Hey there, I'm new here.
I'm a 19 year old white female. My mother has no history of lupus in her family and my father is adopted with no medical records. I have fought GI issues my entire life but in the last 5 years have had 1 complete mental breakdown w/ depression and anxiety (That was when i was 14 and I came out of it, it wasn't seemingly caused by anything just happened and was something that had to work itself out). I struggle with minor social anxiety and I think it's more a product of the generation I'm growing up in (I have several friends who are the same as me). My GI issues are cramping, and IBS related symptoms (never been diagnosed). Constipation and bleeding and diarrhea fluctuating.
I have had a rash on my face before, I think it could be the Malar Rash/ Butterfly rash. It stars on the bridge of my nose and the corners of my eyes (Is this something typical?). It's blotchy looking, slightly raised flat bumps when severe flake. They don't go out over my cheeks but my cheeks could be red.
I get the same blotches on my joints= knees, elbows, finger joints and knuckles. I don't get rashes anywhere else, these rashes do not hurt badly or itch (I would say occasionally they hurt when rubbed as do the ones on my face). They are only on the joints, and are primarily on my knees and elbows over other joints. They start bright red as smaller circles and eventually the circles envelop each other to make a quarter or bigger sized blotch that is bright red and fades to purple and then brown and 'goes away'. Oddly enough these usually happen on my left side versus my right side (Not saying they never happen on my right side).
I don't know if I have fatigue but I need a lot of sleep, I sleep 10+ hours a night and take 2+ hour naps and when I manage to make it through a day without naps I end up crashing hard around 9 pm (I wake up around 9 AM). Is this something common? I don't have trouble usually doing daily tasks and feeling tired, I can grocery shop and take walks and drive fine (I'm not a horribly active person, intense exercise is painful for me). I used to get very restless sleep, waking up every 20-45 minutes, spending hours awake at night. I was put on Trazadone 100mg as a nighttime sleep aid and I now sleep solidly. (As I'm sure most of you know, sometimes when you can't get a diagnosis you just learn to deal with the worst symptoms)
I have always had a resting heart rate over 90 bpm.
I have some side pains on each side pinching pain. I have recently been having back pain near the bottom of where my lungs would be (i guess this could be kidney?). Neither of these pains are horrible and they don't really prevent me from doing my stuff. I have also recently had what I thought was heartburn, it feels like a stabbing pain in the center of my chest below the breast. Right where the sternum ends. On a scale from 1-10 all of these pains are under a 5. The chest pain is the worst but not awful.
I have nervous tremors (only when i'm very nervous which conveniently happens to be at the doctor)
I went to my GP today, this is the first time I have given her the chance to 'solve the puzzle' although my other GP had a chance (He retired and she replaced him about 2 years ago). I've had a colonoscopy and a endoscopy about 2 years ago when I went to a GI who tested blood and misread it thinking I had celiacs and then preformed the colonoscopy and endoscopy for biopsy, I went gluten free until I met with his assistant a month later for the biopsy results which were negative for celiacs because the doctor misread them and my thyroid levels were high (T4? I memorized my numbers and the test names but purged them out of my system because it's hard carrying around these things when people tell you nothing is wrong). I went back on gluten and started living my life again. I was retested and told my T4 numbers were 'barely' elevated. Never went to a specialist because I was 17 and required a pediatric one.
Anyway my current GP reran a blood panel of tests consisting of rerunning the Celiacs panel and an ANA test as well as a vitamin D deficiency test. I am so used to get negative test results that I wanted to ask you guys if what i'm suffering from sounds like early stage Lupus, My pains are mostly mild and I can live with everything except the extreme hours of sleep I need. I just want to catch something if there is something serious early, but my medical history has never been 'easy'. It's hard to have people tell you in there's nothing wrong, and to have your parents back them up. I'm an 'adult' now so I'm trying to see if I can get some more headway on these things i'm dealing with. My GP at least took me seriously and that's always nice. How long do ANA tests take to get back?
Thanks for reading all of this if you did. I asked a question on Yahoo answers about the skin rash, but got no answers. Here's the pictures of my knee and elbow over on Flickr. The pictures are not graphic and are not great quality. https://www.flickr.com/photos/123928918@N07/with/14216723384/