Lupus symptoms..

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RaeRae0618
New Member


Date Joined May 2014
Total Posts : 6
   Posted 5/19/2014 10:21 PM (GMT -6)   
I'm new 2 this & I'm looking for advise. I've been having a lot of symptoms for yrs, since I was 16. The past 2 yrs have been bad, I've broke out with a rash on my chest & shoulders from being in the sun 2 long. I went 2 a dermatologist & he done a biopsy that came back positive for lupus. So I go for blood work & my ANA came back neg., but my sed rate was high & my WBC was high. He told me he couldn't dx me with lupus 2 go see a rheumatologist. My symptoms come & go, but the past 2 yrs I have new ones like my fingers & toes going numb & being really cold. I stay fatigued so bad that at times I feel like I can't even move. Headaches, joint pain, muscle tension, nauseated a lot, my stomach looks swollen, I've had unexplainable infection, depression & anxiety, mood swings. I feel like I'm going crazy! I'm tired of hearing ppl say it's all in my head 2! I knw something is wrong but I can't get any answers. Any advise would b greatly appreciated!

Lynnwood
Veteran Member


Date Joined May 2005
Total Posts : 7725
   Posted 5/19/2014 10:36 PM (GMT -6)   
What Drs have you seen besides a dermatologist?

Did you go to a rheumotologist? They are the Drs who specialize in diagnosing and treating Lupus and other auto-immune diseases.

Check out the "diagnosing lupus" link below - generally you need to have 4 of the 11 listed symptoms to get a Lupus diagnosis.

Let us know how it goes!
Lynnwood, Lupus & Sjogren's Moderator, Dx: 2002
DIAGNOSING LUPUS & LUPUS RESOURCES
"Life is far too important to be taken seriously." - Oscar Wilde

RaeRae0618
New Member


Date Joined May 2014
Total Posts : 6
   Posted 5/19/2014 11:18 PM (GMT -6)   
I'm calling tomorrow for appt. I have read up on it & had an uncle that was dx with it & another disease. I've also experienced shortness of breath. I mean u name it I've had it but it comes & goes.

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 5/19/2014 11:54 PM (GMT -6)   
Symptoms of lupus will come and go at times. It's like you have climbed on the lupus rollercoaster. Lot's of up and downs, sudden drops, flips, turns, a crazy corksrews, but it never ends.
Joy
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, OA, Depression, Allergies, and benign familia tremors

When life throws you lemons....
Pick them up and throw them right back at them! :))

RaeRae0618
New Member


Date Joined May 2014
Total Posts : 6
   Posted 5/20/2014 12:03 AM (GMT -6)   
That's wht I am afraid of.. I would just like 2 knw. I'm stressed 2 the max! I've read seems like everything on lupus & I have more than 4 symptoms. Things keep getting worse 2. I'm starting 2 get wht looks like wht they call the butterfly rash & my face feels like it's on fire at times.

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 5/20/2014 5:22 PM (GMT -6)   
Make sure to protect yourself from uv light. Sources of uv light are sunshine, fluorescents lights, cf bulbs, halogen bulbs, and tanning beds.

Heavy sunscreen lotion, spf clothing, hat, and gloves will protect you.
Joy
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, OA, Depression, Allergies, and benign familia tremors

When life throws you lemons....
Pick them up and throw them right back at them! :))

RaeRae0618
New Member


Date Joined May 2014
Total Posts : 6
   Posted 5/20/2014 5:29 PM (GMT -6)   
Thank u. I've not even been out side during the day since I found out.

RaeRae0618
New Member


Date Joined May 2014
Total Posts : 6
   Posted 5/20/2014 5:31 PM (GMT -6)   
I have an appt June 26th with the Rheumtologist. Hoping for answers.
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