I tend to agree that a second opinion is needed to set your mind at rest.
One way to find a Rheumy interested in Lupus is to check out www.lupus.com
and find your local chapter. Then contact the local chapter to see which of your local rhemies is on their advisory board. Those very often are the Drs actually interested in helping!!!
Lynnwood, Lupus & Sjogren's Moderator, Dx: 2002DIAGNOSING LUPUS & LUPUS RESOURCES
"Life is far too important to be taken seriously." - Oscar Wilde