Update, still among the living!

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Barbara Lee
Veteran Member


Date Joined Sep 2003
Total Posts : 2889
   Posted 6/24/2014 7:08 PM (GMT -6)   
Hi All:

Just wanted to start a new post and let you know how things are going for me. Yesterday, I saw the surgeon and he removed my stitches from my incision. It was quite painful as they had been in almost 3 weeks. Then the Dr had the orthro tech put me into another cast. He told him to push my foot more into a normal position. Talk about hurt it stretched my Achilles tendon and boy oh boy it hurt big time.

So, I'm in this current cast for 3 more weeks. I must spend the next 3 weeks w/o putting any weight on my foot. My surgeon told me that the first 3 months post op my foot will hurt just as badly as it did prior to the surgery. The next 3 months I should start to see improvement in my pain in the foot. He did tell me though that we won't know until I'm 1 year out if the surgery did me any good at all. He assured me he's in this with me for the long haul.

At the 6 month mark we will try to figure out if the left side of the left ankle is better or not. If not he will consider going in on that side and finish the repairs. He wasn't able to get to that side during my surgery as they had me laying on my side. He didn't want to roll me over and cut me on the other side. He was worried about me having 2 incisions on the foot.

Needless, to say it's really hard to get around. Hubby prefers I not wheel myself into the kitchen because of the wood floors. I was starving when he got home tonight. Just got a bologna sandwich for dinner and some Cheetos. I managed to fix myself 2 soft baked pretzels this AM and some cherries. That's all I've had to eat today.

I hate to ask for anything, my hubby works hard all day long and then to come home and wait on me seems like it's to much for him. He seems to be under a lot of stress already and I hate putting more on him, so I just suck it up and cope on my own. Heck, I can afford to lose some weight anyway.

I know that Lynnwood told you all about our having to put our cat, Grady, down last Thursday. Today was my first day in the house alone. My daughter went back to school this morning, and hubby was at work. I have to say, it was a hard day here at home. I kept expecting my buddy to jump up on my lap and paw at me for something to eat. He was part Siamese so he talked a lot to me and it was way way to quiet here in the house. I'm feeling pretty guilty that we didn't put him down sooner, he was so sick and miserable. Hubby is feeling the opposite he thinks we put him down way to soon, that we didn't let him get sick enough.

I feel so alone right now, my Mom, Dad, and Grady all told me they loved me and showed me by hugging and spending time with me. Grady, was a big lap cat and even though he didn't fit on my lap to well, he sat on it anyway. My hubby and daughter are more cold with their affections. I rarely get hugs from either of them, and never hear the words "I love you", unless I've said them first. I know that the two of them love me, they both help care for me and fetch things for me and such but it's nice to hear that you're loved. It's nice to be embraced and feel arms around you letting you know that you're loved.

I feel this huge black cloud coming over me, I'm dealing with depression on a daily basis as it is. I've been seeing a therapist for almost a year now. With my Grady gone, I'm all alone in the house and feeling like I have NO ONE. My Mom and Dad have passed away and now the cat. The three beings that I know LOVED ME are no longer here to let me know that. I'm in pain day in and day out, I feel like a HUGE burden on my family these days. I so wanted to cross on over with Grady last Thursday.

I'm still flaring pretty bad, the medicine team that took care of me in the hospital, cut me off my stress dose steroids to quickly. Ever since then I've been flaring up, my kidneys are hurting and the joint pain is terrible. I've canceled all my appointments until the week of the 14th of July. My daughter will be home that week and will be able to take me to my appointments. I really didn't want hubby to have to take anymore sick leave to take me anywhere.

Because, I have to use my wheelchair in the house, I'm pretty much confined to our bedroom. I rub the sides of the chair on the wooden door frames and hubby gets upset. So, I only leave our bedroom if I need food and no one is here. Hubby, will push me out into the family room on occasion in the evenings, I'm going crazy looking at them same four walls.

Hubby's birthday is Sunday, and I had bought his birthday card prior to Grady's passing and I had to throw it out. I had bought a card from the cat and a card with a cat on it from me. Since, he's feeling guilty about putting the cat down I can't give them to him.

Well, I guess that's enough of my venting, I just had to get this stuff off my chest. I did get beautiful flowers from my Physical therapist which I thought was really nice. Basically, the foot hurts like heck, back, hips, neck, and kidneys are aching terribly bad. I'm sad, lonely, depressed and missing my cat big time. He was in our lives for 18 years 5 months and that's a long time to be with your family. I only pray with time the hurt lessens for me. I'm worrying about my daughter and how she's coping with the cats passing. I'm hating my cast and not being able to put weight on my foot yet. 3 more weeks feels like an eternity for me.

I want to thank each and everyone of you for your support, prayers, positive energy, and love towards me. If I didn't have all of you in my life, I know that I'd truly be all alone. I hope you are all having better days than I am and that your pain is much less than mine. Please don't give up the fight in your quest to figure out what you have, or getting the correct treatment.

I do have a request, my pulmonary rehab therapist grandson has a very aggressive form of brain cancer. When they sent him home after chemo last week, the Doctors informed the family that his cancer has spread throughout his whole body and he needs hospice. Brayden is only 5 years old and he won't be with us to much longer. His parents have taken him to CA to see a holistic doctor to attempt to heal him. Please keep him and the family in your thoughts. If you pray, please pray, if you send positive energy then please do that for him. When we think we have it bad there is always someone who is worse off than we are.

Thank you and have a good night.

Hugs,
Barbara
DX- RA, Lupus, Fibro, LGL Leukemia, Obstructive & Central Sleep Apnea, Pulmonary Hypertension, Bells Palsy, Gastroparsis, Blood Clots, Glaucoma, Chronic Pericarditis & Pleurisy, Severe Anemia. Way to many medications to list.

Post Edited (Barbara Lee) : 6/24/2014 7:25:53 PM (GMT-6)


Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7720
   Posted 6/24/2014 7:20 PM (GMT -6)   
I've been thinking about you all day, Barbara. So glad you are feeling well enough to post!

I am worried about your food situation, though. Can you get hubby to put a small dorm-room-sized fridge in the bedroom with some emergency supplies during the daytime? Your poor body can't heal without some food & energy!! Protein!

Hugs,
Lynnwood, Lupus & Sjogren's Moderator, Dx: 2002
DIAGNOSING LUPUS & LUPUS RESOURCES
"Life is far too important to be taken seriously." - Oscar Wilde

Barbara Lee
Veteran Member


Date Joined Sep 2003
Total Posts : 2889
   Posted 6/24/2014 11:06 PM (GMT -6)   
Lynnwood you'll not be to happy to hear what hubby broth into the bedroom at like 11:25pm tonight for me to eat tomorrow while he's a work.

I have one bag of peanut M&M's
1/2 bag of Cheeto's
1 24oz bottle of Mt. Dew

hoping maybe I can get him to give me a pear, plate, and steak knife to cut it. Maybe a glass of chocolate milk too. The dorm fridge is in the dining room with beer and sodas in it. My daughter left her fridge at school this year. So unless I ask him to empty out the one we have or buy me another, I'm guessing I'll be getting what he serves me.

Have to say tummy is hungry already. I'm afraid what I got yesterday wasn't enough and I'm really starving now. Oh well I'll figure out something. Hope you're asleep by now, I'm heading for my bed now. Hope my growling tummy doesn't keep me up all night.

Hugs,
Barbara
DX- RA, Lupus, Fibro, LGL Leukemia, Obstructive & Central Sleep Apnea, Pulmonary Hypertension, Bells Palsy, Gastroparsis, Blood Clots, Glaucoma, Chronic Pericarditis & Pleurisy, Severe Anemia. Way to many medications to list.

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 6/25/2014 6:27 AM (GMT -6)   
(((((((((((((Long gentle hug))))))))))))))

How about asking hubby to put a loaf of bread and water for your jail cell? ;0)

Naw, seriously, how about a loaf of bread, peanut butter, and some fruit?

I'm missing my cat too. However, I plan to get a new baby kitty in August. I have to go on a long trip the first couple of days, but when I get back I'm picking it up.

Are you ready for a new fur baby yet?
Joy
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, OA, Depression, Allergies, and benign familia tremors

When life throws you lemons....
Pick them up and throw them right back at them! :))

acquiesce
Regular Member


Date Joined Jan 2014
Total Posts : 360
   Posted 6/25/2014 6:57 AM (GMT -6)   
It's good to hear from you Barbara, you have been in my thoughts!

I've been flaring something awful the last couple of weeks so I have just been lurking with not much energy to post.

I feel so awful for you being stuck in a room with no food or hugs. I wish I could do something to help. :(

Could you have hubby pick up some healthy snacks that you can keep with you in the bedroom like granola bars, nuts, fruit and dried fruit or even protein bars or something? I hate to even mention food incase you read this before he comes home and it sets your tummy grumbling!

I'm so sorry about Grady. I felt the same when I had to have my Mojo put down a year or so ago. I had to have a new kitty right away and hubby said only if we can get 2!! Okay! The love and companionship we get from this little critters is just beyond compare.

I'm sending you lots of love and a gentle hug from across the miles. You are loved here. You have many caring friends who have you in our thoughts and prayers. I'm sure I am not the only one who would be there in a heartbeat to help out if we could <3

Goldensundrop
Regular Member


Date Joined Jun 2010
Total Posts : 23
   Posted 6/25/2014 8:28 AM (GMT -6)   
Oh my... I'm sorry to hear about the passing of Grady, but I'm sure he's comforting you when you least expect it.

Sounds like you need a picnic basket near the bed with goodies! And a good book, or two. I bet if you call your local library and ask for some books, a volunteer will jump out of their boots and be there in a flash. They also have DVD's and magazines.

Looks like you have a ton of support here. Keep that chin up :)

Laura

Barbara Lee
Veteran Member


Date Joined Sep 2003
Total Posts : 2889
   Posted 6/25/2014 2:31 PM (GMT -6)   
Hey Joy, Lynnwood, Acquiesce, and Laura:

Thanks for responding to my post. My hubby isn't trying to treat me bad, really. Yesterday, was a busy day for him and he gave what was easy. Tonight, I'll ask for him to maybe go get some California Rolls from the local sushi bar. I do not eat any raw sushi, as I have NO immune system. That's all I need is to get food poisoning from sushi.

Well, I've made it thru another day w/o my buddy, I haven't cried as much today. I'm not ready to get another fur baby yet. I believe IF we get another it's going to have to be two kitten or I'll take in an adult one. For now though I'm going to wait. I know I had a dog that I loved dearly, when my hubby joined the military I left her with my Mom. My sister let out w/o putting on a chain and she was hit by a car and killed.

I was so sad and upset, hubby found a couple who were moving to England and couldn't take their dog with them. He went and got her as a surprise for me, she lasted all of two days with us and I made him take her back. I couldn't bear to look at her, she was a sweet girl but I couldn't do it. We've never had another dog in our home since then. That was back in 1986, I'm really not sure how I'm going to do with my cat being gone now.

I do know that my doctors are considering suggesting I get a service dog to be with me to help me out. If that happens then I will have a dog in the house. I'm still looking into how to get one, and if my insurance will cover the costs and if I'll be able to meet the dogs needs.

I slept a fair amount today was really tired. I'm kinda feeling like I need another blood transfusion guess I need to give my doctor a call. I've canceled all my appointments until I get my cast off and I'm able to start walking. Have say I'm worried about walking, the doctor had them pull my foot up and stretch my tendon a bit and it's hurting like crazy. I can't begin to imagine what it's going to feel like when I start walking.

Well, guess I'm gonna go for now, maybe I kind find something to slip down into my cast to scratch my leg. I know I shouldn't do that, but boy does it itch. Hope you all have a good evening and take care.

Hugs,
Barbara
DX- RA, Lupus, Fibro, LGL Leukemia, Obstructive & Central Sleep Apnea, Pulmonary Hypertension, Bells Palsy, Gastroparsis, Blood Clots, Glaucoma, Chronic Pericarditis & Pleurisy, Severe Anemia. Way to many medications to list.

DianeB
Veteran Member


Date Joined May 2013
Total Posts : 1343
   Posted 6/25/2014 6:32 PM (GMT -6)   
Sweetie .. good to hear from you!

I am angry- sorry if that bothers you but I am being honest.

A grown man - or woman- can probably figure out what THEY eat every day. My **** granddaughter would not act like that.

Being busy is NO EXCUSE to not prepare a day's worth of food for you.
Period.

You are not going to feel good / heal without food & water & juice, etc. !!!

Please please make a list & have him fill it EVERY DAY.

If u live close to me I would
WILL
bring you food.

Love & prayers.
Herniated cervical discs & other disc / spine issues, Arthritis, spurs
Injuries &/or pain to/in shoulders, elbows, wrists, knees, legs, ankles
Fibro / myofascial pain, neuralgia, neuritis

Barbara Lee
Veteran Member


Date Joined Sep 2003
Total Posts : 2889
   Posted 6/25/2014 11:26 PM (GMT -6)   
Hey Diane,

It's good to see you too, I know that you've been dealing with a fair amount of pain. How are you doing this evening? I hope it's getting better for you.

I'm not upset that your mad at my old man. Trust me several of my dear friends get upset with him time to time. He's the type of guy if I'm not reminding him he'll flat out forget. I don't believe he ate anything for dinner tonight and if he did, it was after I moved back into our bedroom. I moved out to the family room and was waiting for hm to come to bed.

While I was out in the family room I did speak up and asked for something for dinner. Have to say there wasn't much to pick from but I did get something to eat. I had a peanut butter and jelly sandwich on wheat with a glass of chocolate milk. My daughter had brought home from college some small cans of spaghetti O's so I had some of those and finished up with the last of the fresh cherries we had. Granted I'm still hungry and it' 1:17am and have no way to eat anything else tonight, but I'll live thru it.

Have to admit was a bit frustrated, I did ask for him to mix me up some carbonated lemonade on my Soda Stream machine. He offered me apple juice instead, so for tomorrow I'll be getting a sealed drink bottle with apple juice, a bottle of Mt. Dew. I still have M&M's from today and Cheetos. I was hoping he'd go to bed earlier tonight cause then I might have talked him into making me toast or yogurt with granola. However, he didn't get to bed early enough.

He was in the kitchen cooking beef ribs that he put in our crock pot and he'll simmer them all day tomorrow, so I can have them for dinner tomorrow night. I have to say I'm rather frustrated with a friend of mine she's always offering the "if I can do anything to help", yet when I called her today to see if she'd go pick up so grocery for me she was busy and couldn't do it. I only ask once, because it's darn hard to ask for help anyway. So, unless by some miracle and he's up early I won't have much to eat during the day tomorrow, unless I go ahead and roll myself out there and try to reach stuff.

I noticed that my right leg muscle right at the top were it attaches to my bum is hurting a lot. I'm guessing it's because I'm only using that leg to pull myself up on and stand on. I"m so frustrated that I can't put my foot down on the ground and yet I'm afraid to, does that make sense?

I know it's gonna hurt like **ll when I do finally start walking on the foot. I will be much happier though once I can get out of the house and go places. Looking at the same old thing is depressing. I received a couple of sympathy cards for the passing of our Grady. The Vet who put him down sent one and a dear friend here sent me one too.

Well, I'm going to try to sleep my back is hurting and my foot is aching pretty bad. I'll have me a couple of pain pills and hopefully zonk out quickly. Hope you are all sleeping and have a low pain night. Will check in tomorrow.

Hugs,
Barbara
DX- RA, Lupus, Fibro, LGL Leukemia, Obstructive & Central Sleep Apnea, Pulmonary Hypertension, Bells Palsy, Gastroparsis, Blood Clots, Glaucoma, Chronic Pericarditis & Pleurisy, Severe Anemia. Way to many medications to list.

Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9664
   Posted 6/26/2014 7:09 PM (GMT -6)   
Awe, so very sorry your going through so much right now. Sending you many prayers.
Can you get a small portable refrigerators for the bedroom so you could grab something when you get hungry. might be worth looking on www.bestbuy.com and having your hubby pick it up in store.
My hubby has a mini refrig at work for his Dr. Pepper's...
Many healing soft (((Hugs)))
Prayers...
**********************************************
* So many dx's I could write a book* "It would be nice if we could use the edit button in real life"...
********>^..^<********>^..^<*******

DianeB
Veteran Member


Date Joined May 2013
Total Posts : 1343
   Posted 6/26/2014 7:41 PM (GMT -6)   
Oh Barbara

My apologizes for not also expressing condolences re: your loss of Grady!
Know you miss his companionship & love.
Keeping music playing or my TV on has helped but nothing takes the place of warm loving breathing cuddle buddy.

My pain has lessened, thanks for asking. Had not realized just how awful winter weather kicks up my health issues.. not leaving my home for weeks on end - not good! (That is why I ran out of all my stocked up single serving food stuff.. )

I can almost smell those ribs!! Thank goodness for peanut butter. ;-) almond butter is #1 on my shopping list - when I get some funds!

Oh, does your local grocery store offer delivery service? My d-i-l has used hhmm pea pod I think it is & was quite pleased.
Perhaps tomorrow you could check online or call. You would not have to depend on anyone.

Think the behaviour hit a nerve, in a different but similar way: family ignores my food needs when I am in flares.
Often I ended up having Chinese delivered, mostly soups - enough for 3 or 4 days: much more $$ than I want to spend but was the best I could manage. (Smelling food cooking often ruins what appetite I sometimes have)

Hope you sleep well & your pain lets up

Prayers
Herniated cervical discs & other disc / spine issues, Arthritis, spurs
Injuries &/or pain to/in shoulders, elbows, wrists, knees, legs, ankles
Fibro / myofascial pain, neuralgia, neuritis

momtofourangels
Veteran Member


Date Joined Apr 2010
Total Posts : 2261
   Posted 6/26/2014 7:49 PM (GMT -6)   
Hi Barbara I'm so sorry that you lost your kitty. ((((((hugs)))))).

I too am angry about your husband only bringing you junk to eat and drink. There's no excuse. If it was the other way around, I know you would do all you could for him.

I also want to suggest a small fridge in the bedroom, so you can have things that are healthy in it.

It's a shame that you asked for the groceries, and she wouldn't take time to get them. I would wait on you, if I lived closer to you.

Take care. You need some books and magazines to read.

love and hugs
Loretta
Dx: osteoarthritis, bursitis in left hip, Osteoarthrits in right hip, compression fracture in thoracic spine due to falling on frozen ground March 2001 , ddd, spinal stenosis, bone spurs, osteoarthritis in spine, osteoarthritis in both knees

tenXmom
Regular Member


Date Joined Jan 2013
Total Posts : 62
   Posted 6/26/2014 10:23 PM (GMT -6)   
I've been thinking about you all day Barbara

I don't post often but I do read here

I'm glad you're feeling well enough to post, sorry things suck right now for you.

Honestly you're leaving my worst fear, having to rely on my family. When my doctors mentioned cancer, surgery, etc I literally stopped at Target on my way home and bought a small fridge and microwave for my bedroom/office, I keep it stocked and could go two weeks with what's in there.

Do any grocery stores near you deliver? Maybe you can have it delivered after your husband comes home...

Can you pay one of your daughter's friends to go to the store for you? It's not a favor or asking for help if cash is involved ;)

If he won't move the fridge (and with 3 more weeks it's worth moving the fridge for you), what about food that will keep? Bananas, pears, oranges, trail mix, peanut butter and honey sandwiches....Get the food in the house then give him a list of what you need brought into the bedroom daily so he can't forget.

Will your insurance pay for any in home assistance? After a week long hospital stay with no visitors our hospital staff decided that I required at home help (my family turned them away) but I know it exists.

I understand about not wanting to ask for help and only asking once - I'm not sure of your reasons but for me it just hurts that they don't care - at least you've had people love you, unconditionally and can draw on that.

And if it were me I'd be marring the walls to get into the kitchen

I hope it gets better soon - and that in six months it was more than worth it
Laura aka tenXmom
AI Hep - AI Pancreatis - Lupus - RA & Osteoarthritis - Reynaud's - Fibro - AIED - TMJ - Sjogren's - and whatever is going on with the gallbladder...

LupieICURN
Regular Member


Date Joined Jan 2013
Total Posts : 47
   Posted 6/27/2014 8:16 AM (GMT -6)   
Barbara,
I'm so sorry you're going through all of this. I'm angry when I read about the way your husband is. I guess because I am VERY blessed when it comes to the husband department. I agree with everyone else above.. could he get you food that would stay good and you could keep at your bedside? I know what its like to have a foot surgery and be non-weight bearing. Its terrible.. and I don't want to worry you but when that cast comes off it will be painful and weak. I hope the next 3 weeks go by fast for you.. I'm so sorry you feel so alone. Just know there's lots of us thinking and praying for you!
Nicole- 26, married, no children
Endometriosis, Lupus, Raynaud's, Degenerative Disc, Migraines
Meds- Vitamins, birth control, Plaquenil, Prilosec, Lyrica, Folic acid, MTX injections weekly, Celebrex prn, Tylenol prn, Tramadol prn, Zofran prn

~Don't worry about tomorrow, tomorrow will worry about itself. Every day has enough trouble~

UserANONYMOUS
Forum Moderator


Date Joined May 2011
Total Posts : 4483
   Posted 6/28/2014 6:46 AM (GMT -6)   
Barbara, I'm sorry for all that you're going through. I hope you will get some food to eat soon instead of these junk. If I could, I would send some for you. But I'm in a different part of the world. :-(. I'm sorry...

I hope you you get some pain relief and some rest. Keeping you in my thoughts and prayers.

Take Care

*Hugs*
UA
Moderator - Bipolar

Depression, Borderline Personality Disorder.
Chronic Pain - Cervical Kyphosis, Cervical Spondylosis, Thoracic Scoliosis.

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 6/30/2014 9:10 PM (GMT -6)   
Hey Barb,

I only came to HW, just to see if you had a recent update. No, this doesn't mean I am "coming back" to HW in general, came here only to see you.

Read your entire account, I understand the vent part - you never have to explain that with what you have going on.

Don't like the way you are almost a prisoner in your own room, that alone would drive me crazy. It's my complete freedom of movement at this point, that helps keep me sane. I know at some point, I will have more physical restrictions, but until then, I enjoy my freedom to roam when possible.

It may be too soon in your heart, but you should consider getting a replacement for your cat. You have plenty of love and time to give to a new furry friend, it might help cheer you up a bit. It's better than all the times you have to be alone and on your own. Just an innocent thought.

Sorry to hear about the 45 year old in such dire condition. That is way too young to be stricken with something so serious, and incurable (outside of a true miracle). Prayers to him and his family and loved ones.

Take care, my special friend and pain buddy. I will check back on you from time to time, to make sure you are still hanging in there.

Remember our deal: You don't give up, I don't give up. Fair is fair.

Hugs,

David
Age: 61, 56 at PC dx, PSA 16.3
3rd Biopsy: 9/8 7 of 7 Positive, 40-90%, 4+3
open RP: 11/8, Catheter in 63 days
Path Rpt: 3+4, pT2c, 42g, 20% tumor, 1 pos margin
Incontinence & ED: None
Surgery Failed, recurrence within 9 months
Salvage Radiation 10/9-11/9, SRT failed within 9 months, PSA: Too High
Spent total of 1 ½ years on 21 catheters, Ileal Conduit Surgery 9/10,
7 other PC-related surgeries

Barbara Lee
Veteran Member


Date Joined Sep 2003
Total Posts : 2889
   Posted 6/30/2014 11:42 PM (GMT -6)   
Hi Chart, Diane, Loretta, tenXmom, UA, and David:

Thank you all for your posts and concerns. David you are way way to sweet to just come and visit me. I know tons of folks here miss you and your posts and will be upset that you're not returning. However I do understand why you need to be away from here. So, pain buddy, THANK YOU, for coming and making my day.

I've had an extremely difficult day today my leg is hurting so badly. I'm not sure why and it really makes me nervous because I can't see whats going on inside this stupid cast. I received good meals over the weekend, hubby cooks on the weekend for his meals to take to work for the week. The problem we're running into is that he has so much to do after he gets home he ends up going to bed really late. Then it's hard to get up in the morning and when he does get up he's running late and can't get stuff together for me. Today, was like all of last week Cheetos's and apple juice for breakfast and lunch. I did get grapes and home made chicken enchilada that was heated up from dinner yesterday. There was one left and I got it, then I had a piece of Ice Cream B-day cake as it was hubby's b-day yesterday.

Not sure what I'll get tomorrow, I'll roll myself out to the kitchen and try to collect something for me. I may need to go into the clinic and have this cast removed so we can make sure nothing is "off" inside the cast. As of the 1st, which is exactly today, I only have 14 days until I get out of this cast and can go into a walking boot. I'm not sure how much walking I'll be able to do at first but I will start moving it around more.

Well, I'm going to go for a bit I'm tired and I need to check our bank account first. My Visa debt card was used by my daughter on the 10th of June. I never got my card back, I knew it had to be here in the house, but with me laid up I couldn't look for it. Well, I finally broke down and reported it as a lost or stolen cause I had no idea which happened. I called that in on Tuesday the 24th of June, well guess what, my hubby hands me my visa card yesterday evening. Said he found it on the desk in his office, GRRRRRRRRRRRRRRRRRR nono nono nono nono nono how come he didn't look for it before I have NO IDEA. We have been w/o a visa checking card since the 24th of June. I couldn't access online banking because our pin number was no longer good. If I needed to transfer funds or anything I would have to call our bank and talk to a customer rep and have them complete things for me. It's been a royal pain in the BUM, needless to say, I'm sure that's been affecting my mood too.

Okay, done, I'm off to the bank site, and then my bed. Everyone thank you for you support, at times you are all that I truly have in my life that cares and listens to me. Love you all.

Hugs,
Barbara
DX- RA, Lupus, Fibro, LGL Leukemia, Obstructive & Central Sleep Apnea, Pulmonary Hypertension, Bells Palsy, Gastroparsis, Blood Clots, Glaucoma, Chronic Pericarditis & Pleurisy, Severe Anemia. Way to many medications to list.

UserANONYMOUS
Forum Moderator


Date Joined May 2011
Total Posts : 4483
   Posted 7/1/2014 8:37 AM (GMT -6)   
Hey Barbara,

I'm glad to hear that you got some decent food to eat. Belated Happy Birthday to your hubby. Hope he had a good day.

I'm sorry about about your card but glad it was 'safe' on your hubby's desk. Lol.

Hope you get some rest and your pain subsides. Keeping you in my thoughts.

*Hugs*
UA
Moderator - Bipolar

Depression, Borderline Personality Disorder.
Chronic Pain - Cervical Kyphosis, Cervical Spondylosis, Thoracic Scoliosis.

Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9664
   Posted 7/2/2014 7:48 AM (GMT -6)   
Barbara if its a USAA card then they are usually quick about replacements, so you should be getting a new accounts and all set up soon, and yes it is a pain in the butt, we've been thru that twice due to theft. Usually only been without money for 1 week because of that, so just hang in there...This will get cleared up.

Sure hope your recovering good and I'm sending you prayers...try to get some restful sleep.

I agree with David/purgatory, so very sorry about the loss of your cat. However, it might be a good time to think about get a replacement cat, just don't get a young kitten because of the playful energy that they have and it'll help your heart having another friend with you and pets can be very good friends. Think about it.

Prayers...
**********************************************
* So many dx's I could write a book* "It would be nice if we could use the edit button in real life"...
********>^..^<********>^..^<*******

Butterflake
Forum Moderator


Date Joined Jun 2006
Total Posts : 1650
   Posted 7/3/2014 7:50 AM (GMT -6)   
Hi Barbara. I just wanted to tell you how sorry I am that, as usual, you have such awful problems. I have two cats and an old exotic silky satin guinea pig. My dog died last Oct and I don't have the strength to care for another dog yet. Every morning when I awake I check my pig, Bacon Bit, to see if he made it thru another night. As a huge animal lover, I'm so very sorry about Grady. Perhaps Nikita will want another cat someday to share with you.

As for your food situation, I will say that the more my hubby has to do for me, the more short tempered he gets. Regardless, he still takes very good care of me. Let me state the obvious and do everything you can to show him that you love him. My husband is always happy when we cuddle in bed for even a few minutes, clothed or not. I hate all my surgical and pic line scars, but he doesn't seem to mind. We don't sleep together, but watching TV in bed helps too.

I have a soda stream too. If you can press the button and make your soda, have it moved into your room. A small ice chest would be nice. Also, don't forget the bread, peanut butter, jelly, crackers, fruit, and other room temp foods to keep in your room.

Well, I gotta get ready for another doc appt. Love You Dear. Donna
SLE '05, Sjogrens, fibro, Raynaud's, major depressive disorder, CNS problems, diastolic heart dysfunction, GERD, 1st stage kidney disease. Many meds: better living through chemistry

Donna
Sjogren's Moderator

DianeB
Veteran Member


Date Joined May 2013
Total Posts : 1343
   Posted 7/3/2014 9:57 PM (GMT -6)   
Barbara

Popped on site today after being 'away' for a few days..
thnx for the update ..
Praying the pain in your leg / under the cast is nothing serious.

Even though you had already made calls re:your cc, glad you'll found it -
won't have to worry about dealing with unauthorized charges.

I had a good day: One of my few gf lives almost 2 hr away so we rarely see each other ( though we do talk most days )
She had an appointment close to me today, so called & invited me out for lunch
I was already outta of bed & dressed as I had to take scrips in & was feeling not awful for a change, thank goodness.

Rare treat ! Certainly lifted both of our spirits.

Paying for having such a good time now- you know we usually do ! being out in this awful heat & humidity added to my discomfort. But ain't complaining: was worth it.

Once again I am very grateful that I have air conditioning.. and praying that can continue to afford to run it .

Take care hon
Herniated cervical discs & other disc / spine issues, Arthritis, spurs
Injuries &/or pain to/in shoulders, elbows, wrists, knees, legs, ankles
Fibro / myofascial pain, neuralgia, neuritis

Barbara Lee
Veteran Member


Date Joined Sep 2003
Total Posts : 2889
   Posted 7/4/2014 1:03 AM (GMT -6)   
Hi UA, Chart, Donna, and Diane;

Thanks for your well wishes UA and the belated B-day wishes for my hubby. Yes, I managed to get some real food in me. He really is having a fit over stuff. We managed to get most of the stuff from our daughters school dorm room out of my living room. Hubby was really grumpy trying to help me clean it out. Thanks for wishing me well UA, I'm working on getting my pain better. How are you doing and feeling these days?

Chart, I wish it had been USAA, but it was actually a Federal Credit Union where we were first stationed at. It was our main account we've been with them since April 1987 and they did work with me. I received both the replacement cards and pin numbers on Monday, Whew I was just about to have a total fit if I hadn't gotten them when I did.

As for the cat, I'm just not certain yet. Nikita is actually very allergic to cats and dogs. Hubby has allergies too, so this is the first time in 28 years that hubby hasn't been near a cat, actually for Nikita too, as we had a blue point Siamese prior to Grady. Muffin had been with us 8 years before we had Nikita, we were worried Muffin wouldn't accept Nikita. All worked out fine on the end. We already knew Nikita was getting worse once she went off to college and then coming home whenever he got on her lap or she picked him up she'd break out in hives and get really stuffy. Have to say though the last few days of his life, she carried him around when he'd let her. She carried him in his blanket to the Vets to be put down cry cry I didn't go with her and her Dad. I made sure I said my good byes to my baby at home in private. Time will tell if we bring another cat or dog into the house. There is some talk of a service dog for me, so I'm just not sure what will happen yet. I do miss Grady terribly and at times just want to run out a get a 1 or 2 year old cat.

Donna, I know you're a huge animal lover and I know how hard it was when your dog and hamster died. Our pets become such a big part of our families especially when we've had them a long time. I think even more so when we're sick, they just seem to know when we need to be comforted. Grady was with us 18 years and like 5 months and 22 days. Time will tell if I can handle another cat in the house, and IF my housemates can handle the allergies. I'm sorry that you're not doing the best I can hear it in your post. You didn't mention at all what really going on with you. I hope that you're feeling a bit better at least. I'm glad your hubby is good at taking care of you and waiting on you. I need one right now I'm thinking, mine keeps forgetting to put my walker in the doorway of our bathroom in our bedroom.

You see, I get out of bed into my wheelchair and push to the doorway and then get on my walker (it has a seat) and push myself across the floor to the toilet. Do what I need and exit the way I came. Well, if the walker is over by the shower I can't get to the toilet. I've warned him, I'm going to start going on the floor if he keeps this up. Donna, thanks for posting and I'm sorry about Bacon Bit, I hope that he continues to live with you for sometime yet.

Diane, I'm so happy that you had a good day and was able to meet up with a friend!!!!!!!!!!!!!!!!! It certainly lifts our spirits when we can see people that we love and enjoy spending time with. I know we tend to over do it when we go out with our friends. I'm sorry that you're kinda paying for it tonight. I hope you feel much better in the morning.

I can't remember are you on the East or West Coast? I know here in the DC area it's been both very hot and humid. I can't breathe very well when I get out in the humidity, I usually have to crank up my oxygen to 4 liters which is a lot for me. While I'm in the house or building I need only 2 to 3 liters but boy the humidity gets me every time.

As for me, I'm totally not doing well, I'm very worried I'm going to end up in the hospital. I'm still having severe joint pain in my toes, ankles, knees, fingers, elbows, hips, and back. I have broken out every couple of days since my surgery with a rash that looks like chicken pox. This morning I awoke to a huge and extremely painful fever blister on my lower lip. I rarely get them, but when I do boy do I normally get sick once they've showed up.

Hubby, went and bought me some Abreva. Then when hubby was helping me shower this afternoon he noticed that all around the outside of my naval and down into, it's got a terrible rash. The rash is Vivid red, it's painful to the touch and it's oozing fluid of some sort. I'm wheezing a bit and have huge body aches. I'm currently sitting with my TENS unit pulsating on my shoulders. Tomorrow is the 4th and I really don't want to spend the 4th sitting in the ER. Oh, and I fractured a rib right up under my breast to boot.

I really need to get to feeling better, but like I said, I normally only get fever blisters like every 3 or 4 years and when I do I get really sick and end up in the hospital for 10 days or so. Please send some positive healing prayers my way I think I'm gonna need them big time.

Thank you to ALL, like I said you are always here for me even when I'm venting and being a big baby about things. I'm gonna go it's almost 3:10am east coast time and I'll hear about not going to bed early enough. I'll check in tomorrow. I hope you all have a great 4th of July and stay healthy and have low pain levels. Make sure you stay out of or limit the amount of sun you get today. Take care and thank as always for supporting me.

Hugs,
Barbara
DX- RA, Lupus, Fibro, LGL Leukemia, Obstructive & Central Sleep Apnea, Pulmonary Hypertension, Bells Palsy, Gastroparsis, Blood Clots, Glaucoma, Chronic Pericarditis & Pleurisy, Severe Anemia. Way to many medications to list.

DianeB
Veteran Member


Date Joined May 2013
Total Posts : 1343
   Posted 7/4/2014 8:34 AM (GMT -6)   
Happy 4th Barbara (& all)

Fell asleep around 4 AM & was up at 8 with a got-too-hot, possibly barometric-induced headache. Stiff joints. so am babying myself in effort to avoid flare (fingers crossed). Planning a short walk if it is a bit cooler than yesterday.

Are you scheduled to see dr soon so you can ask about the rash? Re:fever blister - agree w/observation that being sick usually follows their arrival - for me is stomach issues that follow.

Another fractured rib ! ;-(
Am praying for you & so so hope no ER visit today.

Allergies - I have same re: cat hair so empathize w/your husband & daughter. Could consided Hairless cats but they require a great deal of attention because they are very sensitive to their environment. For myself I chose certain types of (small) dogs instead. Being petless now is, sadly, best for both myself & the dog. Miss um.

Btw re: your question about location -
You mentioned DC area..
did you, by any wild coincidence, several years ago, buy a small handmade ?? Flax?? seed-filled heating pad for your pic line area, & delivered to your house by someone else? I would be delighted if you answer 'yes' !!
If so I Do not go out much but certainly can pick up some groceries or already prepared foods for you & am most willing to help however you need me.

Personally I consider everything said on this forum to be between very good friends & confidental. I know everyone is different but That is my opinion & dictates my actions. IMHO We are here to share our experiences & provide emotional support, sometimes the only support.

I HAVE used bits & pieces of what I have read on here to deal w/ family re:explaining pain, medications & so on, in effort to have my family understand & believe me. And I HAVE asked my friends to pray for some forum friends when times are particularly rough. I believe in the power of prayer.

Again
Happy 4th! Stay cool.
Herniated cervical discs & other disc / spine issues, Arthritis, spurs
Injuries &/or pain to/in shoulders, elbows, wrists, knees, legs, ankles
Fibro / myofascial pain, neuralgia, neuritis

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 7/4/2014 2:16 PM (GMT -6)   
Sorry to hear things are popping their ugly heads on you again. Lupus sure does love to beat on you.

I hope it doesn't turn worse. (((((((Hugs))))))))
Joy
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, OA, Depression, Allergies, and benign familia tremors

When life throws you lemons....
Pick them up and throw them right back at them! :))

UserANONYMOUS
Forum Moderator


Date Joined May 2011
Total Posts : 4483
   Posted 7/5/2014 12:08 PM (GMT -6)   
Hi Barbara,

Thanks for the update. Hope you had a good 4th off July and was able to get some rest. Hope you hubby did make some nice food for you for the holiday.

I'm sorry you got another fractured rib. Any doc app soon to treat the fever and blisters, especially since you said you usually get sick after this occurs? I really don't want you to get sick and hospitalized again. I hope it will go away and the Abreva will help.

Thanks for asking...I have been good, usual ups and downs but things are okay. I picked up a buy again though. I got in June and now I got it again. It's getting better.
My medical claim from the accident finally got settled this week. No more court. I should receive the cheque in August.

Please know that you're always in my thoughts and prayers.
Take Care

*Hugs*
UA
Moderator - Bipolar

Depression, Borderline Personality Disorder.
Chronic Pain - Cervical Kyphosis, Cervical Spondylosis, Thoracic Scoliosis.
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