I'm very sensitive to the sun too.
I use sunscreen, uv hat, uv shirt, gloves, heavy jeans, and tennis shoes.
I buy all of my clothes from coolibar.com. They're expensive but worth it to be able to spend some time outside.
I stay inside during the worse part of the day. If in stores or outside I never take my hat or gloves off. Fluorescent lighting is just as bad as sunlight for me.
I also have blackout curtains on my windows and use LED lighting in my house.
I spent yesterday outside too long on a girls day out with my niece. Maybe five hours of UV exposure total (covered up of course). I came back in hurting all over, burning up, swollen, and terrible peticula on my legs. Still feel terrible today. :-(
It's hard to live in the shade/dark. I feel like Dracula....The light! The light!
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, OA, Depression, Allergies, and benign familia tremors
When life throws you lemons....
Pick them up and throw them right back at them! :))