aching arms and legs led weights

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hannahp
Regular Member


Date Joined May 2014
Total Posts : 22
   Posted 5/28/2014 2:24 AM (GMT -6)   
Is this part of lupus my arms and legs don't seem to work properly like every bit of strength has been sucked out even holding my phone hurts my arms

bblbt
Regular Member


Date Joined May 2014
Total Posts : 184
   Posted 5/28/2014 8:46 AM (GMT -6)   
Still not sure yet if I even have SLE or MCTD but we (docs and myself) seem to lean in that direction. My legs and arm are exactly like you describe, lead weights with weakness and poor coordination. Something as simple as turning the car's power steering wheel can make my shoulders scream. Legs are so weak at time that I start to wonder if a wheelchair's in my future - I certainly hope not. And all the muscles seem to ache or hurt.

hannahp
Regular Member


Date Joined May 2014
Total Posts : 22
   Posted 5/28/2014 10:55 AM (GMT -6)   
Aww bless u hope you get some help soon what Is MCTD? mine comes in waves I'm picking up a pattern with what people call I flare. My moods change hives can appear exhaustion is horrendous and my arms and legs feel heavy n ache like I've over worked them. Is urs all the time hun x

bblbt
Regular Member


Date Joined May 2014
Total Posts : 184
   Posted 5/28/2014 11:15 AM (GMT -6)   
The problems are constantly there but can, on occasion, get worse but it's hard to tell since my baseline condition is already pretty bad. Exhaustion is amazing and quite debilitating. I am usually driven to bed in the early afternoons to recharge for an hour or two just to get through the day. I have a bunch of other serious medical issues as well which doesn't make things easy for my doctors. Discerning what is causing what can be complicated and even doing anything about it is even an issue. Hard to believe I was a "terror" on the ice (hockey) just a few years ago and now the wind can knock me over. At least the weather's nice now.

Hope things are nailed down for you soon and some relief comes your way

hannahp
Regular Member


Date Joined May 2014
Total Posts : 22
   Posted 5/28/2014 4:59 PM (GMT -6)   
Bless you I need a nap in the afternoon most days but try not to as my kids need to be kept awake in order for them to sleep. My arms and muscle feel powerless n heavy but not all the time. I seem to have a flare up once month which it all rolls in. hope u get a diagnosis soon push and fight for aanswer. you may not be able to do hockey again but with the correct drugs and information needed u maybe one day will b able to regain your fitness. keep fighting huni :)

Talldoode
New Member


Date Joined Jun 2014
Total Posts : 16
   Posted 6/13/2014 9:59 PM (GMT -6)   
You dont mention if you are on any meds. I was put on CellCept and it did the same thing to my arms. I feel like I have no strength in them even though I can go to the gym and lift weights. So I have the strength, I just dont feel like there is strength there (if that makes sense). Happens to my thigh muscles too. If I dont hit the gym 4 times a week my legs feel like they wont hold me up. Again - only started when I got on CellCept. I am talking to my rheumy about it next week. The Cellcept also makes my fingers hurt - not the joints, the pads of the fingers. I write for a living so typing with pain in your fingers isnt a whole lot of fun.

So I wonder if this could be med related? As for the fatigue.. I have yet to meet anyone with an auto-immune disorder who says they have no fatigue. It is - IMO - the worst of the symptoms. Pain I can handle but exhaustion is a problem. And I cant nap - my brain refuses to shut off. I have tried. So I just caffeine through it and try my best to get a good nights sleep sometimes heading to bed at 8:00. So we get it and sympathize!

Hope you feel less miserable soon. That is my goal every day - not to feel better, but to feel less miserable :-). Oh my other goal is not to punch the people who say "but you dont look sick" <grin>.
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