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Paeres Leigh
New Member


Date Joined Jun 2014
Total Posts : 1
   Posted 6/22/2014 5:37 PM (GMT -6)   
Greetings

I was diagnosed with SLE in 2001 and dealt with it throughout the years. A turning point came in 2006 when I had to resign from a job I loved because I was facing kidney failure. Close to a year after that I started hemodialysis. It's been rough, my husband and I weren't getting along very well and my son at the time was only about 8 years old.

The dialysis treatments helped and I really don't have many complaints about that. Mostly with the constant lupus flare-ups that hindered me from doing my regular activities.

Around March 2010 my doctor discovered that I needed to have one of my heart valves replaced and that was another ordeal that had me hospitalized a little over a month.

So after surviving, yet making another recovery I didn't think anything else could go wrong with my illness....WRONG, dead wrong. In November 2011, the day before Thanksgiving I had to have a below the knee amputation of my left leg due to poor circulation. It started with a dark spot on the corner of my big toe and continued to spread. I even tried by the recommendation of my doctor to have hyperbaric treatments daily to help save my leg, but the pain was so awful I couldn't stand it no longer than about a month. One morning I had an appoint. with my vascular surgeon and told her that I wanted to go ahead with the amputation.

In June of 2012 I had a repeat performance with my right leg.

Thankfully I am successful with prosthetics (and the money I'm saving because I no longer get pedicures, lol). I'm driving and getting around pretty good.

I ended up getting a divorce but it was mutual. My son will be 16 in a few months and he's been a tremendous help. My mom and close friends help us but I've been pretty independent. I still get depressed from time to time but it's been less as time goes on.

I know this post has turned into a novel but hey, lupus isn't quite the short story type. Thanks so much for taking the time to read my story and I look forward to communicating with you. smilewinkgrin

Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7720
   Posted 6/22/2014 8:45 PM (GMT -6)   
Welcome to the Lupus Forum at Healing Well. You'll find we have members at all different points along the lupus journey!

Jump on in whenever you have a comment or question!
Lynnwood, Lupus & Sjogren's Moderator, Dx: 2002
DIAGNOSING LUPUS & LUPUS RESOURCES
"Life is far too important to be taken seriously." - Oscar Wilde

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 6/23/2014 1:15 AM (GMT -6)   
Welcome to our little corner of HW.
I'm 46, single with no kids. I've been diagnosed about three years now. So far I have degenerative arthritis in my fingers in my lower back.
Joy
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, OA, Depression, Allergies, and benign familia tremors

When life throws you lemons....
Pick them up and throw them right back at them! :))

tenXmom
Regular Member


Date Joined Jan 2013
Total Posts : 62
   Posted 6/26/2014 10:40 PM (GMT -6)   
You have been through the ringer!!

You must be incredibly strong and determined!
Laura aka tenXmom
AI Hep - AI Pancreatis - Lupus - RA & Osteoarthritis - Reynaud's - Fibro - AIED - TMJ - Sjogren's - and whatever is going on with the gallbladder...
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