I just don't understand this..

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HeatherinLC
New Member


Date Joined May 2014
Total Posts : 10
   Posted 6/6/2014 12:12 PM (GMT -6)   
I will try to make this as to the point as I can! I recently had bloodwork,,,ANA was positive speckled pattern. Because I also had swelling/tenderness in two of my fingers joints and my wrist tweaks out, I was referred to a Rheumy. He ordered more bloodwork and something else came back positive. He ordered a anti-dsdna test which came back as negative. He said he doesn't think I have Lupus now. He has been treating me with Plaquenil for the last month and wants me to stay on it. He indicated that he thinks I have depression and should be medicated. I KNOW I have depression-I have had it for a long time and I choose not to medicate because of side effects. I have been very upset and depressed lately BECAUSE I am exhausted (like can' t keep my eyes open at times), can't remember things (I am a teacher and I need to be able to remember!), my hair is falling out, I ache all the time, etc., etc. I am being sent to have an MRI on my hand. I am just so tired of not knowing what is wrong with me!? I honestly feel like he is insinuating that this is all in my head somehow or connected to depression in some way. I guess I am wondering if anyone has had similar frustrations and also why on earth the Dr. would leave me on Plaquenil? Thank you for listening...H

PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2607
   Posted 6/6/2014 1:37 PM (GMT -6)   
We've all been where you are and understand your frustration. I was put on plaquenil prior to my diagnosis and thought I had lupus for years before I was actually diagnosed. If your rheumy thought it was all in your head, he wouldn't have you on plaquenil. Lupus is very hard to diagnose. Keep taking the plaquenil and take care of yourself. Rest is important. Hang around here and vent all you want. We understand.
SLE, fibro, renauds, restless leg?

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 6/6/2014 2:04 PM (GMT -6)   
I was a teacher so I understand your job related frustrations.
One thing to remember, you can't have lupus then not have it. It can go quiet, but it's always there. Keep taking the plaquenil because it really helps.
Joy
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, OA, Depression, Allergies, and benign familia tremors

When life throws you lemons....
Pick them up and throw them right back at them! :))

HeatherinLC
New Member


Date Joined May 2014
Total Posts : 10
   Posted 6/7/2014 4:09 PM (GMT -6)   
Thank you for your responses. I feel better today. Yesterday was rough though. It's so strange as I don't think anyone WANTS to be diagnosed with Lupus. I just want to know what is wrong and then be treated accordingly (meds). What I wouldn't give to feel "normal" again. As in being able to get up without aching, clean what I need to clean without pooping out after an hour (geez) and actually WANTING to go do things!! The Dr. wrote me a prescription for Cymbalta but I REALLY don't want to take more stuff :(

PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2607
   Posted 6/7/2014 5:22 PM (GMT -6)   
Cymbalta saved my life. My parents died suddenly within 7 months of each other and I found myself crying all the time. It didn't numb me, but I can now handle my emotions.

I used to have the same dream you do -- just to feel normal again. Nine years later, I don't feel sick anymore. I don't have the energy I used to but am so grateful that I can do pretty much everything I want. Sun is still out of the question, I take a bunch of meds and need plenty of rest, but other that the sun problems these are things we will all eventually deal with (lupus or not) if we're lucky enough to live to a ripe old age.

Never given up hope & always take good care of yourself.
SLE, fibro, renauds, restless leg?
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