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judee
New Member


Date Joined Apr 2014
Total Posts : 3
   Posted 4/29/2014 11:19 PM (GMT -6)   
Hi All,

I am new here and am looking for some help and was hoping you could share your wisdom with me. I was at my primary care doctor's office for vaccinations I needed for work, and told him that I had been having heel pain for a couple of months. I was concerned because it wasn't going away and I had had tendonitis in my wrist about six months prior. I had never had tendon trouble before and was curious as to why I was having problems now.

He said he would run some tests to check it out. Well, I went back yesterday and he said that my "ANA SCREEN, IFA" was "positive," and my "ANA TITER" was 1:160, which he said were indicators (although not absolute) for Lupus. He suggested I make an appointment with a Rheumatologist, which I did (May 15).

I have Hashimoto's and Chronic Fatigue SYndrome, and was wondering if I may have gotten a false positive due to my hypothyroid or my CFS viruses (Epstein Barr Virus, Cytomeglovirus, Herpes6), which all of my titers were high just last month. I appreciate any help you can offer me :)
J

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 4/30/2014 1:06 AM (GMT -6)   
We're not doctors so I can't help you there, but have you read the 11 indicators for lupus? They can be found in the first thread. You need at least 4 out of the 11 to be diagnosed with lupus.

As for me I am constantly getting tendonitis that last for months.
Joy
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, OA, Depression, Allergies, and benign familia tremors

When life throws you lemons....
Pick them up and throw them right back at them! :))

judee
New Member


Date Joined Apr 2014
Total Posts : 3
   Posted 4/30/2014 10:25 AM (GMT -6)   
Thank you Joy for your response. Yes, I did read the 11 indicator list. I have some of the indicators, but I felt like the indicators could be other issues, as well. I have the positive ANA test, a rash on my back that won't go away, fatigue, joint swelling, but none of the others.

Barbara Lee
Veteran Member


Date Joined Sep 2003
Total Posts : 2889
   Posted 4/30/2014 8:51 PM (GMT -6)   
Hi and welcome to the lupus forum. Sorry to hear that you're having issues with your tendons. I've been struggling with severe tendonitis in my Achilles tendon. My doctors feel mine is coming from being on the long term steroid usage that I've been on.

To answer your questions about lupus. As Joy said we're not Doctors but some of us have been around the block for awhile. I've had lupus for 26 years now. I'm very sick with mine and do not respond to treatment at all. I'm in a constant flare 24/7 all year long.

If you've gone over the 11 symptoms and feel that they may be related to your other conditions it may be. Lupus is known as the disease of 1,000 faces and it's very hard to DX. I'd write down the symptoms you are having and take photos of any rashes that you may have. When you see the Rheumy on the 15th takes these items with you for him to look at.

The ANA being positive at 1:160 is positive but not to bad. Normal is 1:40, the 1:80 is a positive but barely the next would be 1:160 and so on. The higher the ANA the more weight the doctors take it, but lupus isn't DX'd on labs alone, you must have 4 of the 11 symptoms to get a DX. Having the DX isn't the important factor, but more so getting treatment for your symptoms to control the disease process.

I'd wait and see what the Rheumy has to say and then go from there. If we can answer any ?'s please ask away. Good luck with your appointment and let us know how it goes.

Hugs,
Barbara
DX- RA, Lupus, Fibro, LGL Leukemia, Obstructive & Central Sleep Apnea, Pulmonary Hypertension, Bells Palsy, Gastroparsis, Blood Clots, Glaucoma, Chronic Pericarditis & Pleurisy, Severe Anemia. Way to many medications to list.

judee
New Member


Date Joined Apr 2014
Total Posts : 3
   Posted 4/30/2014 11:59 PM (GMT -6)   
Hi Barbara Lee,

Thank you for your response to my questions. I appreciate you taking the time to explain the diagnosis and testing protocols. My primary care Dr. is the one who ran the tests, and I realize the Rheumatologist will definitely have a more comprehensive view. I feel much better now, but I have to admit, initially I was scared with the test results. My appointment is in two weeks, and I am sure I will have a clearer picture once I see the specialist. I also hope that since I have another autoimmune disease I will have a better understanding of how that affects my antibody test results. Thank you again, for taking the time to answer some of my concerns.

j
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