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Regular Member

Date Joined Jun 2008
Total Posts : 59
   Posted 6/14/2014 9:12 AM (GMT -6)   
Good day all, hope things are going well for you. I have a problem that I hope I can gain some insight on. It is my head, I have been having such a time with head pain and pressure and it is making it so hard to do anything. I find the pain in my neck, ears, back and top of my head and it affects my vision so I can be quite disoriented. I can't think, it's like my brain is asleep. There is pressure in my head and at the same time a kind of numbness. I have talked with my rheumy before about cognitive stuff as it started a long time ago, she assured me that it is lupus. The small changes cause me to do things I normally would not, I am not able to think clearly, like mixing up people's names and forgetting words or spacing out in the middle of a conversation. I find myself at this point just wanting to stay in a constant sleep as it is becoming unbearable. But even my sleep is interrupted with crazy mixed up thoughts. The whole thing quite feels like someone is stirring my brain.
Can you relate? Is this something I need to get addressed right away or can I wait a bit longer for my rheumy appointment on July 9?
thanks so much for your support, Sandra

Post Edited (hanginin) : 6/14/2014 9:12:52 AM (GMT-6)

Elite Member

Date Joined Jul 2009
Total Posts : 14475
   Posted 6/14/2014 6:02 PM (GMT -6)   
Sounds like bad brain fog.
I get it bad like that myself. It's like your head's full of stuffing. You can discuss this with your rheumy, but there's not much to do except rest your mind and don't push it.
I find when I'm like this I just rest and don't push through it. It seems to make it worse and frustrates me.
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, OA, Depression, Allergies, and benign familia tremors

When life throws you lemons....
Pick them up and throw them right back at them! :))

New Member

Date Joined Jun 2014
Total Posts : 13
   Posted 6/24/2014 10:02 PM (GMT -6)   
Although just recently diagnosed with SLE, when I mentioned the same exact symptoms to my rheumy, especially the intense head pain/pressure and the constant mixing things up, even forgetting my left and right at times. She decided to refer me right away to a neurologist, you might ask your rheumy if this might be the path you need to take as well.
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