Suggestions for dealing with pain?

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Regular Member

Date Joined Nov 2013
Total Posts : 340
   Posted 6/26/2014 5:25 PM (GMT -6)   

I’m in pain 24/7 in almost my entire body. Any suggestions on dealing with this would be greatly appreciated.

Regular Member

Date Joined May 2007
Total Posts : 482
   Posted 6/26/2014 7:43 PM (GMT -6)   
I am so sorry. My first suggestion may sound strange but it is true. Are you getting enough, proper sleep? I am now on a nightly sleep aid. The deep sleep really does make a difference. Your body needs rest to control the pain. My primary care doctor also put me on an antidepressant as this is supposed to help with pain control. I am allergic to aspirin, etc, so for break through pain I take Vicoden. But I try to avoid that one, for fear of becoming dependent. And try to take breaks through the day - even when you don't think you need one. Hope you feel better, soon.
Take care, Fran

Dx: Lupus, sjogren's, celiac, severe allergies, asthma, GERD
Daily Meds: Plaquenil, Zyrtec, Nasacort, Prozac, Ambien CR, CellCept, Zantac, Bactrim, Q-Var, Restasis, Albuterol
Daily Supplements: Calcium, B-100 Complex, Vitamin D, Daily Vitamins.
As Needed Meds: Epinephrine, Benadryl, Proventil, Tylenal, Vicodin, Prednisone.

Regular Member

Date Joined Jan 2014
Total Posts : 360
   Posted 6/26/2014 9:42 PM (GMT -6)   
Fran, that is a good point about sleep. I was so nauseated a couple of nights ago that I took some gravol to make it stop and honest to goodness I had the best sleep I have had since I can remember! It helped. Not only with my pain but also my mood and tolerance.

Akkami, I rely on my heating pads a lot. I also am sure to stretch and not stay in one position too long. Pain makes us tense up which I find exacerbates it. I hope you have some relief soon.
Be who you are and say what you feel because those who mind don't matter and those who matter don't mind - Dr. Seuss

Regular Member

Date Joined Nov 2013
Total Posts : 340
   Posted 6/27/2014 10:01 AM (GMT -6)   
Thanks everyone. I sleep pretty well these days. I do take melatonin and drink a sleep tea. I will try stretching. I just never have energy. I just need to do it anyway I guess.
10/13- DX Fibromyalgia
12/13- Brain MRI shows lesion
1/14 Lumbar Puncture normal
2/14 DX Optic Neuritis
2/14 Erythromelalgia
2/14 IgeneX pos for Lyme
3/14 LabCorp pos for Mycoplasma

Currently on doxy and cefuroxime
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