Newbie with questions and concerns

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New Member

Date Joined Jul 2014
Total Posts : 2
   Posted 7/16/2014 4:28 PM (GMT -6)   
Hello to you all! I am new to the site and have not yet been diagnosed. I know this post is long, however if you have the time please read and leave me you thoughts.

I am a 26 yr old female, waiting on test results after having an appointment with a rheumy. I was referred by my gyno after a positive ANA and learning my mom had lupus.

I felt very unprepared for the rheumy appointment. I was asked how long symptoms, that I really didn't understand, lasted; and felt like the symptoms that I could explain were brushed off to other causes (I.e. me being a teacher and standing for long periods of time). Most of my symptoms I had before I began teaching and they have become more intense since.

My symptoms are as follows: frequent fever (little to nothing can make me sick), fatigue (I relate it to the feeling of tiredness women have when pregnant), knee pain (more prominent on the left side), numbness in wrist legs and elbows, swelling in feet and ankles (especially after sitting for a while), stiffness (after sitting for some time), joints pop like crazy, night sweats (this became noticeable after having twins 4yrs ago), very bad headaches, after sun exposure redness across cheek bones, dizziness, and nausea.

I have a very high tolerance for pain, so most of the time if I am hurting I just keep going through the pain. This year brought about a lot of changes for me, my first year as a teacher and death of my mom this past August, and stress has quadrupled.

Veteran Member

Date Joined Apr 2006
Total Posts : 1344
   Posted 7/16/2014 5:01 PM (GMT -6)   
Lupus can be very difficult to diagnose since many symptoms are present in so many other diseases and conditions. Diagnosis is usually through clinical symptoms and labs but some cases are not that certain and it can take a long time to get a diagnosis.

If you have not already found this site you should check it out.

Don't hesitate to get another opinion but make sure the doctor (rheumatologist preferred) is experienced treating lupus and other autoimmune diseases. It does make a difference since can be so hard to diagnose.


<Edited to make link live.>

Post Edited By Moderator (Lynnwood) : 7/16/2014 6:59:27 PM (GMT-6)

New Member

Date Joined Jul 2014
Total Posts : 2
   Posted 7/16/2014 5:46 PM (GMT -6)   
Thank you so much for the advice. I will go check out the website.

Damsel in a Dress
New Member

Date Joined Jul 2014
Total Posts : 8
   Posted 7/31/2014 11:09 AM (GMT -6)   
I hope you get answers soon! I am currently waiting for a diagnosis as well so I am glad I looked at this thread because that's an excellent resource, Bill!

Good luck and keep us posted!
Blogging about life with a chronic illness at Damsel in a Dress |
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