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oreo11
Regular Member


Date Joined Feb 2011
Total Posts : 399
   Posted 4/22/2014 2:41 PM (GMT -6)   
Hi Everyone,

So I drove the four hours to Santa Rosa yesterday and had my appointment with the new Rheumatologist. Naturally, there were snafus. The office where I used to be a patient did not send all of the records, so big pieces were missing and I had to depend on my memory when he asked me specific questions...and that was a laugh. Thankfully, I hand carried a disc with all of my x-rays and MRIs. He seemed more concerned about my worsening osteoarthritis than he was about my Lupus. Granted, I have been having more problems with the Osteo, but my old Rheumy never seemed to be that concerned with it. I appreciated his thoroughness in examining me and he made great suggestions, many of which I did not want to hear. I am having problems with the fingers of both hands, including deformities as a result of the worsening osteo. He told me I should not be gardening like I do. A very difficult thing to hear for a gardener! He also ordered labs (ANA, Complement levels, etc.) to help him make decisions about my meds. The 7 mg. of Prednisone is barely working, and he is also wondering if we should increase the Plaquenil. I will get the labs done up here at home.
The plan is for me to see him twice a year, with him working closely with my primary. I like him well enough, but it's always difficult making the transition to a new doc. Thankfully, I was able to rest in the hotel last night and make a Trader Joe's run before I headed north to home and my husband. I am hoping that they are able to find a Rheumatologist for this area (in fact they really need two of them), so patients like myself don't have to drive such a long way to get care. I really feel for people older than me.
Hope everyone is doing well and enjoying this burgeoning spring. It's absolutely lovely here!

Love, Laura

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 4/22/2014 5:04 PM (GMT -6)   
That's rough that it takes you two days to see a rhuemy.
There used to be only two in my area but now there's four to chose from, but three of them are in the same practice. :/
Joy
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, OA, Depression, Allergies, and benign familia tremors

When life throws you lemons....
Pick them up and throw them right back at them! :))

acquiesce
Regular Member


Date Joined Jan 2014
Total Posts : 360
   Posted 4/25/2014 4:46 AM (GMT -6)   
Laura, I love gardening too! I will still be out digging and weeding and transplanting no matter what I'm told and even if it leaves me stiff as a board that evening and days after! Although I have paced myself more and am weary of my sun exposure.

Wow that's a long haul to see the rheumy. I'm glad you made a trip of it and stayed over. Finger's crossed that one will soon be closer to your area.

Spring has sprung here too and I see the beginnings of my bulbs peeking out finally!!!
UCTD , livedo reticularis, Raynauds, cold urticaria, endometriosis, bursitis, arthritis, Sjorgens, anemia, leukocytosis, vasculitis, pleurisy, asthma and all that fun stuff!

Plaquenil, celebrex, advair, flovent, dovobet, vitamin A,B,C,D,E fghijklmnop ;)

Be who you are and say what you feel because those who mind don't matter and those who matter don't mind - Dr. Seuss

oreo11
Regular Member


Date Joined Feb 2011
Total Posts : 399
   Posted 4/25/2014 3:05 PM (GMT -6)   
I know myself well enough that I will keep gardening. I have already limited my time out there and have taken up the mode of working slower than I am used to. My biggest problem is this Osteoarthritis mixed in with the Arthralgia from the Lupus. I have been experiencing much more pain than usual. Could be stress. Work has been crazy, but it could be the weather too. It's been damp and rainy. I tend to be a little stubborn and push it sometimes....like I did on Sunday :)

My Freesias are just starting to bloom. The Hyacinths have come and gone. And the best part is my Foxgloves are just starting to bloom. I love this time of year!!

Laura

acquiesce
Regular Member


Date Joined Jan 2014
Total Posts : 360
   Posted 4/26/2014 5:10 AM (GMT -6)   
I'm in the same boat, last night I started to really hurt again after having been doing well for a week or so. This morning I woke up stiff and extremely sore all over. Work has been crazy for me too and it's been very damp and rainy here too. I also took advantage of my feeling better and ate too much wheat and sugar. I think it's a cumulative thing perhaps, where a few factors have added up to land me in painville.

With Mother's day coming it has been super busy at work. Yesterday I did the window display up and down a ladder, restocking and carrying heavy boxes of vases etc. Cleaning flowers, hauling buckets, on my feet all day, it's surprising how actually physically straining it is to be a florist. It used to be a piece of cake to accomplish all that and I really took my strength and endurance for granted before all this.

I hope your pain calms down soon Laura! Enjoy that freesia, I just love freesia! It's scent is heavenly!I don't have any in my garden but we have it in the shop often. I should plant some..

Where I am in Ontario, Canada, spring is late this year. My magnolia tree is just starting to bud and I so look forward to it's blooms. The last of the snow on my lawn only just melted away about a week or so ago. It's been a long, cold and snowy winter!!
UCTD , livedo reticularis, Raynauds, cold urticaria, endometriosis, bursitis, arthritis, Sjorgens, anemia, leukocytosis, vasculitis, pleurisy, asthma and all that fun stuff!

Plaquenil, celebrex, advair, flovent, dovobet, vitamin A,B,C,D,E fghijklmnop ;)

Be who you are and say what you feel because those who mind don't matter and those who matter don't mind - Dr. Seuss

oreo11
Regular Member


Date Joined Feb 2011
Total Posts : 399
   Posted 4/26/2014 5:31 PM (GMT -6)   
Last night was crazy for me. I could not even get comfortable in bed. My feet and ankles hurt, as well as my hips and knees. I finally got to sleep around 1:30 AM after popping a Valium, which helped. I felt much better when I woke up, although now that it is late afternoon, I am achy again. The usual Saturday chores caught up with me.

Amazing that your snow just melted away. I live close to the beach in Northern California (Eureka, CA), so we rarely get snow down to sea level. Although it does happen. We actually saw snow falling at our house this year and last year. It just doesn't stick. For us it's been too dry and I am really concerned. We are about 16 inches below our normal rainfall which does not portent very well for this summer.

Wow, you have a magnolia tree. They are one of my favorites!

Laura

Butterflake
Forum Moderator


Date Joined Jun 2006
Total Posts : 1650
   Posted 4/28/2014 10:16 AM (GMT -6)   
Hi Laura. I have a patio flower garden and I felt so badly last year that I didn't touch it, but this year I've already bought my annuals and a gardenia bush. I love that gardenia smell! I started seeing a new rheumy last Oct and he's amazing! He must have an IQ over 150 plus he has a great bedside manner. He's making me get Benlysta again for at least the next 7 months. I've finished the first month. There have been days that I've slept 20 hours, but there have been more days that I've felt really good. I'm going to do this with steadfast resolve. You may remember I quit Benlysta once.

Anyway, a pain med I can't do without is Voltaren gel topical. I (or hubby) rub it into my hip, neck, back, or fingers. As with all meds, it doesn't work for everyone, but you may want to ask your PC to prescribe it. My PC first prescribed mine for hip pain.

Non sequitur: as a youngster I was in the Air Force and stationed 9 months in Sacramento. I never went to Eureka, but while investigating with friends we came close. It truly is lovely there even though the isolation bites. Anyway, put on sunscreen, stand outside, spread your arms, lift your face, and take in the spring. Love Ya, Donna
SLE '05, Sjogrens, fibro, Raynaud's, major depressive disorder, CNS problems, diastolic heart dysfunction, GERD, 1st stage kidney disease. Many meds: better living through chemistry

Donna
Sjogren's Moderator

oreo11
Regular Member


Date Joined Feb 2011
Total Posts : 399
   Posted 4/28/2014 7:00 PM (GMT -6)   
Hi Donna,

The isolation is part of the magic of this area. It makes me feel like I am living in my own personal nest. It just becomes an issue when health care is involved. So many docs, especially specialists, have left this area, which makes it difficult for some people with chronic diseases to get care in their community.

Right before my old Rheumy retired, she suggested that I might try Benlysta again. I just don't know. Hopefully, I will get some direction from the new doc....I had wonderful results with Benlysta in the beginning. It just quit being effective after 8 months.

Thanks for the information on Voltaren gel topical. I really need something to help the pain that I have been having and I prefer topicals over oral meds.

And you are right!! Spring is magnificent right now. We have beets, lettuce, cilantro and onions coming in. Plus tomatoes, basil, cucumbers and jalapeno in the greenhouse. I celebrate these gifts every time I come home from work and am grateful for this beautiful landscape.

Love,
Laura

PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2606
   Posted 4/28/2014 8:50 PM (GMT -6)   
I also useVoltaren gel & like it.
SLE, fibro, renauds, restless leg?
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