how long does the flare up last
natural remedy - 0.0% - 0 votes
meditation - 0.0% - 0 votes
Posted 6/22/2014 2:55 PM (GMT -7)
I am a store manager
I have been home for a month today with lupus and fibromyalgia I have so much going on in my body right now it is crazy
headache , fever burning sensation on my shoulders and neck eye pain sharp pain to my head fatigued just drain. I thought it would be better by now
it is even hard at times to try to hold a pen to write my arms and muscles feels so weak constantly going to urinate at night chest pain
it does not seem like I will make it back to work
hopefully the doc will try new meds when I go Friday
please give info u have tried to relieve some of any of my symptoms
in pain as I type here comes the heat
Posted 6/23/2014 12:27 AM (GMT -7)
Being a store manager mean constant exposure to fluorescent lighting. Fluorescent lighting is a big no-no for many of us lupies. They emmit UV rays which make us sicker. Are you covering up with a hat and sunscreen? I'm very sensitive and have to buy special clothing too even then I have to limit my time in stores and outside.
What kind of medicines are you taking?
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, OA, Depression, Allergies, and benign familia tremors
When life throws you lemons....
Pick them up and throw them right back at them! :))
Posted 6/23/2014 4:21 AM (GMT -7)
When in a flare, your rheumy may need to tweak your meds.
SLE, fibro, renauds, restless leg?
Posted 6/24/2014 7:54 PM (GMT -7)
Sounds like your in a major flare up. You didn't mention if you're on any medications, like Patty said when in a flare your Dr may have to adjust your medications. If you're not on any medications you may need to start some, you'll be surprised at how well you'll feel once the medications start to work.
If you're on medication now, how long have you been on them and which ones are you taking? The medication that is most commonly started first and has the least amount of side effects is Plaquenil. This medication can take up to 6 months before you really notice that you're felling better.
The burning sensation in your muscles, shoulders, and neck all are your typical fibro stuff. I swear at times I have a little fairy inside my shoulders with a lighter and they are burning the shoulders away. For me with my muscles issues, headaches, and pain from my fibro are best dealt with massage. I get a massage twice a month also heat helps with the pain in these areas. Ice only makes me tighter and I feel worse with the stuff.
The headaches can come from either one of your conditions, as well as the fatigue. Each patient is so different that's why lupus is known as the disease of 1,000 faces. Some patients have mild cases and do not required medications and others (like me) flare all the time and take boat loads of medications. Try not to get to discouraged. I know easier said than done, but we all know how you are feeling. I hope that the Dr is able to try something different for you and you start feeling better NOW.
Come and vent and ask questions, someone here will have a suggestion for you one way or the other. Hang in there and let us know what the Dr has to say.
DX- RA, Lupus, Fibro, LGL Leukemia, Obstructive & Central Sleep Apnea, Pulmonary Hypertension, Bells Palsy, Gastroparsis, Blood Clots, Glaucoma, Chronic Pericarditis & Pleurisy, Severe Anemia. Way to many medications to list.