There is a list that rheumatologist use to diagnose lupus. There are 11 items (indicators) in the list. You must meet at least 4 of the 11.
Are you wearing sun protection? Most of us feel worse if we are exposed to UV light. Sources of UV light are sunlight, fluorescent lights, tanning beds, CF bulbs, and halogen bulbs. Try wearing clothing with sun block in it or sunscreen.
I hope you see a rheumy soon and can get an answer for you, honey.
I havent been wearing it recently, but last summer i did because i love the pool and when i went even close to the sun i could feel it, like a burning sensation and my skin would burn. Not immediantly, though, but after about
30 mins to 1 hr. Now most times when i look at the reflection, or even the light it gives off, it gives me a headache. also other lights bother me as well. I can't sleep unless all the bright lights (like the cable box or the tv power light) is off. Where can you get sun protective clothing?