Thanks Lynnwood and Couchtater your description is right on in regards to flare ups. At least now I know what is causing the misery. Like I mentioned, I couldn't have the little energy I do if it weren't for the plaquenil. But this last flare lets me know to try and reduce stress in my life and right now it's impossible. Today I'm better, btook both of your advice and rested, although had to do chores but rested in between. I realize that's the way it's going to be at times. Tough.
Angel, I don't know how to respond to you because I don't have that much experience with this. Hope you get advice.
Hugs to all and sincere thanks for being here.
Husband 58,dx 2005 psa 27, with bone mets
tumors on spine, 2011 paralyzed due to spinal cord compression, 3 vertebrae removed
radiation, two compression surgeries 2010/11, 3 month rehab, able to walk with aid.
taxotere, psa 161, 2011,
start zytiga, 2012, psa 11, psa 44, stop zytiga start xtandi 7/2013,
several small tumors in lungs, bladder, lesions on liver.
xtandi, psa 18.5, start jevtana 4/14