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LupieICURN
Regular Member


Date Joined Jan 2013
Total Posts : 47
   Posted 6/23/2014 9:42 AM (GMT -6)   
Hi everyone,
Haven't posted in a long while but have had some things regarding pregnancy on my mind so figured I'd bring it here. I'm currently trying to wean off of all my meds so I can eventually get pregnant. My husband and I have been married for 3 years and together for 11 and its slowly starting to feel like the time is right. I changed jobs from being an ICU RN to a tele-ICU RN where I sit most of my shift, in hopes that this would decrease my pain and fatigue. I have started weaning the dose of my mtx shots. I'm hoping I can get off of them without too big of a snag. I had been on 25 mg weekly and have been able to get down to 15 mg so far. I'm debating on whether or not to decrease the dose again this week because I was in the ER Saturday with possible pericarditis. My biggest concern however is the lyrica. I've experienced the withdraw symptoms from missing a dose and it is agonizing! I know I have to wean so it may not be so bad if I'm taking a lower dose instead of missing one all together but I am still worried about when I have to go off all together. Has anyone been taken off of lyrica before? Any tips on weaning medications? Also, I'm trying to convince myself that having to take 1 or 2 tramadols a day really is not bad. I don't know why I'm so worried about it.. guess its just the thought in the back of my mind that I have to take pain meds. Anyway.. Hope everyone has as pain free of a day as they can!!

Nicole- 25, married, no children
Endometriosis, Lupus, Raynaud's, Degenerative Disc, Migraines
Meds- Multivitamin daily, Lo Loestrin Fe daily, Plaquenil daily, Prilosec daily, Lyrica BID, Folic acid daily, MTX injections weekly, Celebrex BID prn, Tylenol prn, Tramadol prn, Dilaudid prn, Zofran prn

~Don't worry about tomorrow, tomorrow will worry about itself. Every day has enough trouble~

Lynnwood
Veteran Member


Date Joined May 2005
Total Posts : 7723
   Posted 6/23/2014 12:13 PM (GMT -6)   
I haven't had to go off of Lyrica, but successfully am off of prednisone, plaquenil and some others.

My best advice is to make sure you check in with your Drs and follow their directions precisely as to how to get off these medications. Sometimes meds have to be ramped down VERY slowly to let the body know it needs to start producing equivalents.
Lynnwood, Lupus & Sjogren's Moderator, Dx: 2002
DIAGNOSING LUPUS & LUPUS RESOURCES
"Life is far too important to be taken seriously." - Oscar Wilde

Barbara Lee
Veteran Member


Date Joined Sep 2003
Total Posts : 2889
   Posted 6/24/2014 9:12 PM (GMT -6)   
Hi Nicole:

I'm sorry that you're having issues with coming off the Lyrica, I was on this medication briefly, really not long enough to have to wean off of it. I couldn't handle taking this drug at all, my balance was terrible on it. As for prednisone I've never been able to wean off the stupid stuff.

I've been on prednisone for over 14 years now. I've never been on a dose less than 10mgs and that only lasted 2 weeks. I had to up the dosage back to 15 mgs or higher. I like you end up with pericarditis every time I try to cut back on my prednisone. I even take a gout medication to treat chronic pericarditis. It's called Colchicine 0.6mg you may want to talk to your Rheumy or Cardio Doctor about trying this to treat your bouts of pericarditis.

Like Lynnwood said sometimes it takes a very long time to wean off some of our medications. If you've not talked with your Doctor about it yet, please do so. Hopefully, they'll be able to offer you something that will help you bring the amount down and before you know it you'll be pregnant.

As for taking a couple of tranadols a day, that's not a thing to get to worried about. It sounds like you have a busy job and you deal with a fair amount of pain. If taking 2 tramadols daily helps you get through your day then so be it. I've been on pain medication for sometime now, and I know I have days that I wouldn't get through my day w/o them period. I take a long acting and have short acting pain medications. I take my long acting 3 times daily. I'm allowed up to 6 of my short acting daily but I try to limit the amount of short acting ones I take daily. Some days, I just suck it up and deal with my pain, other days it's impossible to do.

I know that you're wanting to have a baby, and you want to be medication free during your pregnancy. Sometimes though that doesn't happen, I know there are a couple of ladies on the chronic pain forum who have had babies and were on much stronger pain medications during their pregnancy. You could put a post in over there and ask any questions you may have about taking them and being pregnant.

Good luck with your taper and I hope that you will have a new baby in your home before you know it. Try not to feel bad that you have to take something to help you cope with your disease. We didn't ask to have lupus and all that comes with it. Take care and I hope this helped somewhat.

Hugs,
Barbara
DX- RA, Lupus, Fibro, LGL Leukemia, Obstructive & Central Sleep Apnea, Pulmonary Hypertension, Bells Palsy, Gastroparsis, Blood Clots, Glaucoma, Chronic Pericarditis & Pleurisy, Severe Anemia. Way to many medications to list.

LupieICURN
Regular Member


Date Joined Jan 2013
Total Posts : 47
   Posted 6/27/2014 8:42 AM (GMT -6)   
Thanks so much ladies! I have talked with my rheumy quite extensively about weaning off my meds and having a baby (she just had a baby so its easy to have the conversation). The sad thing is.. she is leaving and now I'm going to be going to a new rheumy and I hope that she is as understanding. At this point, I'm extremely discouraged. I've been sick sick for 9 days now and I'm over it!! I think sometimes if I wasn't on all these meds I wouldn't be sick but then when my body starts hurting and I can barely function, I change my mind. One day I'll be able to get off and have a baby.. It just won't be today :( How do we ever find a balance and what we can deal with day to day?
Nicole- 25, married, no children
Endometriosis, Lupus, Raynaud's, Degenerative Disc, Migraines
Meds- Multivitamin daily, Lo Loestrin Fe daily, Plaquenil daily, Prilosec daily, Lyrica BID, Folic acid daily, MTX injections weekly, Celebrex BID prn, Tylenol prn, Tramadol prn, Dilaudid prn, Zofran prn

~Don't worry about tomorrow, tomorrow will worry about itself. Every day has enough trouble~

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 6/27/2014 11:16 AM (GMT -6)   
It's a juggling act to handle all of this. Even to best jugglers drop a plate now and then.

If you want a child so bad, how about adoption? You both get the best of both ends...a child gets a loving home and you don't have to sacrifice your health.
Joy
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, OA, Depression, Allergies, and benign familia tremors

When life throws you lemons....
Pick them up and throw them right back at them! :))

acquiesce
Regular Member


Date Joined Jan 2014
Total Posts : 360
   Posted 6/27/2014 12:50 PM (GMT -6)   
I fostered children and adopted my daughter that way. She just turned 12. God help me, she is acting like a teen already!!! Attitude!

She is my beautiful miracle chosen child and she came to me at 23 hours old.

You could consider fostering and possibly adoption especially if you are considering leaving your RN job. It's incredibly rewarding and challenging and with your experience as a nurse you could help newborns with challenges such as my daughter had. She was exposed to drugs in utero.

Adoption is awesome. No swollen ankles, morning sickness, they get delivered right to your front door! Bam! A baby! Woot!
Be who you are and say what you feel because those who mind don't matter and those who matter don't mind - Dr. Seuss
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