my rheumatologist report could this be lupus?
ANA 1:16 nucleolar pattern
HLA b 27 gene
RA factor 15 iu/ml
absolute netrophils were elevated
WBC count was 14.7 (normal 3-11)
all antibiodies tested for sjorgerns, lupus, slecroderma, etc were neg
my story is that when i was in college i contracted MONO followed immediately after by herpes simplex 1 (mouth sore kind) I never saw a doctor until i had been very ill with a low grade fever and chronic cough for 1.5 months. I was a super athlete at the time (triathlete and swimmer as well as played volleyball)
finally i saw doc tested positive for mono and tried to take his advice to "rest"
after resting i did get better but developed chronic fatigue for several months. I also developed recurring feelings of depersonalization and was told i had epilepsy . I began to get mouth sores and ulcers every 1-3 months
i picked up swimming because my times fell in running after becoming ill. i became good at it but suffered chronic sinus infections atleast 4-5 times per year. i always seemed to be ill but i would always recover eventually and go back to my active lifestyle. i continued to suffer frequent outbreaks of the herpes virus on my lips on inside of my mouth the epilepsy continued despite my medication,.
a few years later i moved in with a awful room mate who had a dog with fleas and one tick i had smashed. i remember the flea bites on me and i became very itchy for several weeks even after we had gotten rid of all fleas. i was itchy and feeling ill. i tested neg for lyme on western blot which i took 2 years after this incident i had only one reactive band and the test read negative
my chronic illness started 2 years ago and 5 years after my sinus issues and seizure disorder with upper back pain and muscle spasms as well as shoulder pain and tendonitis. i had one shoulder repaired. i was told i strained by back as a swimmer. well knots started forming in my neck and shoulders the pain never went away it moved to by back and hips. as of now i have extreme stiffness in my upper back, neck, hips and tendonitis in all of my joints. all joints are a bit swollen from inflamed tendons and make popping noises. to get my point across even my jaw has tendonitis and pops! i have since given up swimming as of 2 years ago and all sports.
the pain is excrutiating i have also pain along the fascia of my bones, muscle numbing in my hands and feet, muscle twitching in my legs and buttocks. i have frequent ear stuffiness, sore throat, headaches, and dry eyes but mostly muscle and joint pain.
i dont know whats wrong with me. can you have lupus without the anti body? i have been in chronic pain for 2 years now and still no answers.
my rheumatologist was speculating spondylitis and i have been given prednisone with no relief whatsoever. in fact after starting prednisone i have been very sick to my stomach