Lupus, medication and trying to work

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New Member

Date Joined May 2014
Total Posts : 1
   Posted 5/14/2014 10:28 AM (GMT -6)   
Hi everyone, although not new to Lupus/Sjogrens symptoms, only had diagnosis confirmed late last year and finally started on meds. Currently experiencing severe flare and struggling with fatigue, pain, lack of sleep etc. Am currently TRYING to convince by employer (and myself) to hold my position open for me in the hope I may, in the not too distant future, be able to return to part time duties. Haven't been able to work for last four weeks and looks like being admitted to hospital for treatment of depression on Friday so really don't know when I'd be able to return.
Question is : am employed as Pharmacy Assistant and rhuemy suggested I look for different career as due to autoimmune problems and associated medications, was unwise to be working with 'sick' people. Any thoughts/ideas on this?
FYI I'm in Australia and it's currently 1.30am Thursday. Know I need to be asleep but it's being very elusive!
If anyone out there has any offers or suggestions re any of my burbling it would be greatly appreciated. Thanks

Elite Member

Date Joined Jul 2009
Total Posts : 14475
   Posted 5/14/2014 1:58 PM (GMT -6)   
I had to leave my job because of lupus. The stress and environment was bad for my body.
Do you have long term disability insurance? It can help pay the bills.
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, OA, Depression, Allergies, and benign familia tremors

When life throws you lemons....
Pick them up and throw them right back at them! :))

Barbara Lee
Veteran Member

Date Joined Sep 2003
Total Posts : 2889
   Posted 5/14/2014 9:59 PM (GMT -6)   
Hi sorry to hear that you may need to change your career, but your Rheumy is giving you some sound advice in my opinion.

Some of the medications we take to treat lupus suppress our immune system. Which in turn we do not want to be around people who are sick. I'm on Methotrexate 35mg sub Q weekly, I also have zero Tl cells and a year ago we found out I have T-cell LGL Leukemia. I have no T cells and no immune system basically.

This past Christmas I picked up a respiratory infection that ONLY babies get, I ended up spending 3 weeks in the hospital 1 of them in the ICU. I ended up the both viral and bacterial pneumonia once I was allowed to go home I still had to do 10 days of IV antibiotics.

Because of this type of circumstance my Rheumy prefers I stay at home inside my home at winter. He advises me to stay away from people who are sick and I have to wear a mask when I go out shopping or anywhere for that matter.

So, I'm guessing that's why your Rheumy has suggested you consider changing your job. If you have any ?'s please ask. Hang in there and good Luck.

DX- RA, Lupus, Fibro, LGL Leukemia, Obstructive & Central Sleep Apnea, Pulmonary Hypertension, Bells Palsy, Gastroparsis, Blood Clots, Glaucoma, Chronic Pericarditis & Pleurisy, Severe Anemia. Way to many medications to list.

Regular Member

Date Joined Jan 2014
Total Posts : 360
   Posted 5/15/2014 5:18 AM (GMT -6)   
Hi HopefulCC, I know it's hard to go into another profession or a new job but if your current one is putting you at risk it is something you must consider.

I was working as a florist four years ago in a building that was a greenhouse. I was constantly sick, covered in rashes and miserable. I didn't realize at the time that I was sun sensitive and it was my job that was potentially making me so sick. I hung in there for 3 years and then finally (by divine intervention it seems) I was called into the office and reprimanded by one of the higher ups for something I didn't do and even my manager was perplexed by. I was so upset, in tears and taken aback that I gave my notice right then and there.

Now that I am in an actual store and not a greenhouse some of my rashes and symptoms have decreased tremendously. Hindsight has shown me that I was in a constant cycle of flare ups due to the sun exposure. I would still be there killing myself slowly if it weren't for that weird happenstance that pushed me to quit. It isn't worth it. Your health is priority number one!
UCTD , livedo reticularis, Raynauds, cold urticaria, endometriosis, bursitis, arthritis, Sjorgens, anemia, leukocytosis, vasculitis, pleurisy, asthma and all that fun stuff!

Plaquenil, celebrex, advair, flovent, dovobet, vitamin A,B,C,D,E fghijklmnop ;)

Be who you are and say what you feel because those who mind don't matter and those who matter don't mind - Dr. Seuss
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