse none of the articles explained why or I'd link them up for ya.
UCTD , livedo reticularis, Raynauds, cold urticaria, endometriosis, bursitis, arthritis, Sjorgens, anemia, leukocytosis, vasculitis, pleurisy, asthma and all that fun stuff!

Plaquenil, celebrex, advair, flovent, dovobet, vitamin A,B,C,D,E fghijklmnop ;)

Be who you are and say what you feel because those who mind don't matter and those who matter don't mind - Dr. Seuss

jan1952
Regular Member


Date Joined Mar 2014
Total Posts : 357
   Posted 4/20/2014 12:50 PM (GMT -6)   
Hello and Happy Easter!

Lynwood, owwwey zowwwey--alcohol in such a sensitive area! Did you jump into the bath as soon as you could run the water? Oh my. I remember having an itchy bottom in elementary school and thinking BenGay would take care of it. WRONG.

Hmm--I'll have to keep in mind your good idea of using a hair dryer. And, yep, always clean cotton undies. :)

Acquiesce, I'm not having your "Oh sweet relief!" moment yet, but some of the redness is gone today and there are "satellite" blisters around the rash area. And it's definitely yeast in front. crazy, crazy . . .

Boy, you sure did have plenty of scary times before you were finally diagnosed with cold uticaria!!!! That was horrible!!! It was about time the light bulb came on for one of your doctors, but for anybody to jump, it took YOU showing your primary what happens when cold meets your skin!

I believe that with autoimmune (and other unusual disorders) and primary doctors, it helps to have our own knowledge bank as well, because a primary needs a bit of assistance sometimes. :)

I started back on Dr. Ohhira's complete probiotic system recently, along with my multivitamins--both of which I had quit taking for some unknown reason. I'll start with Lysine, too, to help build the immune system.

Oh! I found this site that has lots of herbal remedies for rashes and such. I'll pass it along to Natalie, who has been having such a rough time with hives.

http://www.encyclopedia.com/topic/Rashes.aspx

My "latest find" on sites is:

http://umm.edu/health/medical/reports/articles/systemic-lupus-erythematosus

It's a lengthy article, but this caught my eye:

"Infections are a common complication and a major cause of death in all stages of SLE. Patients are not only prone to the ordinary bacterial and viral infections, but they are also susceptible to fungal and parasitic infections, which are common in people with weakened immune systems. They also face an increased risk for urinary tract, herpes, salmonella, and yeast infections. Corticosteroid and immunosuppressant drug treatments used for SLE also increase the risk for infections."

Hope you're both (and everyone else!) having a wonderful Sunday. Time to do some gardening here! (I might have to use the claw for some intermittent scratching . . . eh?)

Jan
"If there are no dogs in Heaven, then when I die I want to go where they went."
Will Rogers

MapleLeafBear
Regular Member


Date Joined Mar 2014
Total Posts : 167
   Posted 4/24/2014 12:39 PM (GMT -6)   
Jan - I have the same issue! It seems to have only started since I've been working out regularly for the last 10 months. I live in a very hot and dry climate and it was the worst in the winter. But sometimes I notice it especially after a long workout session. So you're not alone! I put neosporin on it and it seemed to help.

jan1952
Regular Member


Date Joined Mar 2014
Total Posts : 357
   Posted 4/24/2014 4:21 PM (GMT -6)   
Good hearing from you, AubreyBear!

But NOT good about the rash(es)! Mine started behaving in a couple of days. I still have red spots, but they don't bother me. And to think it was only 50 degrees when we were walking, which makes me doubt if walking had anything to do with it...hmmm...

Plus, we've walked several times since then--no problem. We'll, yes, a problem, but not the same kind of surprise! My knees have been giving me grief, so our walking has been cut to 4-5 miles lately. I sure do miss the longer walks, so maybe my knees are going through a "stage." I didn't think my left knee would hurt since it's a replacement, but, sure enough, it doesn't want to be left out! ;)

Take care--and I'm really glad you wrote. Hope all is fine, and conga-rats on the workouts!

Jan
"If there are no dogs in Heaven, then when I die I want to go where they went."
Will Rogers
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