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couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 5/14/2014 4:11 PM (GMT -6)   
If I was a cussing person I would be screaming them at the top of my lungs right now! mad
I got xrays a few weeks ago of my hands because I had developed a knot on my finger and they were hurting me. My rheumy told me he would call me if there was any findings. One week passed, two weeks.....I decided to go ahead and pick up my results and see what it said. I said it was arthritis in my PIP joints of all of my fingers. I figured since my rheumy hadn't call me and my fingers were still hurting I'd call him and see what he wanted me to do.
I called yesterday after lunch. I waited all day for an answer. Nope... mad
Finally, this morning his nurse calls back and tells me to continue on the Celibrex and Voltern Gel. Neither of which he had perscribed. mad
I told the nurse the kidney doctor said no to the Celibrex (which I've told the rheumy countless times) and that based on previous tried of Voltern it doesn't work with me. She said she would talk with him and get back to me. I still haven't heard from her and it's after hours now. mad

I was so mad that I called up a different rheumatologist and set up to see him in September. So there, DR. S! mad mad
Joy
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, OA, Depression, Allergies, and benign familia tremors

When life throws you lemons....
Pick them up and throw them right back at them! :))

Barbara Lee
Veteran Member


Date Joined Sep 2003
Total Posts : 2889
   Posted 5/14/2014 9:13 PM (GMT -6)   
Joy:

I'm so sorry that your Dr. S is such a JERK! This happens a lot to us lupus patients, I went thru 6 of them before I finally got one that would listen. Then we have to move due to the military, got another good one and he retired. The current one I have is so so and I mean just that.

Did the report say what type of arthritis you have in your fingers? If you're at all like me, I have really bad osteoarthritis in my toes, and back. I have RA in my other joints that aren't affected by my lupus or my RA. I was basically told by my Rheumy that there really isn't a darn thing I can do for my osteoarthritis pain. My lower back is so severe my back burns and hurts 24/7 with ZERO relief. It's always hurting at a 7 or 8 on the pain scale.

I think you did the right thing by finding a different Rheumy, it's a shame though that you can't see them until September. I would suggest that you contact your primary care and see if they can help you with something. I sure hope that you can get some help with them soon. I know how badly they can hurt. Hang in there and let us know how you're doing.

Hugs,
Barbara
DX- RA, Lupus, Fibro, LGL Leukemia, Obstructive & Central Sleep Apnea, Pulmonary Hypertension, Bells Palsy, Gastroparsis, Blood Clots, Glaucoma, Chronic Pericarditis & Pleurisy, Severe Anemia. Way to many medications to list.

oreo11
Regular Member


Date Joined Feb 2011
Total Posts : 399
   Posted 5/14/2014 9:30 PM (GMT -6)   
Hi Joy,

I hear your frustration and I do sympathize. This happens to me quite often. I sometimes think that the medical offices and physicians are just too busy. You did the right thing by seeking out another Rheumy, but I agree with Barbara, you should not have to wait that long. My PCP is really good. If I were in your shoes, I would call her in a heartbeat. ((((((((((((((((( Big Hug))))))))))))))).

Laura

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 5/14/2014 9:50 PM (GMT -6)   
All I saw on the xray report was arthritis in the PIP joints and loss of space in the joints. The nurse said in the call it was a degenerative condition, nothing beyond that.
Joy
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, OA, Depression, Allergies, and benign familia tremors

When life throws you lemons....
Pick them up and throw them right back at them! :))

jan1952
Regular Member


Date Joined Mar 2014
Total Posts : 357
   Posted 5/14/2014 10:07 PM (GMT -6)   
Joy, I'm so sorry about these awful frustrations! That would make me want to camp out on their doorstep--just so they'd have to see me, face to face.

I agree about it being a good idea to choose another rheumy, and wish it was much sooner--as I'm sure that you do as well.

Thinking about you!
Jan

acquiesce
Regular Member


Date Joined Jan 2014
Total Posts : 360
   Posted 5/15/2014 5:06 AM (GMT -6)   
Hugs Joy, I am sorry you have to deal with this stress on top of the pain and worry. It doesn't seem fair. :(
UCTD , livedo reticularis, Raynauds, cold urticaria, endometriosis, bursitis, arthritis, Sjorgens, anemia, leukocytosis, vasculitis, pleurisy, asthma and all that fun stuff!

Plaquenil, celebrex, advair, flovent, dovobet, vitamin A,B,C,D,E fghijklmnop ;)

Be who you are and say what you feel because those who mind don't matter and those who matter don't mind - Dr. Seuss
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