Sun rash on chest and face (Pictures) Please take a look. Cutaneous Lupus maybe?

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Spunkymonkey
Regular Member


Date Joined May 2014
Total Posts : 31
   Posted 5/24/2014 3:16 PM (GMT -6)   
Here is the link to my flickr account which I added the new pictures of my face and chest (they have dates) as well as some older pictures of what my facial rash usually looks like and a picture of the petechaie I had on my arm a few days ago. (Petechaie is bleeding under the skin)

Here's the link: https://www.flickr.com/photos/123928918@N07/

Please tell me if the link doesn't work. I would love to know if anyone gets rashes similar to mine, it could be cutaneous lupus.

Thanks
Maddi

jan1952
Regular Member


Date Joined Mar 2014
Total Posts : 357
   Posted 5/24/2014 4:58 PM (GMT -6)   
Maddi, I realize that you're anxious and want a diagnosis of some kind of something wrong. But what you're doing to yourself is self-harm by attempting to bring on negative symptoms, and I do not condone that in any way, form, or fashion.

Please take a step back and rethink your actions.

Jan

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 5/24/2014 5:14 PM (GMT -6)   
It's hard sitting in limbo, but try to be patient. Give the doctor time to decided what's happening.
Joy
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, OA, Depression, Allergies, and benign familia tremors

When life throws you lemons....
Pick them up and throw them right back at them! :))

Spunkymonkey
Regular Member


Date Joined May 2014
Total Posts : 31
   Posted 5/24/2014 5:27 PM (GMT -6)   
Patience is not my strong suit. I am trying very hard to be though. So far I have not brought on anything other than a rash. All my other symptoms were the same before sun as they are after, I've actually been feeling a bit better overall. I haven't needed a nap in 4 days (a huge record for me), although I am still sleeping quite a lot at night. My back pain is abating, I tested low in vitamin D and although I know the sun is hurting me it's also giving me some vitamin D so I am feeling better that way.

Tuesday I start my first summer job, it's a part time position at a summer school. It runs Monday thru Thursday 9 AM to 11 AM. I have another summer job that starts June 2nd at a children's museum. I am excited to get back working for the summer as I need to save a considerable amount of money for my next semester of school. I hope to be working near 40 hours a week for most of the summer. I am also finishing up my Math class before the second job starts.

I know that for many of you sun exposure is very serious and can cause many horrible symptoms and even hospital stays, but for me sitting in the sun 20 minutes a day isn't giving me anything but a rash. If and when that changes I will immediately stop and seek medical attention until then being in the sun is actually helping my mental outlook at the moment.

Please be aware that I have taken all your considerations into account and I appreciate all your concerns. I understand that you don't approve and I will stop posting about the rashes as I don't want to upset anyone with my actions.

Thank you Jan and Joy

P.S. after this dermatology appointment I will be much more cautious in the sun and Joy I am going to be buying some coolibar duds with my first paychecks so I'm excited that way too. I do overheat so I hope they can keep me cool while keeping me protected.

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 5/24/2014 11:29 PM (GMT -6)   
The photos don't bother me, I'm just worried that you will work yourself into a flare. For many of us stress equals flares so don't want you worrying yourself sick.

I think it's great that the sun makes you feel better. Some lupies are not sun sensitive. I hope you one of the lucky ones.
Joy
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, OA, Depression, Allergies, and benign familia tremors

When life throws you lemons....
Pick them up and throw them right back at them! :))

acquiesce
Regular Member


Date Joined Jan 2014
Total Posts : 360
   Posted 5/25/2014 7:01 AM (GMT -6)   
SpunkyMonkey is determined!

I totally understand your impatience, frustration and feeling the need to prove to your family that something is going on with you. Joy is right though and the others that have commented as well. These feelings are likely to stress you out worse and that is not a good thing. Especially when it takes some time to find a rheumy that will treat you.

I was in a constant flare from August of last year until I finally started plaquenil in March. You are walking a potentially dangerous path by inducing symptoms. Is it worth the months of pain you could endure? You don't know that more severe symptoms may not come just because they haven't before. And then, even if it does get you a diagnosis, it will still take time to get that. Months usually, even with a body that is screaming in pain and the feeling you are walking through 10 feet of peanut butter every single day.

It takes time and unfortunately nothing is going to change that save for a life threatening event which no one wants!

We are just concerned for you, that's all. :)

I'm sorry if my post seems stern or harsh, I'm a momma bear and I don't want to see you go through what many of us have.

Hang in there kiddo, find that determination in yourself and apply it to your patience level. You are strong and gutsy and will get through this. I'm sorry your family isn't supportive. xo

edited to fix my grammar :p brain fog lol

Spunkymonkey
Regular Member


Date Joined May 2014
Total Posts : 31
   Posted 5/25/2014 8:45 PM (GMT -6)   
I've been chilling out today. I didn't go outside either, I haven't felt super wonderful today and last night my chest sun rash was itching SUPER bad last night so I decided to give it a rest as well as apply some benadryl ointment that I have. I think i may have gotten a minor sunburn on my scalp so it was good to stay inside today as well for that to go away. I think for my dermatologist appointment I will just spend a an hour or so outside the day of the appointment so she can see the results that way as it is also probably more safe for me.

I appreciate your guys concerns so thank you guys for being so kind and supportive. Will a light sun rash on my chest be enough for the doctor to biopsy to confirm a presence of disease? You saw the chest pictures up there, I don't know if I can bring the rash out on my face in such a short period, that one is usually very gradual but the chest one comes on a few hours after sun exposure. So will that be enough to biopsy (if that's what the dermy suggests which I hope it is and she doesn't blow me off and give me a cream or something).

Thanks ya'll
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