new, would appreciate advice

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New Member

Date Joined Jun 2014
Total Posts : 2
   Posted 6/5/2014 4:05 PM (GMT -6)   
I have been sick for 5 years… a quick overview I have dysautonomia, POTS, IC, Hashimotos, Ehlers' Danlos but more than any of that I just feel absolutely exhausted. I have flares where my muscles get weaker, my hair comes out more than normal and I have trouble even walking up stairs. Sometimes my eyes blur, my ears ring. Sometimes my kidneys hurt. Sometimes chest pain. Lots of brain fog and some memory issues and anxiety. I also have joint pain. oh yeah I also have gastroparesis. Haha otherwise I am a happy go lucky 33 year old woman with an awesome family.

So to my question… My ANA just came back positive 1:640 woooooohooooooo!!!! Maybe answers are on there way! It is homogenous pattern. They also found several high amino acids in my urine. My grandmother had lupus. However, I do not have the face rash… I do however get a rash on my upper tummy.

When the took 8 viles of blood for testing I had a really bad reaction, I started getting tremors and major chest pain. My joints started hurting. I got some finger tingling. I was more sick than normal for a couple weeks. It eventually went away but I just had my tetnus booster and that has created edema, and major joint pain. Also my lymph nodes are in pain and swollen under one arm since 3 days ago when I had shot.

Does this mess sound like Lupus? Are those test results consistent with anything else. Waiting to see Rheumotologist but not feeling patient haha

Any advice of feedback would be appreciated. Im new but you do not have to worry about scaring me I have already been living with illness for a long while ;)

Thank you!!!!!!!

Elite Member

Date Joined Jul 2009
Total Posts : 14475
   Posted 6/6/2014 2:58 AM (GMT -6)   
I don't know enough about your other illnesses to compare against lupus.
Have you read the 11 indicators of lupus?

I know it's hard to wait for answers, but it's a fact of life. Try to distract yourself until the appointment. As you may have noticed stress and worry is not good for us.
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, OA, Depression, Allergies, and benign familia tremors

When life throws you lemons....
Pick them up and throw them right back at them! :))

Veteran Member

Date Joined Mar 2006
Total Posts : 2608
   Posted 6/6/2014 2:33 PM (GMT -6)   
Ehlers Danlos and lupus are both connective tissue diseases but I'm not well versed on ED. I can't tell you whether or not you have lupus, but you do have good reason to consult with a rheumatologist. Waiting for a diagnosis is a real drag but it looks like you've been there before.

While you're waiting to see the rheumy, keep a list of any and every symptom you've have because with brain fog you're bound to forget most of them. Eat well, exercise, and rest.

Let us know what you find out.
SLE, fibro, renauds, restless leg?
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