Postive ANA - No diagnosis

Second Opinion - 100.0%
Re-run Tests - 0.0%

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New Member

Date Joined Jun 2014
Total Posts : 3
   Posted 6/11/2014 12:38 PM (GMT -6)   
I am grasping at straws and hoping someone will be able to point me in the right direction. In June of 2013 I had finally had enough of the pain and went to my GP. She did an exam and listened to my symptoms; fatigue, morning stiffness, pain getting up and down from a chair, severe joint pain... the list goes on and on and on.... She ordered an ANA test. My results came back positive with a Positive ANA screen and the titer test was 1:160 - Nucleolar. She referred me to a Rheumotologist, who told me I had ostioarthris - gave me cymbalta and sent me on my way....
Here I am a year later and getting worse.... I have large lumps on the tops of both my hands, on the first joint on my first three fingers, and now my wrists.... these are very painfull... and just adding to the rest of the pain my body is in.... Should I get a second opinion, maybe ask my GP to re-run the tests to see if there has been a change? Any advise would be welcomed.... I cannot take any of the non-steriodal anti inflamitory drugs because of my stomach... seems I have too much advil and tylenol over the years...  I have a stomach bleed, which I have gotten under control... but do not want to go back there...... Help?

Veteran Member

Date Joined May 2005
Total Posts : 7723
   Posted 6/11/2014 12:49 PM (GMT -6)   
I would suggest a new review by a lupus-friendly rheumy.

Check with and find your local chapter. Then call them and ask for the list of Drs who volunteer with them. Choose from the list for best results. (Don't ask for a recommendation, they can't endorse any one Dr - but if a local group meets individuals at the meeting may discuss rheumies with you.)
Lynnwood, Lupus & Sjogren's Moderator, Dx: 2002
"Life is far too important to be taken seriously." - Oscar Wilde

New Member

Date Joined Jun 2014
Total Posts : 3
   Posted 6/11/2014 1:22 PM (GMT -6)   
Thank you so much for the quick response.... I will check it out today!

Elite Member

Date Joined Jul 2009
Total Posts : 14475
   Posted 6/11/2014 5:01 PM (GMT -6)   
Good luck in finding an answer.
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, OA, Depression, Allergies, and benign familia tremors

When life throws you lemons....
Pick them up and throw them right back at them! :))

Regular Member

Date Joined May 2007
Total Posts : 482
   Posted 6/11/2014 7:30 PM (GMT -6)   
Second opinion! It took several doctors before I was given a diagnosis. Please do not give up. It often takes a while before enough symptoms present to make a clear cut diagnosis. I hope you feel better, soon.
Take care, Fran

Dx: Lupus, sjogren's, celiac, severe allergies, asthma, GERD
Daily Meds: Plaquenil, Zyrtec, Nasacort, Prozac, Ambien CR, CellCept, Zantac, Bactrim, Q-Var, Restasis, Albuterol
Daily Supplements: Calcium, B-100 Complex, Vitamin D, Daily Vitamins.
As Needed Meds: Epinephrine, Benadryl, Proventil, Tylenal, Vicodin, Prednisone.

Regular Member

Date Joined May 2012
Total Posts : 277
   Posted 6/11/2014 9:35 PM (GMT -6)   
Absolutely get a second opinion. I have a positive ANA of 1:320 speckled, but nothing else (test wise). The first rheumatologist I went to said: "You have Ehler's-Danlos. Go look it up and find a support group. I can't help you." My current Rheumy listens, refers me to drs that specialize in the particular symptoms I might be having (joint pain that goes beyond rheumatological swelling) and encourages me to call when things get bad. You do not have to live in mystery, but do realize that many times, the diagnosis takes a long time.
Frequent lurker, Part time poster.

Known Problems: Sjögren's, Hypermobility, UCTD, Arthritis, Hypothyroid, Migraines, Eye Problems, Skin Issues, Depression, PTSD, Anxiety, Autism (high functioning), and Gastric Bypass Surgery (affects what medicines I can take and for how long).

Suspected: Psoriatric Arthritis, Lupus, Fibromyalgia, Epilepsy, Endolymphatic Hydrops, and whatever they decide next
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