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New Member

Date Joined Jun 2014
Total Posts : 14
   Posted 6/9/2014 9:49 PM (GMT -6)   
Hello all,
I joined this forum about a week ago when I became very sick and thought I had lyme disease. My western blot came back completely negative so now I'm searching for other answers. I read that Lupus can sometimes cause positive ELISA lyme results. I also got some lab results that showed low lymphocytes, low calcium, protein in urine, and low BUN/CREA. I don't know if those mean anything. But anyway I will try to summarize my life story here.
I've had bowel issues my whole life, I remember severe constipation at 2 years old. I was told I had IBS as that's what everyone in my family has. I used to alternate between diarrhea and constipation, but recently its always constipation, causing bleeding every time.
The anxiety disorder kicked in around 2nd grade, I always figured that was hereditary as well. In 7th grade I ended up in the ER for a ruptured ovarian cyst, was then but on birth control and have only had 1 or 2 episodes since. I'm not sure exactly when but somewhere after 8th grade I became increasingly tired. I started needing a nap everyday. I always figured this was just a normal teenage thing, but it got worse throughout high school. By 11th and 12th grade I could barely get through a school day. I've always had trouble falling asleep, even since I was little. So I mostly thought it was from lack of sleep.
10th grade I got swine flu, was absolutely miserable and in so much pain. 11th grade I ended up in the ER to find out I had a kidney stone.
One summer, I think after 10th grade I developed sun sensitivity. When I burned, I would get this horrible, hivy rash, mostly on my chest. I get like that all the time now.
I then went to college, and I had a really hard time adjusting so I'm sure I was depressed then too, but all I could ever do was sleep. Shortly after going to college I developed itchiness and hives that were really random and began to drive me crazy. I saw a dermatologist who told me to take an antihistamine everyday. So I did, and that works for it, but if i stop for one day I am itchy all over. Sophomore year came around and it was the same old thing, but I was happier then. I would wake up and drag myself to one class, and need to go back to sleep for hours. I never feel rested. I also get body aches, especially when I'm really tired, its a flu-like feeling, not really achy joints. Second semester, this past January, I began having headaches everyday. I went to a GP by my school and she did a ton of bloodwork, all was normal. She treated me for a sinus infection, which didn't clear up, then said it may be chronic sinusitis. At the same time I was dealing with vaginal irritation and white discharge. This had been going on awhile, along with urethral pain. I did monistat, didn't work so she gave me diflucan, didn't work, and then I saw my gyno who gave me antibiotics which helped a little bit but not completely. I just saw an ENT about the sinusitis and got allergy testing to see about the random itchiness and rash. My sinuses are fine, despite the everyday headaches, and I have a severe ragweed allergy, but it doesn't really explain the constant itchiness. I've also always had a very sensitive scalp, and flakes. But recently, the flakes are worse and there is a constant flaky patch by my hairline. It also becomes very itchy, espiecally if I don't take claritin. I got some medicated shampoo but its not really working. And then last week I became very sick. I had body aches worse than my normal, to the point where I couldn't sit still and was rocking back and forth all night. My fever became high and we went to the ER. was treated for low potassium and then my lyme ELISA was positive, so I started doxycycline and then dove into research about lyme disease, convinced that must be the explanation for all of my problems. But the western blot was all negative, and I know these can sometimes be false but I don't know. The labs I posted at the beginning were from the ER visit. So now here I next plan is to call a rheumatologist but I wanted to post my story here to see if anyone has any ideas based on everything I've you think it could be lupus or something else? Thanks to anyone who read this entire thing and for help in advance!!!!


Elite Member

Date Joined Jul 2009
Total Posts : 14475
   Posted 6/9/2014 10:03 PM (GMT -6)   
I know lupus is tricky to diagnose but you're on the right path to getting diagnosed. A rheumy will be able to tell if it's lupus or not.
Sometimes it takes patience and never giving up until you get an answer.

We're here for support until you find a solution and afterwards.
I hope you're able to find answers and that you will start feeling better soon.
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, OA, Depression, Allergies, and benign familia tremors

When life throws you lemons....
Pick them up and throw them right back at them! :))

New Member

Date Joined Jun 2014
Total Posts : 14
   Posted 6/9/2014 10:18 PM (GMT -6)   
Thanks so much!! It is definitely very hard, as everyone thinks I'm crazy and a hypochondriac and that it's all anxiety. My family, friends, and doctors all think I'm nuts and it's very frustrating and hard not to start to believe them when you are getting no answers.
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