Any funny stories on how you describe your fatigue?

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Talldoode
New Member


Date Joined Jun 2014
Total Posts : 16
   Posted 6/25/2014 3:41 PM (GMT -6)   
Hi all,

I am in a whimsical mood today. I slept pretty good last night and when I sleep well I feel *almost* normal :-). Except for the fatigue. And - like all of you - I am "sick and tired of being sick and tired".

Trying to describe my fatigue is a difficult task. My body is rarin' to go! But my head is saying "darn doode... you are tired". But I am not tired. I dont yawn, I dont feel like I need a nap (and I cant nap even when I try). I think about going and doing something and it is like a veil is dropped across my brain. Like I mentally have to climb a wall before my body will move. I do find if I simply force myself to get up and go do something I am fine doing it, but it is getting my brain to agree to start doing that "something" that is the hardest.

How do you all describe your fatigue to those who have no idea what it feels like?

Happy Wednesday all.

/tall

Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7720
   Posted 6/25/2014 4:50 PM (GMT -6)   
Take a real heavy wool blanket, wet it down so it's even heavier, and drop it over me. That's what it feels like to me sometimes... a wet blanket!
Lynnwood, Lupus & Sjogren's Moderator, Dx: 2002
DIAGNOSING LUPUS & LUPUS RESOURCES
"Life is far too important to be taken seriously." - Oscar Wilde

Barbara Lee
Veteran Member


Date Joined Sep 2003
Total Posts : 2889
   Posted 6/25/2014 11:04 PM (GMT -6)   
Mine feels like they've put a full body lead apron on me. You know the kind they wear when taking x-rays of people getting a barium swallow. The patient is exposed to the radiation but everyone else is wearing these heavy lead apron to protect themselves.

That's how I feel when I'm really fatigued. Or I'll inform my hubby that the local steam roller has rolled over me today and I'm not going to be of much help period.

I feel like this almost all the times. However, once in a awhile I get a break when I get a blood transfusion, then my color is good and I'm hoping and be bopping down the hallways at the hospital. Even though I get 2 to 4 units of blood monthly now, I don't get it often enough to get rid of my terrible fatigue.

Good luck with your fatigue, the best you can do is try to get goo restful and restorative sleep at night.

Hugs,
Barbara
DX- RA, Lupus, Fibro, LGL Leukemia, Obstructive & Central Sleep Apnea, Pulmonary Hypertension, Bells Palsy, Gastroparsis, Blood Clots, Glaucoma, Chronic Pericarditis & Pleurisy, Severe Anemia. Way to many medications to list.

acquiesce
Regular Member


Date Joined Jan 2014
Total Posts : 360
   Posted 6/26/2014 4:56 AM (GMT -6)   
It's like walking through waist high peanut butter with several sumo wrestlers on my back :P

The pain of a flare is akin to being thrown down the stairs, hit by a truck, picked up by a helicopter and being dropped in the Grand Canyon lol.
Be who you are and say what you feel because those who mind don't matter and those who matter don't mind - Dr. Seuss

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 6/26/2014 5:16 AM (GMT -6)   
Fatigue to me is how you would feel running up 100 flights a stairs with lead weights hanging on you everywhere.

Flare feels like someone flayed me, ground my bones to dust, beat my body, dragged me behind a semi, ran over me, backed up, and ran over me again. Then once all of that was done put me back together but all wrong.
Joy
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, OA, Depression, Allergies, and benign familia tremors

When life throws you lemons....
Pick them up and throw them right back at them! :))
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