Sometimes that is just how Lupus acts. However, I think you are under-treated.
I would suggest you see the rheumy earlier - the next level of treatment to help quiet your lupus would be one of these: Imuran, Cellcept, MTX. I personally rate level of toxicity in that order. Since Lupus is so nicely unpredictable, it is impossible to determine which of these might help you. Some get help with Imuran, some Cellcept, some MTX. For instance, Imuran did nothing for me, but 18 months on Cellcept made my lupus very quiet - basically Cellcept was my miracle.
All of these take a while to help, so you might do better with some prednisone in the meanwhile to dial back all these "little things" that are adding up to make you miserable.
(Note: Not knowing what other stuff you are on for your other stuff -- these recommendations may be moot.)
Besides the food, vitamins, water - are you getting a moderate/light amount of regular exercise and getting deep refreshing sleep? Both can do wonders!
Let us know how it goes.
Lynnwood, Lupus & Sjogren's Moderator, Dx: 2002DIAGNOSING LUPUS & LUPUS RESOURCES
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