Lupus and Allergies (hay fever etc) - your experiences?

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Talldoode
New Member


Date Joined Jun 2014
Total Posts : 16
   Posted 6/22/2014 1:19 PM (GMT -6)   
Hi everyone,

This is a "comparing notes" post. I didnt have any allergies until about 15 years ago. They were controllable with Flonase spray until my lupus was triggered five years ago. Now, every time the wind blows I am pretty miserable. Stuffy, burning eyes, dry cough, difficulty breathing. Sorta sucks. Makes sleeping a challenge too.

What I find funny (well, in a sad funny way) is that allergies are an immune response right? And we are suppressing my immune system (cell cept, rituxan and prednisone) so why on earth would my allergies be getting worse and not better? :-).

Have any of you noticed you allergies are worse than they used to be? Now I am on Singular at night, Flonase twice a day and a Claritin in the morning if it is too bad. I also net-pot at least twice a day.

Thanks!

/tall

FW
Regular Member


Date Joined May 2007
Total Posts : 482
   Posted 6/22/2014 6:38 PM (GMT -6)   
Oh yes, I understand exactly where you are coming from. I have had allergies all my life but they have worsened considerably since the lupus nightmare/diagnosis. Seasonal (all of them), foods, medicines, environmental, chemical products, etc. My immune system goes berserk. I used to self inject with small amounts of epinephrine when the allergies were out of control. That way I avoided the whole epipen/ambulance experience (usually). about 4 years ago I started CellCept and that seemed to get everything back under control. Have not needed the epi in over a year. Lately things are starting to seem a little rough but both my rheumy and allergist are monitoring closely so we shall see.
Good Luck - hope you feel better.
Take care, Fran

Dx: Lupus, sjogren's, celiac, severe allergies, asthma, GERD
Daily Meds: Plaquenil, Zyrtec, Nasacort, Prozac, Ambien CR, CellCept, Zantac, Bactrim, Q-Var, Restasis, Albuterol
Daily Supplements: Calcium, B-100 Complex, Vitamin D, Daily Vitamins.
As Needed Meds: Epinephrine, Benadryl, Proventil, Tylenal, Vicodin, Prednisone.

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 6/23/2014 1:20 AM (GMT -6)   
Yes, my allergies are definately worse.
I have several family members staying this week at our house. Everyone of them believes in the "smell goodies". I'm walking around wheezing and my eyes tearing up. Ugh!
Joy
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, OA, Depression, Allergies, and benign familia tremors

When life throws you lemons....
Pick them up and throw them right back at them! :))

PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2607
   Posted 6/23/2014 5:19 AM (GMT -6)   
Your immune system is suppressed so it's not as efficient when fighting off allergies....And colds, viruses, etc. This is why immunosupressed folks need to stay away from people with contagious diseases.
SLE, fibro, renauds, restless leg?

Talldoode
New Member


Date Joined Jun 2014
Total Posts : 16
   Posted 6/23/2014 10:42 AM (GMT -6)   
Ahhh, but allergies are not contagious diseases. I get what you mean about colds and flu and "catching them" because our immune systems are suppressed - but allergies are the immune systems response to environmental allergens. The immune system ramps up to combat the allergen which causes the symptoms.

So still not making any sense that those of us being medically suppressed have worse allergies.

Another way to put this - allergy response is the same as the immune system attacking my kidneys... it is the immune system. So when we suppress my immune system it helps the kidneys because I have less of an immune response. So less of an immune response should be less allergies :-).

I am thinking of going to see an allergy specialist in the middle of the summer (when less people are trying to get in to see them) and see what they can do for me (with the blessings of my Rheumy of course).

cheers

/tall

Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7720
   Posted 6/23/2014 11:16 AM (GMT -6)   
Well, if it was my home and people were walking around smelling up the area and aggravating my allergies.... I think I'd be walking around finding everything smelly and placing it outside the back door. They can retrieve it when they leave.

It is YOUR home!!!
Lynnwood, Lupus & Sjogren's Moderator, Dx: 2002
DIAGNOSING LUPUS & LUPUS RESOURCES
"Life is far too important to be taken seriously." - Oscar Wilde

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 6/23/2014 10:30 PM (GMT -6)   
It's their soaps and shampoos that are killing me.
I have my hypo-allergenic soap and shampoo out for them, but they refuse to use them.
Joy
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, OA, Depression, Allergies, and benign familia tremors

When life throws you lemons....
Pick them up and throw them right back at them! :))

Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7720
   Posted 6/23/2014 11:02 PM (GMT -6)   
Yup, I'd include soap & shampoo in the pile outside.

But I do understand that not everyone can do that to their friends and family. I figure I'd rather be alone than be friends with people who respected me so little. Not always possible, and certainly doesn't help when I actually do get lonely.

Balances, balances....
Lynnwood, Lupus & Sjogren's Moderator, Dx: 2002
DIAGNOSING LUPUS & LUPUS RESOURCES
"Life is far too important to be taken seriously." - Oscar Wilde

Barbara Lee
Veteran Member


Date Joined Sep 2003
Total Posts : 2889
   Posted 6/24/2014 8:34 PM (GMT -6)   
My daughter suffers from allergies really bad. I say that she's allergic to "God's Green Earth", as she seems allergic to everything. I know when we were working thru her allergies, the Allergist explained to me that and I quote, "what really causes allergic reactions is your own immune system. It mistakes these innocuous allergens for a serious threat and attacks them. The symptoms of an allergy are the result of a body's misguided assault".

That having allergies may be genetic, but they don't know that for sure. However, if you think about the statement above, allergies are started by the bodies "misguided assault". That's the same thing that happens to us with our lupus. It was explained to me that when you're exposed to something that you're allergic to, you may be exposed many times and not have a reaction and then BAM you get hit with one.

I know that my hubby, and his father have allergies really bad. Hence, our daughter has really bad allergies, is that because they do, I'm betting on it. She also has had a positive ANA since she was like 7 and is now 21 and still shows signs of lupus at times. Even though I have RA/Lupus which are autoimmune diseases, my Doctor believes I have an underlying immunodeficiency disorder in addition to my autoimmune disease. So, it's possible that even tho you're taking medication to suppress your immune system it's not affecting your allergies.

Of course, this is all speculation on my part. I think it's a great idea if you can get into to see the Allergist over the summer, I'm not sure if you were aware of this or not, but the Allergist is also considered Immunologist too. If you go to see them I hope they can help you figure this out and hopefully, get your allergies under control. For my daughter the best thing that worked for her was allergy shots. She took them for just over 4 years and her life was so much nicer, but once she turned 17 she refused to have anymore shots. I can now say her allergies are the worst they've ever been and she's TOTALLY MISERABLE.

I hope you start to feel better soon, and please let us know what the Doctor says or you find out.

Hugs,
Barbara
DX- RA, Lupus, Fibro, LGL Leukemia, Obstructive & Central Sleep Apnea, Pulmonary Hypertension, Bells Palsy, Gastroparsis, Blood Clots, Glaucoma, Chronic Pericarditis & Pleurisy, Severe Anemia. Way to many medications to list.

acquiesce
Regular Member


Date Joined Jan 2014
Total Posts : 360
   Posted 6/25/2014 7:38 AM (GMT -6)   
I started out allergic to cold temperatures in my teens. Almost died from shock so many times I can't count.

Now I'm allergic to certain flowers after being a florist for 20 yrs. I also have asthma, hay fever, contact dermatitis, eczema, severe reactions to bees and deer flies, mosquitos and sometimes I break out in hives simply from stress.

It's all related to histamine levels and the immune system. When the immune system is in over drive it makes sense that any invader or allergen will be met with a greater response of histamine. That is why our tolerance levels wax and wane so to speak. When I'm flaring I have more allergic reactions.

Acupuncture has helped me a lot with my allergies and after the plaquenil kicked in it started to help too. But now I'm flaring and feel like a giant pile of craptasticness and am in full tilt rashville. Woot! Just typing is leaving me short of breath.

No more posts for me today! Hope everyone is doing well - hugs!

Welcome Talldoode :)
Be who you are and say what you feel because those who mind don't matter and those who matter don't mind - Dr. Seuss

Barbara Lee
Veteran Member


Date Joined Sep 2003
Total Posts : 2889
   Posted 6/25/2014 2:38 PM (GMT -6)   
Yep, it's common to have allergies, asthma, and eczema. My daughter suffers from all three of these and has since she was a baby. I mean her allergies were full in bloom at 1 month old. The doctors couldn't figure out why she was always so stuffy.

She wasn't tested for her allergies until she was like 7 so little did we know she was allergic to cats, and all the different grasses and trees out there. She's always stuffy no matter what, unless she's doing allergy shots.

I really hate to hear that you've had a lot of trouble acquiesce with your allergies and such. I agree with you that with our bodies flaring it would make allergies worse. I hope that you start feeling better and Tall I hope you've managed to get an appointment to see the allergist to get some answers as to why your allergies are so bad right now.

Hugs,
Barbara
DX- RA, Lupus, Fibro, LGL Leukemia, Obstructive & Central Sleep Apnea, Pulmonary Hypertension, Bells Palsy, Gastroparsis, Blood Clots, Glaucoma, Chronic Pericarditis & Pleurisy, Severe Anemia. Way to many medications to list.

acquiesce
Regular Member


Date Joined Jan 2014
Total Posts : 360
   Posted 6/26/2014 4:49 AM (GMT -6)   
Thanks Barbara :)

My allergist explained it to me this way, your histamine sensitivity and level can be effected by even a bee sting or bug bite that can set it off and then POW, you react to everything. Quicker reactions, more severe. So maybe although immune suppressed it is still a precarious balance with allergies.
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