How to induce an exacerbation ....?

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KitKatKittyCat
New Member


Date Joined May 2014
Total Posts : 6
   Posted 5/26/2014 7:19 PM (GMT -6)   
Okay, I should explain why....

Fairly recently I had a relapse/exacerbation/flare up/etc. And, like a bonehead, I didn't go into my neurologist and ask for another ANA test. Looking back, that probably wouldn't have been a bad idea. Alas, when you don't feel like moving and you don't have the money for a doctor's appointment, you just aren't likely to go.

I don't really know if this is Lupus for sure or not, but it's important for me to get my condition diagnosed so that I can receive treatment and MAYBE actually get something that works on the symptoms.

So....what do you do when you want to provoke an exacerbation?

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 5/27/2014 4:12 AM (GMT -6)   
I really don't want to provoke one. I would feel too rotten.

A rheumy would be able to diagnose you better than a neuro. There is a list of symptoms the rheumy goes by. If you have at least four of the eleven then you have it.
Joy
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, OA, Depression, Allergies, and benign familia tremors

When life throws you lemons....
Pick them up and throw them right back at them! :))

KitKatKittyCat
New Member


Date Joined May 2014
Total Posts : 6
   Posted 5/27/2014 8:22 AM (GMT -6)   
At my last neuro appointment, they mentioned a rheumy. Actually, I didn't see the doctor, I saw his RN so the doctor didn't say it, his staff member did. My last ANA test was from the neuro and it came back negative, but after this last one.....I'm really not sure that their attitude of "it might be some connective tissue disorder" is really the best attitude and I do want a second opinion.

Once I get the money I'm planning to go to a rheumy.

I do feel truly horrible during these events, but I just want answers. I'm just afraid of damage the longer it goes undiagnosed. Old story for everybody, eh? Thanks!
Diagnosed: Migraines, Headaches
Undiagnosed: Nerve Pain, Chronic Fatigue, Muscle Pain/Weakness, Heat and Light Sensitivity, Dizziness, Immobility, Joint Pain
Medications/Supplements: Zonisamide (for migraines supposedly), Nortriptyline (for nerve pain supposedly), vitamin D, vitamin B-12, vitamin K-2, and a Prenatal.
Upside: Never, EVER get sick. :)

Lynnwood
Veteran Member


Date Joined May 2005
Total Posts : 7725
   Posted 5/27/2014 10:33 AM (GMT -6)   
I can't really support the idea of trying to induce symptoms (a flare) on purpose.

There is no guarantee that if you "induce a flare" that things would ever calm down again. We have people on this board who are very very sick and have been flaring badly for years.

However, I do think you should see a rheumy and get all your tests, symptoms, etc, evaluated by one person in one place. Hit and miss with multiple Drs isn't usually the best approach for something that seems to be affecting you all over the body.
Lynnwood, Lupus & Sjogren's Moderator, Dx: 2002
DIAGNOSING LUPUS & LUPUS RESOURCES
"Life is far too important to be taken seriously." - Oscar Wilde

KitKatKittyCat
New Member


Date Joined May 2014
Total Posts : 6
   Posted 5/27/2014 11:34 AM (GMT -6)   
I certainly don't want it to seem like I'm trivializing those that have suffered from such intense symptoms for so long, I just want answers. My thinking was that if I could get the ANA test to come back positive (or for them to run other tests that may be revealing if it is indeed something else) then it would lead to better treatment.

Unfortunately my experience with doctors hasn't been a positive one (as I imagine many in this area of the community can sympathize with) and I was thinking that another 'flare up' might motivate the one doctor I've been able to afford to investigate further. When I can afford it though, I'll be going to a rheumy.
Diagnosed: Migraines, Headaches
Undiagnosed: Nerve Pain, Chronic Fatigue, Muscle Pain/Weakness, Heat and Light Sensitivity, Dizziness, Immobility, Joint Pain
Medications/Supplements: Nortriptyline (for nerve pain supposedly), vitamin D, vitamin B-12, vitamin K-2, and a Prenatal.
Upside: Never, EVER get sick. :)
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